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Surgery date

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User

Posted 18 Dec 2020 at 19:50

Just been given the date for my surgery and I must admit I am worried and thinking "have I made the right decision".

I know in my heart that I have and that the journey is about to become real.

Got physio on Monday 21st Dec and pre assessment on the 22nd.

Need to get my finger out and get organised. 😆

User

Posted 18 Dec 2020 at 22:17

My other half had his opthe beginning of June. He was, like you, nervous but he wanted the ' mothership' out asap.

The op went well, and apart from nausea on his first night home and delay in one of the wounds healing, the recovery went as planned. The main pain in the butt is the catheter and getting used to the bags but you do get into a routine with it. Nevertheless it's a happy day when it's taken out.

Don't do too much post op but keep yourself moving and increase activity slowly as your body dictates.Time goes so quickly it will recede into the past before you know it.

Good luck with it

User

Posted 19 Dec 2020 at 08:26

Hi Mark,

You didn't mention your diagnosis so I'm assuming your cancer is organ confined, if so, combined with age and fitness would make you a good candidate for surgery.

There's bound to be a little doubt about your decision, but hopefully it was made on the back of consultations with both oncologist and surgeon. So try to focus on the path ahead, and with help from your partner you will get through the days and weeks ahead.

Also, I would recommend starting pelvic floor exercises and if possible, up your fitness regime in preparation for the big day.

Good luck with everything.

Kev.

User

Posted 19 Dec 2020 at 16:42

If you click on my profile, ‘Bollinge’, you can read my contemporaneous notes from my surprisingly pain-free prostatectomy surgery two and a half years ago.

Best of luck with yours.

Cheers, John.

User

Posted 20 Dec 2020 at 18:17

Hi Mark

It will be six years in March since I had my surgery and I am still here. Do I regret having the operation ? not for a second.

Hope all goes well for you. Very best

Gary.

User

Posted 13 Jan 2021 at 08:21

Mark

Sounds a very good start on the water works, the slow flow may just be the joint settling down. Take it easy but stay active, listen to your body.

Hope your recovery goes well.

Thanks Chris

User

Posted 13 Jan 2021 at 11:42

Best wishes with your recovery.

User

Posted 13 Jan 2021 at 11:50

Mark,

Sounds like you are doing great.

I found it hard to sleep for the first 10 days or so. It all gets better

User

Posted 13 Jan 2021 at 12:50

Great update Mark. Take it easy and avoid lifting anything.

Hope you have a nice smooth recovery.

User

Posted 13 Jan 2021 at 13:14

Early days for you Mark. Remember you have had major surgery and listen to your body. It gets easier believe me.

Very best

Gary

User

Posted 27 Jan 2021 at 15:27

Glad you seem to be recovering well!

One thing I wasn't warned about but found a few weeks after surgery was, if I overdid the lifting or twisted myself awkwardly, I got sharp pains from my wounds and thought I'd torn something internally as that's what it felt like. Pronounced pain that occasionally would go on for as much as 1-2 days. However it looks like it was the results of nerve damage. So if you get it too once you're jumping around again.....don't over-worry!

User

Posted 16 Jun 2022 at 14:50

My 6 monthly psa tests had been ok up till March. The Urology nurse that phoned to give me the results of the last test said that a scan will be organised then the results of that will be discussed.

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User

Posted 18 Dec 2020 at 22:17

My other half had his opthe beginning of June. He was, like you, nervous but he wanted the ' mothership' out asap.

Don't do too much post op but keep yourself moving and increase activity slowly as your body dictates.Time goes so quickly it will recede into the past before you know it.

Good luck with it

User

Posted 19 Dec 2020 at 00:06

Thanks for that littlewren, my better half has been reassuring me that I made the right choice and all I can do is move forward after the surgery and look forward to the future.

User

Posted 19 Dec 2020 at 08:26

Hi Mark,

You didn't mention your diagnosis so I'm assuming your cancer is organ confined, if so, combined with age and fitness would make you a good candidate for surgery.

Also, I would recommend starting pelvic floor exercises and if possible, up your fitness regime in preparation for the big day.

Good luck with everything.

Kev.

User

Posted 19 Dec 2020 at 16:42

If you click on my profile, ‘Bollinge’, you can read my contemporaneous notes from my surprisingly pain-free prostatectomy surgery two and a half years ago.

Best of luck with yours.

Cheers, John.

User

Posted 20 Dec 2020 at 18:17

Hi Mark

It will be six years in March since I had my surgery and I am still here. Do I regret having the operation ? not for a second.

Hope all goes well for you. Very best

Gary.

User

Posted 20 Dec 2020 at 18:41

Hi Kev

It hasn't gone outside the prostate but it is right on the edge, I have a score of 4+4 with a psa level of 33.

I know I have made the right decision but just have feelings of trepidation, haven't been a patient in a hospital since I had my tonsils out as a nipper.

Thanks,

Mark

User

Posted 20 Dec 2020 at 18:46

Hi John,

Thanks for that, had a read through and makes feel better knowing that a Terminator will be removing mine too, so it will be hasta la vista to the cancer.

Thanks,

Mark

User

Posted 20 Dec 2020 at 18:48

Hi Gary,

Thanks for that.

Mark

User

Posted 05 Jan 2021 at 14:41

Just back from theatres, all looks well but it does seem that the cooncil did the manscaping while I was knocked out.

Getting used to the catheter being in, might get a wee bawbaw 😅

User

Posted 05 Jan 2021 at 17:48

Best wishes for a smooth recovery.

User

Posted 05 Jan 2021 at 18:18

Mark

Hope all goes well with the recovery , take it easy but keep mobile. Ask for some instilagel or hydrocaine to take home in case the Catheter makes the eye of penis sore. Drink plenty of water, don't get constipation and no straining to pass that first motion. Make sure the Catheter joints are tight nothing worse than being in your own urine. Snug but not tight underwear will keep the Catheter from moving round and rubbing on the eye of the penis. PJ bottoms will keep the night bag tube from getting snagged up, I attach the night bag tube to my ankle with a G strap.

The Catheter is your friend, it will save you getting up in the night for a few days.

Take care.

Thanks Chris

User

Posted 05 Jan 2021 at 19:01

Hi Mark

I had my surgery in July and apart from some post op vomiting all went well. I had to wear pads for a few months just for safety. I’m back in work now with no pads and dry at night. ED is my biggest worry as it is with most men after surgery but I’m trying to be patient. 🤞

One thing I would get is a special sock that you put your wee bag in it was a life saver. It’s like a tubigrip and I wore mine around my calf. It makes life with the bag very bearable and you don’t have the fuss of the straps all the time.

look for a site called ugofix I paid approx £15 for 4. You won’t regret ..

take care and stay safe mate

Carl.

User

Posted 05 Jan 2021 at 20:32

Originally Posted by: Online Community Member

Just back from theatres, all looks well but it does seem that the cooncil did the manscaping while I was knocked out.

I enjoyed having no belly-button fluff after surgery. So when the navel hairs regrew a few weeks later and the fluff came back, I decided to prune them. 😄

_____

Two cannibals named Ectomy and Prost, all alone on a Desert island.

Prost was the strongest, so Prost ate Ectomy.

User

Posted 06 Jan 2021 at 13:09

Hi Mark

I hated the catheter and found it so uncomfortable. It was such a relief when it was taken out. Take it easy and listen to your body as it is early days. for you.

Very best

Gary

User

Posted 06 Jan 2021 at 13:16

Good luck with the recovery.

Take it easy but worth walking every day and building things up gradually.

My tip: Stand the overnight catheter bag in a bucket. I didn't and one night didn't have the valve locked off and it leaked everywhere

User

Posted 13 Jan 2021 at 08:07

Surgery went ahead on Tuesday 5th, remember walking into the theatre, laying on the table and getting positioned, having a laugh with the staff, the cannulas getting inserted into the back of my hands, the arm supports being put in place then nothing....next I knew I was on the ward, felt fine and was able to eat something and even move about my room. Was visited by my Specialist nurse who told me the everything went well. 👍

The Wednesday was getting excruciating pain in my ribs, gut, shoulders and jaw due to the gas that was used to inflate my gut, catch 22 the pain relief blocks you up but you need to pass wind to purge the gasses from my system.

Thursday, feeling rough, moving about but no appetite, no bowel movements stomach feels bloated. Getting discharged today then was sick, still getting out. 👍

Girlfriend picked me up and nearly burst into tears, she says I look ghastly, don't feel great.

Home and relaxing, ended up being sick another 2 times, it is just bile building up and can't go anywhere as I still haven't moved my bowels.

Friday, feeling a bit better, everything bruised down there left side looks like it has been tattooed on, catheter is working will just getting a bit of bypass when I try and move my bowels, no luck so far, drinking plenty of water.

Saturday, stopped taking the co-codamol and just going to try paracetamol to take the edge off the pain to try and unblock my system.

Sunday, the lactulose has loosed things off, such a relief.

Tuesday 12th, catheter removed today. Bladder emptying ok, the exercises I was doing have paid off, only getting a bit of leakage when I laugh, sneeze, cough, stand. When I go to the toilet there is no pressure, the urine just empties like pouring water out a glass, started doing my floor exercises again to tighten things up.

Wednesday, first night without the catheter, a dry night with just a little bit of leaking that the pad took care of with no problem, went to the toilet and emptied my bladder, such a relief that it is working albeit not perfectly......yet.

Sorry this is such a long post, was going to do a day by day from the surgery to discharge but had other things on my mind 😅

Mark

User

Posted 13 Jan 2021 at 08:21

Mark

Sounds a very good start on the water works, the slow flow may just be the joint settling down. Take it easy but stay active, listen to your body.

Hope your recovery goes well.

Thanks Chris

User

Posted 13 Jan 2021 at 08:33

Hi Chris,

Thanks for that, I know that the water works will get stronger as time goes on as long I as I keep up with the exercises.

Getting some walks in but the discomfort is meaning I am not getting a great sleep so not got the energy I would like.

Mark

User

Posted 13 Jan 2021 at 10:03

Mark

Not sure the PFEs will affect the flow. Your plumbing system has been bashed about and needs a while to recover. I passed bits of scabs etc and debris for at least six weeks.

Thanks Chris

User

Posted 13 Jan 2021 at 10:32

Sounds like you’re making good progress. Early days still so take things easy.

Ido4

User

Posted 13 Jan 2021 at 10:43

Pity there is not a rad flush for that 😅

Mark

User

Posted 13 Jan 2021 at 11:42

Best wishes with your recovery.

User

Posted 13 Jan 2021 at 11:50

Mark,

Sounds like you are doing great.

I found it hard to sleep for the first 10 days or so. It all gets better

User

Posted 13 Jan 2021 at 12:10

Mike,

Yes the discomfort is ruining my sleep, know it will take a while for things to settle down.

Mark

User

Posted 13 Jan 2021 at 12:50

Great update Mark. Take it easy and avoid lifting anything.

Hope you have a nice smooth recovery.

User

Posted 13 Jan 2021 at 13:14

Early days for you Mark. Remember you have had major surgery and listen to your body. It gets easier believe me.

Very best

Gary

User

Posted 13 Jan 2021 at 14:10

Heaviest thing I am lifting Kev is a cuppa 😆

User

Posted 27 Jan 2021 at 15:27

Glad you seem to be recovering well!

User

Posted 27 Jan 2021 at 16:02

Yes I have been getting those pains every now and again especially when I lay on my side when trying to get to sleep. It just seem to be one particular wound that is giving me the problem but it goes away.

User

Posted 15 Jun 2022 at 19:31

Back again. After a year and a half of psa level being not detectable it has started to rise. 0.4 in March and 0.7 in June. Waiting for scan appointments. Here we go again 🙄

User

Posted 16 Jun 2022 at 14:50

My 6 monthly psa tests had been ok up till March. The Urology nurse that phoned to give me the results of the last test said that a scan will be organised then the results of that will be discussed.

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