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treatment for pc that has spread yo the bones

User
Posted 22 Nov 2020 at 09:11

My husband was diagnosed with pc in 2018 after hormone treatment and 20 rounds of radiotherapy 

and regular PSA tests the last on in October 2020 which was 0.57 .After a ct scan on the 2nd of November that was done because I had some concerns about his health .

the Ct scan revealed a shadow onhis lung and multiple shadows in the bones .

he had a pet  scan Thursday the 19 th of November the lung consultant had asked for that he has a bone scan on the 27 th of November .

we see the lung consultant on the 26th for results of Pet scan .

since the pet scan hubby is having terrible pain in his ribs and neck and is generally not very well .

he also has an appointment with the urologist on the 4of December 

the pain he is in Iam not sure he will get there .

does any one think there will be any treatment 

Iam so worried 

 

 

 

 

 

User
Posted 22 Nov 2020 at 15:14

Hi Jean, has he been on hormone treatment ever since diagnosis or did it stop at some point after the radiotherapy?

If he isn't on hormone treatment at the minute, they will probably give him some tablets and then arrange for the hormone injections to start in 3 to 4 weeks. This will serve the cancer and should make him feel better.

If he has been on HT since 2018, they will probably add another hormone now to help block the cancer from being so active.

Either way, he should feel more comfortable as the new tumours are stopped in their tracks but it is important that someone reviews his pain meds and that he takes these regularly rather than trying to manage without or delay taking them.

Edited by member 22 Nov 2020 at 16:45  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 22 Nov 2020 at 15:54
Thankyou Lyneyre no he only ever had two hormone injections the last one during his radiotherapy.which finished in November 2018 .

The thing is his appointment with the urologist isnt till the 3rd of Dec and the way he has gone down this last couple of weeks I fear he met have passed the piont of no return .i am going to ring the urology nurse to morrow and see what she says .

Can a specialist nurse or a urologist consultant give out these hormone tablets .

User
Posted 22 Nov 2020 at 16:19
Just another question does a PET -CT scan give the same results as a bone scan he this done at Wigan last Thursday because he also has a shadow on his lung .
User
Posted 22 Nov 2020 at 18:02

No. A bone scan is when a radioactive tracer is injected and you go away for three or four hours, and the dye leaches into the bones to show if there is any cancerous spread there, which is picked up on an X-ray.

A PET-PSMA scan uses a different tracer, typically Choline (the cheapest), Gallium-68 (mid priced @ £2600) or rarely Lutetium (expensive @ £16,000 a pop) which picks out any pockets of cancerous cells in soft tissues that may have metastasised outside the prostate.

This is picked up on a scan (can’t remember if CT or MRI), someone else will say, so that radiotherapy can be targeted to a specific area of a metastatic tumour, rather than irradiating the whole are in a scattergun approach.

Best of luck.

Cheers, John.

Edited by member 22 Nov 2020 at 18:10  | Reason: Not specified

User
Posted 22 Nov 2020 at 18:47
Hi Jean, what was his original diagnosis, PSA, Gleason score and T factor?
User
Posted 22 Nov 2020 at 23:50

Jean,

I think you need to contact urology to get the bone scan expedited, saying he's deteriorating fast.

If that does show up extensive bone mets, they should be able to give him Degarelix injections pretty instantly, and this would hopefully give very quick relief. (It's a fast acting hormone therapy.)

User
Posted 23 Nov 2020 at 06:11

just to clarify one thing that John has said. Lutetium is not a diagnostic scan but really a treatment,one that replaces the Gallium with Lutetium. As you can see, it is very expensive so the 68 Gallium scan is done first as a prerequite to ensure sufficient PSMA is expressed and that the patient may benefit from Lutetium which is usually administered two or more times. There are other scans but the PSMA one is just about the best that is available on the NHS at present and not many centres have that.  It's a bit of an allrounder and it has been postulated that it could also serve the need for a bone scan but even though this is also a nuclear scan, it is more widely available than the PSMA one.

Edited by member 23 Nov 2020 at 06:18  | Reason: Not specified

Barry
User
Posted 23 Nov 2020 at 13:13

Hi just got Vics paper dork out .

date of letter 15june 2018 .

Psa 19.7 

new adenocarcinoa of the prostate  g,Eason 3+4  40 % on the left ,grade group 2.

mr scan shining organ co fined disease. No pelvic lymphadenopathy.

jean 

User
Posted 23 Nov 2020 at 16:53

Spoke to the specialist urolagy nurse today ,she then had a word with [doctors name removed by moderator] the consultant who said the Pet scan which did also look at the prostate was inconclusive they needed the bone scan ,which Vic will have on Friday the nurse did try to get it sooner but was unable to .[doctors name removed by moderator] is having a multidisciplinary meeting on Thursday Afternoon they will look at the scans again and the nurse will ring me Friday with thier conclusions ,because his PSA is so low 0.57 I think that is why they are thinking it is some thing different .

Vic does seem more himself today the pain in his neck is not as bad so hopefully he will get through the rest of the appointments .

thankyou Jean 

Edited by moderator 23 Nov 2020 at 19:01  | Reason: Doctors name mentioned

 
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