any advice would help thanks

No way of knowing what the outcome will be; if there is an opportunity to ask questions tomorrow (there may not be), ask how long it takes the hospital to get the biopsy results & have them discussed at the multi-disciplinary meeting and how the results / any recommendations will be communicated to you. It is usually 2-3 weeks.

Thanks all for the advice, appreciate it.

All the best

As you say it could have been a lot worse.

Once I had a positive diagnosis (and mine was slightly worse than yours) I let the kids know. But only in the sense that it had been detected early, wasn't life threatening and for now they were just going to keep an eye on things. They were pleased I'd told them and tbh just accepted it and moved on. I'd keep them updated if they ever asked.

Hi

Tell them it’s difficult but our Girls were more upset that we kept it from them as soon as we knew x

How old are the children? And are any of them boys? 

Edited by member 05 Oct 2020 at 19:46  | Reason: Not specified

Did you know that if you had critical illness insurance with certain insurers, they wouldn’t pay out on a G3+3=6 diagnosis as they don’t class it as ‘life threatening’. There is a school of thought that G3+3=6 should not even be called ‘cancer’ at all, just ‘a little trouble down below’.

Best of luck.

Cheers, John.

Met with the MDC and they also did a review of the 12 cores and found 1 additional core with .2mm.  So I've gone from Gleason 3 +3 tc1 with 1.5mm in 1 of 12 cores to now 1.7mm in 2 of 12 cores.  Going to go on active surveillance.  Based on my conversations with the team and all the research I've read the progression of Gleason 3 + 3 is extremely rare if non-existent.  So the 25% of men who get an upgraded score at some point while on AS is either due to an initial misdiagnosis of the initial 3+3 or the missing of a more aggressive grade during biopsy or both.

I've been reading a bunch of the posts here and it seems (anecdotally) there is quite a number of those on AS who progressed and I'm curious if anybody else has a sense of why the prevalence of this seems higher here or is it just those who have progressed are more likely to post because I guess while on AS there really isn't much to announce if things remain static.

I never comment on anything I know nothing about, but I do have an 86 year old friend afflicted, who’s on HT, so I’m learning more about that, which may benefit me eventually if I end up on it.

Cheers, John.

I was diagnosed with Gleason 3+3 15 years ago. On watchful waiting all this time and just been recently diagnosed with 4+3 T3 cancer. Having radical prostatectomy soon. Your cancer is probably not going to disappear. It might stay the same and never cause a problem or, like mine, need to be dealt with. Explain to your children. I’m sure they’ll understand. 

.

Three of them had recurrence shortly afterwards, and had to undergo hormone and adjuvant radio therapies subsequently, which they could have had in the first place, without surgery. I am the only one who didn’t need it (so far).

Talk it over with your specialists, one in four is not a scientific survey of course, but I wonder if my mates wished they had gone for RT in the first place?

Best of luck.

Cheers, John.