I'm new to this forum, 65 and just coming up three years post prostate removal. I had partial nerve sparing robotic surgery. I have recovered really well from the operation, continence is excellent, PSA unmeasurable, back to full fitness and strength, but......
Erectile function is still a problem. I was prescribed low dose daily cialis by the consultant at my six week check up post surgery. After a month of that the prescription changed to the higher dose (20mg I think) Tadalafil 'weekend' tablet which the consultant delicately put that I should take once a week or when I was planning something! Neither the low dose or the higher dose have given me an erection when I wanted one but the higher dose does seem to cause very fleeting erections in the middle of the night/early morning but these are gone pretty quickly. I stayed on the tablets for about two years fully expecting them to work as I was told that it can take up to eighteen months for the preserved nerves to recover.
I have tried the vacuum pump in conjunction with the ring to create an erection and have intercourse but it felt far from 'normal' and with absolutely no spontaneity. I persuaded my urology nurse to let me try Alprostadil injections. I did wonder how I would react to sticking a needle where I didn't really want to stick a needle, but it was OK and gets easier each time. First I tried Caverject Duo - suggested dose 2.5 micro grammes. What a reaction, proper erection but it lasted about 4 hours and was getting pretty uncomfortable by the end of it. I felt that I probably needed a smaller dose. The problem with the Caverject is that it is limited to 10, 7.5, 5 and 2.5 mg doses.
So, I went on to Viridal Duo 10mg - this doesn't have the set doses like the Caverject so I can squeeze out most of the syringe contents before I inject. I have to get rid of pretty well all the contents before I inject to get an erection that last about an hour and stays comfortable.
The waste of the 'complicated' syringe system just to get a tiny dose seemed mad, so having spoken to the Urology nurse again I recently got my GP to write a private prescription for Vitaros Cream. I have tried this twice to not much effect. First time I didn't have it out of the fridge for very long so wasted a fair bit of it trying to get it into the end of my penis - the consistency was sort of 'waxy' - not what I expected. Second time I had it out of the fridge for about 8 hours at not very hot room temperature. It was marginally more successful in that I got most of it in but it just stayed in a gluey sort of lump just inside the opening. Both times I got a tingling in the head of my penis and the head did firm up somewhat, but no erection.
Have any of you had similar experiences with Alprostadil injections and cream? Any advice? Is there a really low dose injection available anywhere? Is there a way of getting the cream to be more runny?
Thanks in anticipation - Pete
Edited by member 05 Oct 2020 at 18:05
| Reason: missed a word out