Urinary Incontinence with constant drip

Thank you all for your encouraging responses. I will try to keep positive.

Does the communication between the brain and the bladder repair itself gradually over time? Is there anything I can do to aid the process?  

An up-date on my post.

I had another meeting with the specialist physiotherapist. She confirmed that I was doing my pelvic floor exercises correctly and with the right frequency.

Yesterday I had my first follow-up appointment since my surgery (10 January). I had expected to see the consultant who did the operation but for some reason that could not be explained he was not around. So I saw a young registrar.

The good news is that the histology showed that the cancer had been completely removed with no trace of spread anywhere else. Pleased to hear it but with T2, N0 and M0  I would have been very  disappointed had there been a worse outcome.

There is still no improvement with my urinary incontinence. I took this up at my appointment yesterday but did not receive any encouraging response. Only the usual " everybody progresses at their own rate - be patient - will consider options after 12 months". This really does not make me feel any better. The doctor confirmed that I have "gravitational" incontinence.

I am hoping to drive down to the south of France shortly and am not looking forward to the logistics of keeping comfortable. Any suggestions? I leak just as much when I am sitting (as in driving) as I do standing and/or walking around. Is this usual or ,at least, common? I have spoken to a few people who have had incontinence problems and they were surprised that I was having issues while seated. Has anybody else same problem i.e. equally incontinent seated as standing/moving about?

I am trying to remain positive but it's not easy. 

Thank you J-B for your words of encouragement.

I went on a reasonably long car journey today. I had had no  feeling that I had been leaking but when I got home I was absolutely soaked. Still considering going down to France but I think I will have to stop every couple of hours for a pad change. 

You said you were not so bad sitting down. That's what I've heard from other people. I'm still desperate to hear if anyone else has or had the problem of leaking just as much (possibly more) sitting as standing and moving about. I hope I am not alone in this.

Thanks for that "The 1974" . Does the sheath work OK when sitting down in a car seat for a long time? I would have thought that gravity would be working against it. Also, what if you feel the need to urinate? Do you just let it rip? Can the sheath handle the force of the flow?

Whilst driving i would lift my bottom up to straighten my body then urinate slowly, this seem to work for me and i never had any accidents. I would always check and move the sheath around to make sure it was free flowing and not kinked in anyway.

Coloplast will send you a measuring guide so you can get the best fit.

You can also cut the external catheter tube length to fit and ask for various sized bags.

Any further questions just ask.

Sorry, forgot to say that I have an appointment to see my consultant on 24 March. I will not have finished the course of Duloxetine by then and the information on the drug suggests it takes 2 to 4 weeks to start working. Still I look forward to seeing my consultant again. It will be the first time since my surgery on 10 January.  

Thank you for your words of encouragement. 

I quite liked my experiment with the Coveen. However it fell off at 17.00. Fortunately I was at home. Half an hour later I would have been in the pub. That would have been embarrassing!

I will try another sheath on Saturday and try to fit it better. Maybe I should have specified an even smaller size!!

Edited by member 12 Mar 2020 at 19:05  | Reason: Predictive text!!

Barry I really feel for you. I don't know how to or what to say to make you feel less desparate. I guess you don't feel it but life is better than the alternative.

Have the medical people not suggested an AUS or anything else?

Could not get on with the Depend pants. They sagged when they got the least wet.

I find Tena Premium best. Often use in conjunction with Tena number 3 pads 

11 weeks on since my RP so time for an update.

Still leaking like a sieve but fortunately still dry overnight.

Managed to see my surgeon for the first time last week. I gather that when he did the Lymph Node Dissection he had to remove more tissue than he normally does and that this can have an adverse effect on regaining continence. I got the normal "It's still early days" and "Keep doing the exercises".

I have finished the 2 weeks course of 20 mg Duloxetine and he has started me on a 6 week course of 40 mg tablets in conjunction with a drug called Trospium Chloride.

Has anyone been on this combination and did it work?

Still experimenting with the Conveens. Have now got the longer ones. I find you have to use the Prep for good adhesion. Not sure that I trust them for a day out. Pads can be easily replaced. A malfunction with the Conveen would be immediately visible.

I hope everyone is coping during these extraordinary times we are living through.

Keep well and keep happy.

I never thought of wearing a pad with the Conveen. I would have thought that it would be a bit crowded down there!

I'm still having problems with the Conveen. I wear the thigh bag so the plastic tube is cut really short. I can't think how else to do it. The problem is that the tube can easily get a kink in it and the urine backs up and can force its way to the back of the sheath and/or loosen it. If it's pulled partially off, the kinking gets even worse.

I wish I could get on with the Conveens, but I don't think I will.

Hi guys. Just logged into the forum this morning after an absence of almost 5 years!! I have now posted a possible non surgical solution to those with moderate incontinence where you are using more than a couple of pads a day. It's entitled Stress Incontinence Management. It's based on a sheath and modified thigh bag, and has worked brilliantly for me for the last year or so. May be worth a try.

I found that the sheaths that I first started using (Bard Clear Advantage Spirit Style 1) failed occasionally and then more frequently for some unknown reason. A chat with the suppliers suggested an alternative style 3 which has adhesive the full length of the sheath instead of only in the middle length. These have resolved the problem with no failures since I started using them about 8 months ago.  

Hi,

I've responded to your new post.

Thanks.