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User
Posted 25 Mar 2020 at 01:53

Hi. I hope I'm allowed to post this, as it's not really related to my PC, but is causing me enormous amounts of grief.

I told my dentist back in October, that I wanted all my dental treatment completed by the time I started my PC treatment. He sort of ignored me, or at least didn't give me an answer. I had two teeth playing up, both had been root canalled. One of them, he said, needed to be extracted and in January of this year, an appointment was made for the extraction on May 13th! So quite a wait then. Not accepting this lack of care, I found and registered with a new NHS dentist. My first appointment was arranged for March 26th.

During this wait, one Sunday night, I was biting into a soft piece of cake, when I suddenly got a pain like being struck by lightening! My tooth had split right down the middle and well below the gumline. The next day (having had half the tooth hanging out of the socket all night) I saw an emergency dentist, who cleaned up what was left of the tooth (the broken bit had fallen out earlier) and patched the tooth up, until she could extract it some weeks later. That happened on 3rd. March. My gums are very narrow, so my tongue sits just inbetween the teeth, which dig into it on occasion. Well I hadn't realised just how much of a problem that could be! The back tooth on it's own (second upper molar, left side, between the already removed wisdom tooth and this latest extracted first molar), is now digging full-time into my tongue at a jaunty angle and making me feel quite nauseous all day long. The pain from the socket is also playing up and three weeks after the extraction, is showing absolutely no signs of healing. (It should have only taken two max, yet is still just a wide open socket! I have been treated for 'dry socket' to no avail).

Having to only eat on the right side, is also causing the other first RC'd molar to ache significantly. Now of course with the coronavirus lockdown, I've been told that A) my tooth/tongue problem doesn't count in dental circles as an emergency, so nothing will be done about it (all I need is a temporary single denture or similar, to relieve my suffering!) B) that due to the virus measures, my first dental appointment with my new dentist this Thursday has been cancelled, though they may be in touch in about three months to reschedule! And C) having rung round today (Tuesday 24th. March) I'm completely unable to find a single dentist working anywhere locally, including private! As my partner is a disabled wheelchair user and I her full-time carer, we survive on benefits only and couldn't really afford to go private, but I am at a real point of desperation now and may need to take out a loan! If anyone here may have any ideas or suggestions in what to do/where to go to get help, I would be extremely grateful. Especially if any of them work. I am already at the point of trying to make my own temporary tooth solution, but it is not going well.

I'm starting my RT in June, so hope that a solution will be found long before then, but I don't hold out any hopes!

User
Posted 25 Mar 2020 at 11:20

Buy some Iglu Protect from the pharmacy - it is quite hard to put on to begin with but once you get the hang of it, it creates a sort of plastic covering for your tongue.

For the rough edge, you could buy something like this - https://www.amazon.co.uk/DenTek-Temparin-Filling-Material-Single/dp/B000KVLKQC  I see that it is out of stock in Tesco, Boots and Lloyds online but may be available in a store local to you if you don't use Amazon

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Mar 2020 at 12:26
I am not sure what difference the current virus has had but quite a long time ago had a dental problem that my dentist of the time would not touch and a friend suggested I go to the emergency dental dept of my local hospital. They were not particularly keen to treat me until they were made aware that I had cancer whereupon they agreed to treat me.

As regards healing, swilling with salt water can help. I know you have to concentrate to keep your tongue away from open sockets and to avoid biting your tongue. I am presently in a somewhat similar position as I have 3 missing teeth at present with healing screws at gum level which were due to be removed and replaced by abutments and crowns this month.

When I had quite a number of teeth removed some years ago, I found it helpful to use a small grinder so it was less for my remaining teeth to chew and this helped considerably.

Barry
User
Posted 01 Apr 2020 at 03:14
Yes, phone the dentist and get another short course of amoxicillin (or whatever antibiotic), just to make sure the infection is dead.

Cheers, John.

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User
Posted 25 Mar 2020 at 08:15
I expect this will become major problems for many of us. My routine check up due yesterday was cancelled, initially because they said I was over 70 and should be self isolating, now the dentist like all of them is closed. Opticians and hearing aid clinics are also closed, ordered some hearing aid batteries on Amazon to keep me going. I am rather puzzled that these outlets are not treated as medical related and exempt, hopefully they will soon realise and change the policy.

User
Posted 25 Mar 2020 at 11:20

Buy some Iglu Protect from the pharmacy - it is quite hard to put on to begin with but once you get the hang of it, it creates a sort of plastic covering for your tongue.

For the rough edge, you could buy something like this - https://www.amazon.co.uk/DenTek-Temparin-Filling-Material-Single/dp/B000KVLKQC  I see that it is out of stock in Tesco, Boots and Lloyds online but may be available in a store local to you if you don't use Amazon

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Mar 2020 at 12:26
I am not sure what difference the current virus has had but quite a long time ago had a dental problem that my dentist of the time would not touch and a friend suggested I go to the emergency dental dept of my local hospital. They were not particularly keen to treat me until they were made aware that I had cancer whereupon they agreed to treat me.

As regards healing, swilling with salt water can help. I know you have to concentrate to keep your tongue away from open sockets and to avoid biting your tongue. I am presently in a somewhat similar position as I have 3 missing teeth at present with healing screws at gum level which were due to be removed and replaced by abutments and crowns this month.

When I had quite a number of teeth removed some years ago, I found it helpful to use a small grinder so it was less for my remaining teeth to chew and this helped considerably.

Barry
User
Posted 28 Mar 2020 at 15:55

I went on the UK's 111 phone service the other day and there was a friendly chap on there who tried to help as much as he could. He said that, as I have cancer, there should be no problem getting an emergency dental appointment. He gave me four local numbers to call. I called the first three, only to find that they were all (strangely enough) about to close down that same day, as they had been told to by the government! The fourth and last number, was for the Siskin Centre in Norwich, who were the people who extracted this tooth in the first place! They said I had to ring back in the morning (as usual) for an emergency appointment at 08:30. They are only open for a maximum of 60 minutes and if you don't get an appointment then, you have to ring back the next day and so on. Well after having been 'Caller No. 1' since 09:15 (what do they talk about for so long?) I eventually got through at 09:26! Just made it! I got there at about 10 to 1 as told to (appt. at 1 o'clock), only to find a big truck handing out food supplies to NHS staff (there are many other dept's too) and blocking the entrance to the car park! I eventually got into the centre at about 12:59, where I had to wash my hands and don a face mask! When the woman dentist examined me, she virtually shouted at me and asked why I felt that I needed to see a dentist. I told her about my pain, STILL unhealed socket and tooth/tongue problem. I also told her about my cancer and how the dentist? Dental assistant? I had spoken to the day before, had told me to go somewhere for an emergency dental appointment. She shouted at me again! "You spoke to a dentist yesterday and yet you still came here! Why?" I AGAIN explained about the pain and the waves of fear and panic attacks and the cancer. "Well you really shouldn't have come!" She remonstrated with me. When she finally calmed down, she explained that my tooth pain was probably caused by my diabetes, which apparently slows down the whole healing process and is why my socket was not yet healed, but was getting there. I'd never heard of this before, but I suppose it made sense. Regarding the stress, anxiety and panic, she very nearly laughed in my face at that, as anyone who doesn't understand, or has never had a mental health problem, usually does. Although I wouldn't have expected it from an NHS professional! I tried to get across to her about how debilitating I was finding it and her only solution, was to buy a few Babybel cheeses, remove the waxy red rind from one and rub it on the sharp edges of my teeth! Some hope. I haven't bothered trying that yet, as I don't like the taste of wax, though someone had earlier mentioned using dental wax, which is maybe preferable, I just haven't found any yet.

I understand why dentists have had to close, yet she was wearing a cloth face mask, under a full-face plastic mask, so couldn't possibly have caught anything, even if she'd been drilling away all day! Yet hospitals are still open and doing some procedures. Maybe they should have sent me to the oral-maxillofacial dept, who would probably have been a bit more helpful!

I don't have a small grinder Old Barry, but I'm sure that I would be using it by now, if I had! And about the Iglu Protect Lyn, is that the mouth ulcer stuff, or the one for brace wearers?

Just to add, I bought some 'Extra Strength OraJel' the other day and have been trying that, it is a mouth-numbing gel that you just rub on a sore tooth or another sore spot. Well I put some on my tongue and it numbs it up, though it seems to concentrate the feeling of the teeth digging in, without taking any pain away! The worst bit is that, even putting quite a bit on, the effect lasts no longer than 15 minutes anyway, so is a complete waste of time and money!

Regards, Ross.

Edited by member 28 Mar 2020 at 16:00  | Reason: Not specified

User
Posted 28 Mar 2020 at 18:18
Hi Ross,

It’s such a shame your dentist didn’t treat your request more seriously back in October. I know it doesn’t help you but mine was totally the opposite. Without any prompting, as soon as she knew I was going to be getting chemotherapy she arranged for a specialist to remove a problem impacted wisdom tooth in time for it to heal before my first cycle.

All the best

Dave

User
Posted 28 Mar 2020 at 20:39

Very frustrating when you come across medical professionals who show little empathy. Yes we know they are stressed at this time but there is no need for the way she seems to have responded to you. I can’t offer any advice re your teeth but suffice to say I hope you can somehow get something to help until things return to normal

Take care

Bri 

 

User
Posted 30 Mar 2020 at 01:40

Thank you Davy and Brian. I know it's just because of this darned virus that I am seemingly up a certain creek without my paddle! It's great to hear what you say Davy, that you managed to get treated before your PC treatment began.

I really think I have no hope, although I have lots of ideas that could fix my problems quickly, all dentists seem to be running scared at the moment!

User
Posted 31 Mar 2020 at 21:39

Well at least today (Tuesday 31st. March), I have heard that my bone scan on 17th. has come back all clear! So that is good news. It also shew that I have 'dental sepsis'. I had a course of antibiotics on 11th. March, for 5 days, so that would have finished on 16th. March, with my bone scan being the next day. 

My question today is, does that mean that the infection I had in my extraction socket is still there? I still have pain in it, though it is slowly fading. So maybe the pills were still working, the day after I finished them. Or should I go back to the dentist (on the phone) d'you think? To try and get another course maybe?

User
Posted 01 Apr 2020 at 03:14
Yes, phone the dentist and get another short course of amoxicillin (or whatever antibiotic), just to make sure the infection is dead.

Cheers, John.

User
Posted 18 Jun 2020 at 20:06

Well, trying to post a new subject in 'treatment' it just says "Access Denied!", so I'll post it here and hope someone has some tips and things to help me, maybe? Here goes:

So I'm now on my promised EBRT and have had 7 of 20 fractions. Started on 10th. June and finish on 7th July. Last week was great, the first three days, no side effects at all. Monday, they started. At least I think that's what they are. I have developed a pain exactly where I sit on, at the base of my buttocks. It also hurts when I stand, walk, lay, you name it! There is also a problem with urinating. When I go, it feels like a ball or balloon inflates just before I finish and although I can finish, there's an odd sensation that feels like... well, I can't describe it, but it's quite uncomfortable and I hope it doesn't continue! Regarding the other side, well I can't tell whether that's working properly or not? I have those funny little enemas, the first one missed the target completely! But I've got the hang of it now, but, passing something, I never know if there's loads left or whether I'm completely empty or not. Apparently the team are quite happy with the shape of everything, but 2 litres of water a day is just too much for me. I'm burping my way round the hospital and feel like a ball of gas is filling my stomach. I nearly manage that much but it's probably a glass less than it should be (about 250 mls). They are 'threatening' to give me some medicine to help with the waterworks, which I won't mind, as long as it's not Tamsulosin, as that stuff makes me feel quite ill and drunk with it! If anyone has any tips for the best painkillers to use or methods of dealing with the plumbing etc, I would be mighty glad to hear them! Thank you.

 
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