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Robotic Prostatectomy 23rd March

User
Posted 05 Apr 2021 at 13:26

My husband underwent a Robotic Prostatectomy coming up on 2 weeks ago. The post operative care on his release from the hospital was a disgrace. Virtually no info at all. He was referred to an out of area hospital as unfortunately his local hospital is not yet using the robot. The care, support & understanding from our local hospital who did the biopsies, scans etc has been amazing. The Urology team have been exceptional. Not so the hospital he was referred to for his operation. 


No education, no support from Urology nurses at this hospital. Any contact pre op was instigated always by us despite me informing them that when his op was delayed due to Covid how devastated he was. Still nothing. The attitude seems very much that the wife is superfluous. This was from the first pre op consult when the surgeon treated me dismissively. On op day obviously I could not be with him. My husband was missing for nearly six & a half hours & I had no idea what was going on with him. I was begging for information & the response from the ward was '' if anything had happened you would have known about it by now ''


I was a registered nurse for 34 years & the disgust I feel for this hospital & its staff are excessive. I had to seriously draw on my own knowledge & basically do this hospital's staff job for them. 


First post op day my husband's wishes were argued with in that when the doctor went to see him, my husband said he was ringing me so I could hear the conversation. Three times the doctor said it was not necessary & argued with my husband, a man who was less than 24 hours from the op, highly medicated & all over the place. 


On discharge no contact telephone number given if he needed advice. He was not shown how to give the blood thinning injections. Again I was trained how to do these fortunately. No date for removal of catheter, I basically had to fight over the telephone with one of the nurses to get him a date. Nothing given to help bowels. GP was horrified & immediately prescribed him a laxative. He was given Morphine liquid DESPITE the fact it seriously dropped his BP post operatively. I knew he should not have been given this because of the effects & again GP prescribed him something else.  A week after being home he passed a lot of blood into catheter. I was very concerned as it was excessive & was concerned about the blood thinner he has daily. I rang this hospital & the operator had no idea who I should speak with & told me to call 111. I rang for an ambulance . The para medics were fantastic & said he needed assessment & took him to our local hospital. The care & attention was amazing from them. They immediately called the on call Urology doctor who came to my husband, thoroughly checked him with bloods, ecg & ultrasound of his bladder & gave him full explanations of what was happening & why. 


The sparse info my husband received is appalling. Had I not been who I was & was not medically trained it would have been frightening. How others cope who have no medical background worries me. No advice given or any Instagel for soreness around catheter. Again I organised that. 


To be blunt I would not let this hospital look at my dog now & thankful it is not our local one. The sooner my husband is transferred back to his local Urology team cannot come quick enough. I do not dispute the surgeons skill. He is supposed to be one of the best in the UK. However very badly let down almost to a point of neglect by where he works.


My husband is recovering ok. Very tired & drained & sleeps a lot. . Op sites all healed well & little discomfort & regained his appetite. Instagel gives him a lot of relief.


 

Edited by member 05 Apr 2021 at 14:42  | Reason: Spelling

User
Posted 05 Apr 2021 at 14:12
I’m so sorry your husband’s experience has been like you describe.
Hospitals do vary a lot, I was given instructions on catheter care but no one ever mentioned bypassing or instagel. I did get told when I would return for a check on whether my catheter was ready to be removed.
I wasn’t given blood thinners and developed soreness which resulted in a visit to hospital for a blood thinning injection, just in case. I was given a specialist nurse phone number too.
I hope your husband recovers well under his local urology team and GP.
If that is your real name in your profile it is recommended to change it just in case of issues.
Take care and I hope others come along to post too.

Ido4

User
Posted 05 Apr 2021 at 14:44

Thank you. He was also told District Nurse was being arranged to contact him within 2-3 days following discharge. Was this done? No! No organisation at all. Very very bad. On discharge sheet incorrect telephone number & incorrect GP. So if a report has gone to the wrong GP regarding my husband they are in breach of confidentiality. 

Edited by member 05 Apr 2021 at 14:46  | Reason: Not specified

User
Posted 05 Apr 2021 at 16:42

A useful summary of why men should think carefully before asking for a transfer to an out-of-area hospital for treatment - clarify who is going to pick up the after-care. I know of members here who fell between the cracks because the out-of-area hospital considered that their responsibility was only to do the op and the hospital in-area is assumed to be responsible for catheter removal, etc. 


Involvement of district nurses varies from area to area; perhaps the out-of-area hospital was assuming (incorrectly) that it would be available where you live. Where we live, district nurses will only pick up patients that have had their op in the local hospital under the NHS - no out-of-town or private patients. 


I guess even the supposed 'top surgeons' can have bad days and although we have many members who have been very pleased that they were able to go with one of the UK finest, we have also had men here who felt that their aftercare was absolutely dreadful, particularly when they were left with permanent side effects or the op was not successful. It is inconvenient for their published success data and marketing machines if they have a poor outcome.

Edited by member 05 Apr 2021 at 16:45  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard
User
Posted 13 Apr 2021 at 21:45

Hi, so sorry for what u went thru after ur husbands op. Unfortunately ours was a similar story.  My husband had his surgery 26th Feb.so we r 6wks post op.now. Our discharge was also pretty bad.


I had had surgery myself -a hernia repair 2.5weeks before my husbands and although we had hoped his was going to be wk5/6 of my recovery it wasn't. Anyway, he came out the day after.  I had little understanding of catheter care-they'd issued only 5 single use nite bags and his discharge notes said 5/3/21 his catheter would be removed..6nite bags needed. Discharge notes also told me to ring GP to book clip/staple removal for 29thMarch-2nd April(4wks after surgery!). I dutifully booked this.


By Weds, with only 1 nite bag left I rang my GP to say where do I get bags? They told me to ring District Nurse-we didn't have 1 and hadn't been referred to that team. So had to insist&beg GP to please sort out nite bags-eventually a prescription was written&got nite bags. On the same day I also rang Urology Specialist team who couldn't apologise enough for the stress we'd been thru as husband was not down for removal on Friday and he certainly should have clips put before 4wks!!! So both appmts (catheter &clip removal)then got agreed/rearranged for the following Tues.9th March(10days after op).


We were not told anything about a gel to ease the catheter-that was awful&v.little sleep for either of us for that 1st week was hell! Especially as I was recovering too.


However, we got thru it and we r getting results&surgeon consultation appmt is the day after tomorrow.  Praying it is all over now.

 
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