Hoping to tap in to the advice and experience of all who have been before me.
I was diagnosed with prostrate cancer in March 2020 just as the first COVID lockdown started with a Gleason score of 7 (3+4). After discussions with consultants and family I opted to go for the Radical Prostatectomy. Consultants strongly recommended it given my age (55) and fitness levels etc. Unfortunately the operation was cancelled at the time due to lockdown, but fortunately they got me in at the beginning of June 2020, removed my prostrate and I was given the good news in July 2020 that it had clear margins. Happy days!
I have had nerves spared, but it is not clear how many - to explain, prior to surgery, the consultant said he was confident of doing a unilateral spare. Then post surgery he informed me that he had spared the nerves on both sides as 'it looks different when you can get it on the table, rather than through an MRI scan'. However on my post op follow up with the andrology department, they informed me the records and operation notes recorded a unilateral spare, so we are not 100% sure what nerves I have left, but it seems I have at least one set!
I was initially started on 50mg Sildenafil, but this had little effect on obtaining an erection. On review in September 2020 after discussion with my andrology specialist, I was moved onto the daily 5mg Tadalafil and also put onto the Soma pump. I have used both religiously every day since being prescribed them, so over 3 months now.
The pump clearly gives me increased size and girth, but like many others, I struggle to have any feeling in my penis immediately after pumping. It does not give a really hard erection and the 'erection' even with the rings being used does not last long. That having been said, on maybe two/three occasions, with the help of the pump, my gf and I have managed to have penetrative sex. It was only in a certain position and if I'm being honest, whilst my gf says it satisfied her, we were both petrified of it falling out all the time, but at least we could laugh about it! So all in all it hasn't felt natural and without the pump, my penis does not get hard enough for any form of penetration. My gf says at times times I try too hard to satisfy her and need to be more patient. I do definitely get frustrated about it and have feelings of inadequacy.
So I'm now almost 6 months post op, incontinence completely under control, but this latest treatment for ED does not seem to be working how I would like it to as of yet. I have another andrology appointment in January. My gf and I have been discussing whether we should look at perhaps asking for the injection route, but would appreciate any advice from others who have been there before. Am I expecting too much too soon? Should I give this treatment longer or are the injections more likely to give a better result?
All advice and others' experience gratefully received.