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Starting my journey

User
Posted 18 Mar 2021 at 20:14

Well here I am, diagnosed yesterday and new to all this. 51 years old had A PSA of 7.8. Gleason of 7 , given the option of surgery or Radiotherapy,  looking through some of the forums and thought  "why not join". Not quite understanding some the acronyms yet but I'm sure I'll get there the more I read. Currently have no idea which way I'll go , remove it or blast it. 

User
Posted 18 Mar 2021 at 22:54
Download the toolkit or phone the specialist nurses on the number at the top of the web page & ask them to send you a copy in the post. Read up on the treatments & make sure that you fully understand the implications of the different treatments - if you saw a urologist yesterday, ask to see an oncologist before you decide.

The men who cope best tend to be the ones who understood the potential side effects and were prepared just in case. The ones that struggle are the ones who either thought side effects wouldn't affect them (I am young, that probably only happens to old patients type thinking) or whose surgeon was over-confident and / or glossed over the negatives.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Mar 2021 at 23:29

Hi Trev, sorry you're here. As Lyn says learn about the cancer and treatments, and post any questions you have here. The doctors and medics are your ultimate port of call but they're are plenty of people on here who can tell you how the treatment has affected their lives sometimes good sometimes bad. 

Dave

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User
Posted 18 Mar 2021 at 22:54
Download the toolkit or phone the specialist nurses on the number at the top of the web page & ask them to send you a copy in the post. Read up on the treatments & make sure that you fully understand the implications of the different treatments - if you saw a urologist yesterday, ask to see an oncologist before you decide.

The men who cope best tend to be the ones who understood the potential side effects and were prepared just in case. The ones that struggle are the ones who either thought side effects wouldn't affect them (I am young, that probably only happens to old patients type thinking) or whose surgeon was over-confident and / or glossed over the negatives.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Mar 2021 at 23:29

Hi Trev, sorry you're here. As Lyn says learn about the cancer and treatments, and post any questions you have here. The doctors and medics are your ultimate port of call but they're are plenty of people on here who can tell you how the treatment has affected their lives sometimes good sometimes bad. 

Dave

User
Posted 09 Apr 2021 at 11:07

Hello Trev

Welcome but sorry your here, I'm 53 and was diagnosed in October, PSA @ 383 with a gleason of 9. Just had the radiotherapy and drugs. So far so good, back at work and all seems normal, as normal as it can be. Good luck.

 

User
Posted 09 Apr 2021 at 21:45

Hi    also just been diagnosed 

I have other things going on so prostate cancer has joined the list.   

My psa count is around 15 and Gleason scale 6 !     From other comments that seems out of kilt

I'm 52 so my team have decided to monitor with blood test ever 3 months

First time on this site so hope I get it right 

Edited by member 09 Apr 2021 at 21:46  | Reason: Not specified

User
Posted 09 Apr 2021 at 23:10
Why does it seem out of kilter? PSA doesn't usually have any correlation with Gleason score and doesn't always have any correlation with seriousness of the problem.

A man can have a PSA of 80 and no cancer, or a PSA of 3 and extensive bone spread. He can have a PSA of 15 and is just as likely to have a G5+5 as a G3+3.

It is all just part of a picture the medics put together to assess the potential risk for each individual patient. It seems that in your case, they have found only a small amount of low grade cancer so want to monitor your PSA for a while before dragging you into life changing treatment.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Apr 2021 at 19:36

very good

 
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