I am three years post diagnosis with metastatic PCa in my lymph nodes in my pelvic region. I actually had a Robotic Radical Prostatectomy and that was followed by 6 monthly Decapeptyl and an initial course of Doxetaxel - the usual combination. My PSA has remained undetectable at < 0.05. I was not on Stampede but I follow contributors who were/are such as Merrivale and Healey. It is good to read about these people who are now over 5 years since diagnosis and still enjoying life.
I have recently read some posts by people who have just been diagnosed and their despair is palpable and brings back my memories of my own initial shock following my 'incurable' diagnosis. Despite the published "5 year survival rates" I read that some manage more than that and, indeed, there are examples of people surviving 10 years or more with metastatic disease.
Most contributors to this Forum who have metastatic disease are less than 5 years post diagnosis and I wondered whether there were members who are over 5 years since diagnosis out there who might post about their experience - which may reassure newbies that they might have rather more time than they initially thought. As I say, I take heart from some of the Stampede guys even though I am not (yet) on either of the two 'wonder drugs' abi or ensue.