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Finally some good news....

User
Posted 15 Feb 2020 at 12:21

Saw my Consultant on Thursday, he was surprised but delighted that I have been completely dry since my catheter was removed last Wednesday "maybe we should leave the catheter in for longer after surgery" We discussed my diagnosis & he told me that the cancer was very aggressive and locallyaadvanced, but it only covered 12%of the prostate & was low down, making surgery more difficult. The pathology showed positive margin. After further investigation, the final stage is now T3a with non-focal extraprostatic extension. At this point, the cancer has not spread and there are only "miniscule cancer cells remaining" My latest PSA is undetectable and Mr S along with the Oncology Consultant have decided to delay any further treatment for the moment & monitor the situation with regular PSA tests (next one in 4 months) I was stunned, I was fully expecting to be starting on HT/RP straight away. Needless to say Julie and I are a lot more relaxed than we have been since the whole PCa thing started. It's nice to have some respite from treatment - even if it's just for a few months it just feels like there's some light at the end of the tunnel.

 

User
Posted 15 Feb 2020 at 12:21

Saw my Consultant on Thursday, he was surprised but delighted that I have been completely dry since my catheter was removed last Wednesday "maybe we should leave the catheter in for longer after surgery" We discussed my diagnosis & he told me that the cancer was very aggressive and locallyaadvanced, but it only covered 12%of the prostate & was low down, making surgery more difficult. The pathology showed positive margin. After further investigation, the final stage is now T3a with non-focal extraprostatic extension. At this point, the cancer has not spread and there are only "miniscule cancer cells remaining" My latest PSA is undetectable and Mr S along with the Oncology Consultant have decided to delay any further treatment for the moment & monitor the situation with regular PSA tests (next one in 4 months) I was stunned, I was fully expecting to be starting on HT/RP straight away. Needless to say Julie and I are a lot more relaxed than we have been since the whole PCa thing started. It's nice to have some respite from treatment - even if it's just for a few months it just feels like there's some light at the end of the tunnel.

 

User
Posted 15 Feb 2020 at 14:43

I had similar post-operative staging to you, and in seven PSA tests subsequently, over twenty months my PSA has been undetectable. Long may it continue!

Best of luck.

Cheers, John.

User
Posted 15 Feb 2020 at 22:09

Steve

I view my situation that "it is what it is" I say to people who ask how I am " still here, still moaning".

4 months ? You deserve a medal for that,  I have had urethral catheters for 4 weeks at a time. 

Take care.

Thanks Chris

User
Posted 16 Feb 2020 at 13:15

Great news and long may the undetectable PSAs continue. TG

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User
Posted 15 Feb 2020 at 14:43

I had similar post-operative staging to you, and in seven PSA tests subsequently, over twenty months my PSA has been undetectable. Long may it continue!

Best of luck.

Cheers, John.

User
Posted 15 Feb 2020 at 15:40
Many thanks John, I will try and follow in your footsteps. I feel like I've been let off the lead. If only there wasn't Covid 19 around, we would be off to warmer climes for a couple of weeks!

Best of luck & as you say, long may it continue, I'll be watching.

User
Posted 15 Feb 2020 at 17:18

S

Great to hear some good news , it's been a long drawn out process. Hope things start to get back to your new normal soon. 

Thanks Chris

User
Posted 15 Feb 2020 at 21:44
Thanks Chris, yes it does seem to have dragged on, in fact Mr S asked how long the catheter had been in 7 or 8 weeks? He couldn't believe it was nearly 4 months until he checked back through his records.

Anyway, how are you doing? I see from your recent posts that your PSA is causing some issues. I really hope it stabilises soon and you get some improvement.

Take care

Steve

User
Posted 15 Feb 2020 at 22:09

Steve

I view my situation that "it is what it is" I say to people who ask how I am " still here, still moaning".

4 months ? You deserve a medal for that,  I have had urethral catheters for 4 weeks at a time. 

Take care.

Thanks Chris

User
Posted 16 Feb 2020 at 13:15

Great news and long may the undetectable PSAs continue. TG

 
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