Since they gave me the results of the biopsy a little more than a month ago, I have been trying to regain somewhat of a clear perspective on things, not easy to do when you are suddenly having to deal with cancer right while a pandemic of unprecedented proportions engulfs the health services of every country on Earth.
Finding this website the last few days has given me something extremely valuable to help me with understanding my new condition, and seeing that many people share the same thoughts i do has given me quite a bit more of support based on first hand information from people on these forums. I am literally reading almost every post.
So, the diagnosis is Gleason score 3-4. Max volume 2mm. So yes, the bottom end of the spectrum. Was advised (via phone) for RARP. Sought a second opinion, and it was confirmed. I have now accepted that surgery is probably the best option for me given my age. Am obviously concerned on the verge of terrified about the post operation repercussions of ED and urinary incontinence.
But then, because of Covid, and like many here are experiencing, commitment to any time frame for surgery is impossible from the nhs. This has made me anxious, and I go from some days thinking that yes pc is very slow growing, 3 months, even 6 months probably won't make much difference, to some thinking that well, but how long are we talking here exactly? How long is the limit? How is it possible to not even commit to tell a cancer patient that yes, we will do it within 6 months. The void of even having a ballpark time frame is quite difficult to digest. And I can't even begin to imagine what effect it must have on patients with more aggressive cancers than mine.
Then, the Oncologist proposed to put me on HT to "put the cancer to sleep while we wait for surgery". Low dosage, so no side effects most likely, he said. Have not started but will probably start monday even though i have read it is out of any guidelines to use HT as a gap therapy for Surgery. Unprecendented times, unprecedented guidelines i guess.
I have read about on the forums about HT low dosage side effects or not, and it seems to vary widely person to person. I will be taking 50mg bicalutamide tablets. Has anyone else been prescribed these? Any insight into what your experience is/was?
I'll just finish by saying if anyone feels like they have a similiar experience to the above feel free to share it, any help is great and if i can be of help would gladly be even if relatively new to this condition, so still doing lots of homework on it.