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What is wrong with me??!

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User

Posted 27 May 2020 at 21:19

Hi all....

ive never posted on here but could really do with some help....I’m a healthy 40 man who has struggled with prostate problems for the last five years....

I’ve been struggling with penile discharge and also a rash over my body. The rash has been diagnosed as Folliculitis however an infected hair follicle has never been found.

I have been tested for all STIs and they have all come back negative. Only one test showed white blood cells in my urine but no bacteria was found.

Ive had numerous tests and no infection has been found however I have had a MRI scan and this showed inflammation around my prostate however again no infection was found....

I’ve spent thousands of pounds on private tests and also via the nhs but no one can explain what this is...it doesn’t seem to be bacterial and it’s a virus it never goes away....

has anyone got any help/light to shine on this/advice? It’s really starting to get me down not knowing what is going on with my body.

please help me

User

Posted 27 May 2020 at 23:02

I don't know but the symptoms you are describing don't point to prostate problems so what are the prostate issues that you have been dealing with for 5 years?

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 May 2020 at 10:22

Folliculitis is a description of where an infection is (in hair follicles), not what the infection is (i.e. which bacteria).

Like Lyn, I'm waiting for a description of the prostate problems, so this is way jumping the gun, but skin bacteria do get into the prostate in some people, and are often the bacteria causing prostatitis. How this happens is not known and it happens in lots of people who haven't undertaken any strange sexual activity that one might imagine could contribute to it. While prostatitis can be painful, it sometimes isn't at all, and it's common that the bacteria causing it are not released in urine or semen because they've completely blocked off an area of the prostate.

The next FOPS (Chorleywood prostate support group, which covers all male prostate and urological issues, not just prostate cancer) will be on 10th June via Zoom, so anyone in the country can join. (I'll post details when I've scheduled the Zoom session.) This is a panel of 3 consultant urologists and a pelvic health physiotherapist taking your questions. One of our consultants is one of extremely few specialists in prostatitis in the country, so if what I'm guessing above is the case, that would be an excellent opportunity for you to ask about your prostate. If you were told which bacteria were found in the folliculitis, that might be important information for the consultant too.

One other thought, has your blood glucose level been checked? High blood glucose does promote growth of skin bacteria, which increases the chances of growing excess or picking up bacteria which are not usual skin inhabitants, and of getting them into other parts of the body.

A lot of guesswork because lacking some information from you.

User

Posted 28 May 2020 at 14:05

Hi all and thank you for replying and the support already shown.....

To give further clarity i have had clear 'sticky' penile discharge for around 5 years now. Sometimes I can just feel it come out of my penis, other times if I have urinated its there at the end of urination. Sometimes I urinate and then a few minutes later more urine will come out along with this discharge. I never had either this or the rash I get before and now I have it every single day.

All the STI tests I have taken have come back negative (the have been both private and NHS and have been blood and swabs, etc).

Because of this the GUM clinic referred me to a Urologist as they could see pus and white blood cells in my urine but no bacteria grew from these cultures. I know it sounds strange but the rash and the discharge go hand in hand - I don't have one without the other before.

The urologist took a MRI scan and noticed the inflammation around my prostate and as no bacteria could be found assumed it was prostatis. He has prescribed me 3 months of CIPRO to be taken twice a day but this has had little impact.

The rash is intermittent but at any one point I will have a spot on my body of it.... its a complete mystery as the discharge does not go away, it never heals or stops. All signs point to Ghonerrea but I have had multiple tests for this. The Urologist is assuming Prostatis due to the inflammation but again can't be sure.

I am really sorry to burden everyone with this - I can upload images, etc if that helps.... any support/guidance is greatly appreciated.

thank you (and apologies for any typos I'm doing this on my phone!).

User

Posted 28 May 2020 at 14:22

Well fortunately this forum doesn't allow photos to be uploaded so we will all be spared.

You don't have any symptoms of prostate cancer which is some comfort, I hope. I doubt anyone here is going to be able to help you more than your urologist can.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 28 May 2020 at 16:27

Hi Lyn

Thank you for your quick reply and sarcastic comment - just what I needed when telling my health history to complete strangers online. Thanks for saying its not cancer - ill go back to my Urologist and keep things going from there. Andy62 thank you for your response - very much appreciated and ill share this with my GP.

Best

User

Posted 28 May 2020 at 21:25

It wasn't intended to be sarcastic, it was a bit of humour. Also, I didn't say you don't have cancer; I said these aren't symptoms of prostate cancer.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 29 May 2020 at 23:35

Hi Paul

I have no medical knowledge.

However saw your post. I found this https://www.scielo.br/scielo.php?script=sci_arttext&pid=S1677-55382010000100002

May I ask. Where is rash and how big, how long last ?

Has blood ever been found in your urine ?

My only other thoughts , are allergens ? Possibly food or drink ? Or fungal.

Hope link works

I have no seminal glands , only Cowper's left. So practically zero output.

Gordon

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