That’s a bummer..

Well I am joining the “PC Long haulers club”...☹️☹️☹️☹️

We went to see oncology consultant on Monday, and again discovered things I never wanted to know about my willy and friends..

I am booked for a shiny PET scan and after that IF the results are “ OK”, I will be on 50mg Bicalumide for three months with 3 monthly injections of Decapeptyl , following that 6 and 1/2 weeks of radio therapy of the prostate bed.

I also found myself thinking “How on earth can anything to associated with Prostate Cancer be considered as “OK”?”, but here I am about to be injected with something that sounds like it’s extracted from a dinosaur, and having my innards zapped with high dose radiation and thinking “Thank god at least I am getting treatment!”. And weirdly looking forward to it....

The consequences of an uncontrolled exploration of my lymph system by a stage 4 Prostate Cancer are not something I want to contemplate, I am truly sorry for all of you that are having to manage that.☹️

For me it’s only been about six months of this cr@p, and if I am really honest I knew 12 months ago something was going on and I ignored it; and here I am with a final diagnosis of a G9(4+5)...

Bugger

I Forgot to mention the “ Gift of 40 micro- enemas” to help things along, never seen such a regimented way of ensuring you have Sh1te before your treatment!

Edited by member 19 Mar 2021 at 09:14  | Reason: Not specified

After about 6 attempts of re-scheduling it due to national (?) manufacturing failures I was told; I finally had my PSMA PET scan today😀

Hopefully this will give me and the Oncology department some info about if my PC is anywhere it shouldn’t be...Er not that it should be anywhere at all....

My post OP PSA was a depressing 0.81 and when I phoned my local surgery after another test following the first Oncology visit for the result, I was told in no uncertain terms by the highly qualified “Receptionist-prostate-cancer-specialist-wannabe-doctor” that “It is very good” and nothing to worry about, it’s well below normal....”

I politely explained that it wasn’t very good at all and could she give my the latest result as that was the last one.., she then told me “3.5”, which was a shock.... I later found out that this was totally wrong this is the normal range sited on the form she was reading.

It has however risen to 1.0 .☹️

I suggest if you can, and your surgery supports it, register for the electronic patient access system. That way you can read all your historical records and consultants letters sent to and from your surgery, and get your latest test results. Not all the information is accurate though I noted. It will allow you to bypass the local “ Receptionist firewall” and see what they look at when you ring them....

So tomorrow I start my Bicalutamide 50mg HT, not looking forward to it, but I understand why I have to have it.

Any suggestions please as to the best time of day to take it?

Breakfast first thing, or leave it till nighttime?

Are there any benefits of dosing yourself up overnight Vis during the day?

3 months of this then Zapp!

On another note... someone I know had a PSA test after I spoke to them about it last Nov following my diagnosis; they have now had a Gleason(3+3) diagnosis.

Not sure how to feel about that, equally good and bad feelings about it...feel like I have screwed up their life too!

I so F’ing hate this thing!

Buzzy

Thanks,

I am due to start dinosaur extract injections in about a week or so (Decapeptyl); and hopefully will get some results from the scan shortly. I am taking the 50mg dose in the morning working on the assumption I can deal with any issues in daytime rather than at night?

Not good with chemistry bit, so unsure exactly what is going on with the drugs, apart from it is suppressing the testosterone in my system, to starve the remaining cells lurking within.

Buzzy