Update. Have met with an oncologist and one of the two surgeons for my region:
option 1: robotic surgery. Consultant meeting: Gl.7(3+4) fairly good outlook. RHS could spare nerves, LHS 30% chance of damage. Risks included DVT, rectal injury, narrowing of new urethra joint, ED. Pelvic floor exercises could bring continence back to normal 3-6m. RT options beyond.
Commented that RT has 70-80% cure.
Surgeon 1 (meeting) has done 63 (‘18-‘19), Surgeon 2 has done 251 (‘17-‘19). Less activity during ‘20, obviously. These don't sound like ‘top of their game’ numbers to me. Found BAUS to be next to pointless - doesn’t report anything useful in terms of outcomes, unless I am doing something wrong?
option 2: brachy. Onco meeting: 50cc gland is probably ok but wont know until initial planning session. Side effects swelling, urination difficulty for 3m minimum, supported by Tams. 1/3rd men ED, some can be rectified. Success rate 85-90%, same as surgery. If unsuccessful HT option beyond but surgery too difficult. Commented that RP surgery leads to 20-30% needing RT.
Received some of my notes by post AFTER meetings:
MRI: PSAD 0.11. Bilateral inguinal hernia noted - first I’ve heard of it. 600ml bladder retention reported - sounds almost full!
BIO: 9 cores, max tumour length 14mm LHS (Gl. 3+4), 2.5mm RHS (only one core Gl.3+3)
I’ve kind of hit that (no doubt common) information overload point. Really losing focus and clarity and worrying about indecisiveness due to all the different info sources.
Why is there no single point if contact addressing your case and working through this with you?
( Was thinking that a database of cases, populated by patients with their profile characteristics, experienced effects, time periods, etc would be a really valuable resource to rationalise where you are against where they were, and how it went for them - rather than trying to interpret and mentally map each thread contributor. Would take a few years to grow but would be great... )