I am new to this site, although I was diagnosed with PCa in Oct 2019. I had a Gleason score of 7 (4+3). I under went 20 Radiotherapy sessions completed mid March 2020, and ADT for 7 months (1 + 2x3 monthly Zoladex implants) completed end of May 2020. I am struggling with ED and lack of libido, which has had a devastating effect on me mentally. I am miserable and sad all the time, struggle to sleep and really feel that life isn't worth living, which must make me sound real shallow, but just cant get it out of my head.
I would be interested to hear of anyone who has had similar treatment and what their experiences were concerning ED. Especially interested in what treatment was given to help with ED, if it worked and if it did how long it took.
Read quite a few discussions on the site, but mostly related to RP treatment, which I assume presents different, although similar, ED problems.
I was 59 when I had the treatment and am 60 now, does this mean an end to my sex life, or is there hope for the future.
Thanks in advance,
P.S I have a consultation with my consultant radiologist on the 29th of Oct and would like to have a bit of knowledge about treatments for ED so that I can have a meaningful discussion with her to agree a way forward.
I had a consultation today, good news was that my PSA level is 0.01, bad news is that my testosterone is non-existent, so low that they couldn't measure it, which was a bit of a surprise since it is 8 months since the last ADT implant and 5 months since the drug had been depleted. Expected to be at base level at a minimum.
Suppose it explains why I have been feeling so miserable. Ironically, over the past week or so I have felt a positive mood change :-(
So as part of the consultation it was agreed that I will make an appointment with the GP and see what steps I can take to address my ED issues, but suppose with no testosterone any PDE5 inhibitors may prove to be useless. Am going to ask for a low daily dosage of Cialis (2.5 or 5mg), this may help me achieve some nocturnal erections to try and avoid penile atrophy. Hopefully my testosterone will begin to rise sooner rather than later.
On the 29th Jan 2021 I had a blood test to check my PSA and Testosterone levels, PSA was still showing at 0.01, good news, and Testosterone was 2.4 (normal levels should be between 7.0 and 31.0), so still low, but at least its started to come back, slowly.
After my last update I also had a discussion with my GP and we agreed that I should try Tadalafil (5mg) and see how I go on. Good news is that they have worked, I can now get erections when required, but unsure if its as a result of the Tadalafil or because my Testosterone is starting to come back and my libido has improved. Am going to continue with the Tadalafil until my next consultation in May, and if my testosterone has increased, until at least baseline (7.0), think I will request the GP lower the Tadalafil dosage to 2.5mg and see how I go on at that dosage, with the ultimate goal of not requiring any ED medication going forward.
My out look on life is also more positive and the depression that I was suffering from has gone, probably down to the lack of Testosterone at the time. But my PCA journey hasn't been an easy one, and I definitely was not prepared for the mental impact that ADT would have upon me.
Will give another update in May after my next consultation. In the mean time good luck to all who are having or had treatment for Prostate Cancer. Hope the information I have provided gives an insight into what some folk may expect.
Edited by member 27 Jan 2021 at 20:15
| Reason: Update