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High PSA -> Active Surveillance

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User
Posted 21 Jan 2021 at 13:43

Hi, I've just been diagnosed with a Gleason score of 6 and Stage T1a. The consultant is recommending Active Surveillance. I suppose I should be mightily relieved but the fly in the ointment is a PSA of 17.5 (Oct 2020). The doc  assures me that there are guys walking around naturally with PSA's > 20 who will never go on to have PCa. Because of the biopsy I won't be able to have another PSA test for 4 months.

Are there any others on here is a similar situation and how do you cope with the added stress of knowing the PSA is high?

User
Posted 21 Jan 2021 at 15:29

I can't answer your question but over treatment used to be a problem.  You're asking Is yours under-treatment.   After a biopsy and an MRI there isn't much more to do.   Do you know how many pins the biopsy used and how many had bad cells?  

Your prostate seems large as well which might be why your psa is high.

There's often a worry between psa tests even when you've been treated.  You're in that position, although six months gap is quite a while at this stage I'd think.  Three months could be more normal but there must be a minimum period after your biopsy which was in January which makes 6 months gap seem reasonable, since your October biopsy.

It looks like you will have to hang on and establish a psa trend with 3 monthly tests from April.  Unless someone knows a case to have earlier psa test.   Regards Peter

 

User
Posted 21 Jan 2021 at 16:23
Assume your urine has been checked for UTI?
Barry
User
Posted 22 Jan 2021 at 01:16

A friend with G3+4=7 has been on AS for five years and is doing great.

He has annual consultations with his urologist, annual MRI’s and quarterly PSA tests.

I hope your AS is as successful and you carry on enjoying a normal life.

Cheers, John.

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User
Posted 21 Jan 2021 at 15:29

I can't answer your question but over treatment used to be a problem.  You're asking Is yours under-treatment.   After a biopsy and an MRI there isn't much more to do.   Do you know how many pins the biopsy used and how many had bad cells?  

Your prostate seems large as well which might be why your psa is high.

There's often a worry between psa tests even when you've been treated.  You're in that position, although six months gap is quite a while at this stage I'd think.  Three months could be more normal but there must be a minimum period after your biopsy which was in January which makes 6 months gap seem reasonable, since your October biopsy.

It looks like you will have to hang on and establish a psa trend with 3 monthly tests from April.  Unless someone knows a case to have earlier psa test.   Regards Peter

 

User
Posted 21 Jan 2021 at 16:23
Assume your urine has been checked for UTI?
Barry
User
Posted 21 Jan 2021 at 22:53

Originally Posted by: Online Community Member
Assume your urine has been checked for UTI?

Actually, no it wasn't. I didn't have any symptoms though...

User
Posted 21 Jan 2021 at 22:59

Originally Posted by: Online Community Member

 Do you know how many pins the biopsy used and how many had bad cells ?Regards Peter

I had a targeted TP Biopsy. 9 pins in left side, 6 pins in right. All targeted pins were negative. Of remaining random pins, one pin on left and right side had < 5% Gleason 3.

 

 

 

User
Posted 22 Jan 2021 at 01:16

A friend with G3+4=7 has been on AS for five years and is doing great.

He has annual consultations with his urologist, annual MRI’s and quarterly PSA tests.

I hope your AS is as successful and you carry on enjoying a normal life.

Cheers, John.

User
Posted 22 Jan 2021 at 14:09

Originally Posted by: Online Community Member

A friend with G3+4=7 has been on AS for five years and is doing great.

He has annual consultations with his urologist, annual MRI’s and quarterly PSA tests.

I hope your AS is as successful and you carry on enjoying a normal life.

Cheers, John.

Thank you so much John. That has cheered me up no end! All the very best to you.

BTW, where did you have your mpMRI?

Edited by member 22 Jan 2021 at 14:17  | Reason: Not specified

User
Posted 23 Jan 2021 at 01:17

Originally Posted by: Online Community Member

Thank you so much John. That has cheered me up no end! All the very best to you.

BTW, where did you have your mpMRI?


At my local billion pound (PFI financed) super-hospital in Coventry, which we call Walsgrave Hospital, but that was not grandiose enough, so it’s now called University Hospital Coventry and Warwickshire. 

They have a tie up with the ‘new’ medical school at Warwick University, which is also in Coventry and nowhere near Warwick. ‘Coventry’ was thought too low-brow to call the university, although we also now have a Coventry University (formerly Lanchester Polytechnic), together with about 30,000 students at each, pre-covid.

Cheers, John.

Edited by member 23 Jan 2021 at 01:20  | Reason: Not specified

User
Posted 23 Jan 2021 at 01:58

There is an Active Surveillance online support group, managed by Prostate Cancer UK.

 

 
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