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PSA blood test intervals now less often

User
Posted 17 Apr 2021 at 14:42

Hi all,

I posted on my original long thread the latest PSA for Mr MAS being undetectable and we are of course very happy.

Please see bio for whole story (diagnosed July 2019 with advanced PCa, Gleason 8, PSA 287, with spread to lymph nodes including para aorta).

Since RT a year ago he has had 3 monthly PSA tests but has now been moved to 6 monthly.

A fellow forum member with a similarish diagnosis diagnosed a year earlier still has 3 monthly tests.

I feel apprehensive about the move to 6 monthly because during the diagnosis process his PSA rose from 198 to 287 within 5 weeks so I have visions of the PSA starting to rise then going wild before we get another test in 6 months.

Just wondered about others experience?

Edited by member 22 Apr 2021 at 06:58  | Reason: Clarification

Mrs MAS

User
Posted 17 Apr 2021 at 19:39
Who changed the regimen?
User
Posted 17 Apr 2021 at 19:45

The clinical nurse specialist who often takes the clinic on behalf of the oncologist. 

Mrs MAS

User
Posted 17 Apr 2021 at 20:24
Your concern is completely understandable. My GP is happy for me to ask for a PSA test any time I want one. It would be worth asking your GP for the 3-monthly tests you'll be missing from the hospital.

Best wishes,

Chris

User
Posted 17 Apr 2021 at 21:00

I have recurrence after salvage RT, I have regular appointments with my oncology nurse and she was quite happy to do what suited me.

I think the NICE guidance did change some time ago and the periods got stretched out but it is guidance.

The guidelines also say the follow up testing should be discussed with the patient, that doesn't necessarily mean they will follow your wishes.

 

Thanks Chris

User
Posted 17 Apr 2021 at 21:48
GP’s are normally quite amenable. Push the stress point of view. Good luck

If life gives you lemons , then make lemonade

User
Posted 19 Apr 2021 at 09:54

Thanks gents. 

Mrs MAS

 
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