Andy, I am so sorry to read that you are still in pain. I was very lucky in that I experienced very little pain, except for some stinging in the urethra.
I certainly have no hesitation in recommending surgery as I had a good experience, even though I did need salvage RT.
From my time on this forum, your experience seems way out of step in relation to what many others have experienced in relation to pain. Leaking is another issue.
Please keep pestering the medics until they sort this for you. I wish you well.
Ulsterman