Hi, diagnosed with advanced prostate cancer recently, PSA 233 and Gleason 9 (5+4) so asked Macmillan for help with benefits that might be available to support us.
PIP ‘special rules’ came up but the CNS that I have been assigned to says that this would not apply. Not sure whether to celebrate that I have misunderstood my diagnosis or to wonder about my understanding of ‘incurable’ and ‘symptom control’ is.
I noticed from other posts on here that it’s is less about being diagnosed with less that six months to live and more about that if things deteriorated rapidly that death within six months would not be thought unexpected. Given that my Gleason score suggests aggressive cancer, I hope that I have longer than six months but it’s a bit late to claim if I’m dead. A fair chance that in the current climate, being immunodeficient could lead to early death from sepsis. It was sepsis that nearly saw me off when I had Hodgkins twenty years ago.
Anyway, wondering if anyone else has had this conundrum and would welcome learning what was the outcome.