Sorry for the long post. I am a 61, of Asian ethnicity not living in UK.
My initial indication that something was wrong was four months ago (third week of June) when I felt a slight groin pain when pushing myself against the bedhead and drawing my feet towards me when watching TV from the bed. The sort of pain you get after stretching your groin playing cricket. As I had not played sports for a long period, I was a bit puzzled. A week or so later the pain was more pronounced and was felt when shaving and pushing the groin area against the vanity counter to get near the mirror. I then felt pain in my testicles and the top of the penis.
I saw my GP who did a DRE and examination of the testicles for epididymitis. He said there was nothing wrong with either the prostrate or the testicles. He asked me to take a urine test. It came positive with pus cells 8-10/H.P.F. However, unfortunately no culture was done.
I then consulted a STD specialist as I was concerned about a possible exposure to a female towards end of February 2020 (before Covid). He ordered several tests for STD’s. Urine and blood and all were negative. Before the test results came, he gave me a two-week course of Doxycycline. I was also given 2 tablets to be taken once. Although initially the symptoms eased by the second week the testicle, groin and top of the penis pain was back.
I then consulted a urologist who also did a DRE, testicle and groin / pelvic examination and then a prostate massage for an immediate urine test. He prescribed a 2-week course of Levofloxacin 250mg once a day and urimax once a day.
The urine culture post prostate massage came back with Leukocytes(pus cells) > 10 cells/mm3 with a comment “ significant pyuria”. However, no bacterial growth presumably as I was still on Doxy.
Once again initially the symptoms subsided but towards the second week the testicle, groin and top of penis was still there. Saw the urologist again before the end of Levofloxacin and he decided to continue antibiotic treatment for an other week but put me on Trifix 200mg (cefixime) once a day as I had surgery 2 years ago for insertional tendinitis.
About a week after finishing the course of antibiotics the groin, testicle and top of the penis along with pelvic pain for the first came back with a vengeance. I was in real distress and worried that the infection could go septic.
I consulted another urologist as the other guy was not available and he decided to put me back on Levofloxacin but increased to 500mg once a day for one month. Within a couple of days, the pain subsided and gradually all symptoms subsided.
I saw my urologist a few days back and told him that I would like to continue Levo (250 mg once a day) for an other 2 weeks ( 6 weeks altogether) as on certain days the pain on the top of the penis and the groin pain still comes on. My orthopedic surgeon told me to get the infection cured and not to worry too much about tendinitis.
I feel I am not totally cured. I take 2 paracetamols in the morning and 2 in the evening.
The last time I consulted the urologist he felt that I have chronic prostatitis / chronic pelvic pain. However, I told him that when I am on antibiotics the symptoms significantly ease off. He told me once I finish the course of antibiotics and if the pain comes back to take a urine test and culture immediately.
All tests done in the last 3 months other than the initial urine test and then the post prostate massage have been negative for STD’s. The KUB ultrasound scan, scrotum ultrasound scan indicating nothing wrong. The PSA is 1.56. Uroflow too was ok.
I understand chronic bacterial prostatitis and CPP are long term issues.
On several occasions I enquired from my GP and Urologists whether there is any risk of cancer (prostate, testicle, bladder) and all of them have said NO. However, I am concerned about the groin / upper thigh pain.
I welcome suggestions from anyone who has undergone similar issues like me and what is the prognosis for the future and in particular someone who has been cured.