Husband's biopsy

Many thanks for your reply.  I believe his PSA was 11 but I need to check that out again in case I heard wrongly.  Any advice for stopping my mind wandering for at least another week.

Hello Lyn,  Yes he had an MRI, then the biopsy on the same day.   Thank you again for your wise words.

Thank you Nick for your reply.  Yes, we have to think positive.  It was the fact that the Urologist actually mentioned the fact he thought it was cancer to my husband just after taking the biopsy that freaked me out and also my poor husband.   I have decided to wait a full two weeks then I will phone down to see if they have the results.   It sure is a shock to the system when you think your life is chugging along fine.   This only came about because I mentioned at one of his doctors appointments about his nose running all the time and (the main reason) the fact he was running to the toilet all the time.  Although it has come as a shock to the system I am only glad I had gone in with him at that appointment and mentioned the situation otherwise things could have become a whole lot worse.   So, we now await the result.

So glad to hear your good news and thanks again for your best wishes

Celia

Thank you Mel for your message.  Although the wait for results is difficult, I too am only glad I brought the subject up of his frequent visits to the loo which I knew were getting him down.  BUT if it had not been brought up things could have ended a lot worse.    Everything now crossed for his results.   Wishing you and your husband the very best.

Best wishes,

Chris

From what I recall, after my MRI I received three letters in the post on the same day. One was appointment for bone scan, one for biopsy and the third was appointment for result, which was to be about two weeks after the biopsy.

I'm sure different trusts work differently, but I'd say mine was quite good, in that you already had an appointment for the results, prior to them doing the tests. Your hubby's biopsy was on 24/2 I think you are justified in calling them to chase them up now. 

To follow on from my last entry hubby had to have two weeks (every day) radiotherapy and also steroid injection every 3 months until they say to stop.

We have a telephone conversation with the cancer hospital (he has to have his blood taken a week beforehand for his PSA level) and the last one, his PSA level was more or less nil. He will be under the hospital for 3 years and our next telephone conversation will be in November.

One thing that hubby is experiencing is he feels his energy draining away leaving a feeling of weakness especially from the waist down. Has anyone else experienced this and how do you cope with it.

Many thanks to you all for reading this, take care and all the best.

Best wishes,

Chris

I did not ask for a prognosis. My thought is that no one really knows and the outcome will depend a lot on what I do plus the anti-cancer drugs whatever they may be. I need to be around a long time for my kids and new grand child.

Now on my third 3-month zolodox and nearly 3 months on enzalutamide. On September 1 I have face-to-face consultation with oncologist to define my radiation treatment which is programmed for October / November. My PSA was down to 0.11 (from initial 64 in February) in mid July and today I go for my monthly bloods prior to renewal of my enza prescription. So far so good; main issue is fatigue but I bought a dog to ensure I get out at least twice a day and walk at least 6 km every 2 days. Changed my diet without punishing myself (I lose about 1 kg a month) and I take supplements (vit c, vit d, garlic, turmeric, iron, apricot kernels, and a couple more) that while they may be no good at least give me the impression that I am doing something. The challenge is to remain positive and prove the urologist wrong big time!

Hi there,

You are doing really well I think, what with changing your diet and losing weight and taking the vitamins.   Although I am not sure about the apricot kernels having looked up info on them.  I had the understanding they were poisonous. Have you looked them up to see if they are healthy to take?  Your PSA has come down from a staggering 64 which is great and soon you will have your timetable for your radiation treatment.  Once that starts then you are on your way.  I think hubby had two Prostap injections before his radiotherapy.   Radiotherapy went well and he did not have any after effects.  He has six monthly reviews by telephone when the hospital tells him his latest PSA level and he is scheduled for one now in November.  So, onwards and upwards, thinking of you when you have your next appointment keep taking the vitamins but do look up the apricot kernels.  We are all on here to support one another and you have a great one on four legs and oodles of love for you.  Take care, thinking of you, thanks for your reply.🐶

After RT and with no evidence of mets I would expect them to have a target date for stopping the injections. For me it was 18 months post RT. Some people find the side effects of HT unbearable and ask to stop earlier than that. If he is not suffering too badly he should probably go for the whole course, but I think it is worth asking when they think the last injection will be.

Many thanks Dave.  We will see how he goes and what they say at the next phone appointment in November. Take care.