Hi, first time poster here.
I saw the urology Dept @ Good Hope Hospital on 26th March. Usual ultrasound/DRE/MRI scans. On 20th April I received a letter telling me that my scan showed " 1.8cm lesion, peripheral zone, PIRAD 5 suggesting high grade tumour". This was followed by the following gem
"Unfortunately we are unable to perform a TRUS biopsy due to COVID-19. I will see you again in four months time with a repeat PSA"
Given my family history with PCa ( brother undergoing RARP aged 49, Dad with the disease, uncIe already having experienced PCa) was understandably pretty worried about this. I tried calling a local private clinic to enquire about a private biopsy but none of them were answering the telephone. So, I sat and waited. About 6 weeks ago my local NHS Trust decided to start elective non-urgent surgery, but not diagnostics. Which really p*ssed me off. I sent letters to national/local media about this but heard nothing. As part of the media "campaign" I wrote to the local BBC health correspondent, who contacted me with a view to doing a piece on the local news bulletin about this. Mr BBC, after the interview, suggested that I ask my GP to refer me to the Rapid Diagnostic and Assessment Centre at the Royal Marsden.
The treatment I have had at the Marsden has been exemplary. Referred on Monday, contacted about my initial appointment on the Wednesday, undertook another round of ultrasound/DRE/MRI scans one week later. Two weeks later had a transperineal biopsy. Biopsy showed the disease in much of the prostate, Gleason 4/3, PSA 7
And 10 days later underwent a PSHA/PET scan. Scan came back negative and confirmed that the cancer had not escaped the capsule- big sigh of relief!!!
Currently awaiting a date for RARP. Should be in the next 3-4 weeks.