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Very early days, but is this a good sign?

User
Posted 24 Apr 2021 at 14:40

So I had a radical prostatectomy four days ago. My tumor was T3a on one side so I had one nerve bundle removed. I'm 45, fit and active, had good erections before surgery. I have been given 20mg tadalafil to take twice a week from the off, first on Wednesday and then one today. So I've just been sat on the couch, having a thought to myself and I got what I would say was a 50% erection, not intended, just happened. Anyone had similar experiences so early? I'm not sure whether to take it as a good sign or if it's just some random firing of the nerves? 

User
Posted 25 Apr 2021 at 07:23
It is quite early indeed, but it is very encouraging. The sooner it restart, the better it will be afterwards. Me too radical prostatectomy but they saved my nerves on both sides. My erections started again gradually just after removing the catheter, I did not need any assistance but only tried cialis sometimes but I did not need to. I masturbated a lot at the beginning being careful not to reach orgasm for the first 6 weeks and that helped me a lot I think.
User
Posted 25 Apr 2021 at 10:49
Ideally, you should try to avoid having an erection while the catheter is still in place. Once the catheter is gone, there is no particular reason to stop short of orgasm although you may find it intensely painful to begin with.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 26 Apr 2021 at 20:19

Originally Posted by: Online Community Member
Anyone had similar experiences so early? I'm not sure whether to take it as a good sign or if it's just some random firing of the nerves? 

I had some nocturnal stirrings a few nights after surgery. It was actually very uncomfortable (woke me up, painfully) in the short-term and at the same time very comforting for the longer term.

If you're having "daytime thoughts", get thee to a cold shower. And while you're there, make sure your catheter is really clean. πŸ˜‚

_____

Two cannibals named Ectomy and Prost, all alone on a Desert island.

Prost was the strongest, so Prost ate Ectomy.

User
Posted 26 Apr 2021 at 20:49
I think that is great news and a great start. It can be a long haul but time passes more quickly than you think. As soon as you can start to use a pump to make up for non-full erections. This keeps everything elastic. And maybe cut the tablets up and go for 5mg daily. In most cases the more you put into erectile recovery the better the outcome. I’m near perfect now 6 years on but have lost quite a bit of length 2” but probably more girth. But it took around 2 1/2 yrs to get to that stage. You can do it !!

If life gives you lemons , then make lemonade

User
Posted 29 Apr 2021 at 13:43

Gareth.

I was supposedly non nerve sparing and although I get some movement I never got full unaided tumescence. I had uretheral catheters on around 12 separate occasions. When fitted with larger sizes catheters it did cause some semi erections.As long as the erecting penis can slide over the catheter you should not be an issue. A bit of lube or instilagel would have helped.

Thanks Chris

User
Posted 08 May 2021 at 07:02

Originally Posted by: Online Community Member

Hi Pierre. Thanks for that. It happend again last night, I'm surprised to say the least. 

Can I ask, why did you not progress to orgasm? Is there a reason for this?

I just saw your answer... For orgasms it was my surgeon's recommendation until everything was healed.  I couldn't wait after the wait to get back to orgasms and it was quite painful at first, especially during muscle spasms

 

User
Posted 08 May 2021 at 18:20

I think it's normal after major surgery and after all there are strong muscle contractions.  At the beginning it also comes with the fact that the semen no longer squirts and it's bizarre.  After a while all this pain passed and it was nice again

User
Posted 10 May 2021 at 06:03

Indeed I hope that it will go as well as me at 2 years of your surgery. Thank you for telling me about your experiences and indeed it would be very interesting to know how it goes for others. In my case, the loss of ejaculation is still something big, a function of our male body that will not return and the modification of sensations...

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User
Posted 25 Apr 2021 at 07:23
It is quite early indeed, but it is very encouraging. The sooner it restart, the better it will be afterwards. Me too radical prostatectomy but they saved my nerves on both sides. My erections started again gradually just after removing the catheter, I did not need any assistance but only tried cialis sometimes but I did not need to. I masturbated a lot at the beginning being careful not to reach orgasm for the first 6 weeks and that helped me a lot I think.
User
Posted 25 Apr 2021 at 07:35

Hi Pierre. Thanks for that. It happend again last night, I'm surprised to say the least. 

Can I ask, why did you not progress to orgasm? Is there a reason for this?

User
Posted 25 Apr 2021 at 10:49
Ideally, you should try to avoid having an erection while the catheter is still in place. Once the catheter is gone, there is no particular reason to stop short of orgasm although you may find it intensely painful to begin with.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Apr 2021 at 23:10

Thanks Lyn. Painful orgasms were actually one of the symptoms that got me to the docs in the first place. I'm not really trying to have erections they just happened as a thought or two popped into my head, typical man I suppose. I've been a little taken aback if I'm honest. 

I'd like to thank you as you're here, I've read lots of the threads on this site as I've been coming to terms with what the road ahead will be. Active members like you are a real help😁. 

User
Posted 26 Apr 2021 at 20:19

Originally Posted by: Online Community Member
Anyone had similar experiences so early? I'm not sure whether to take it as a good sign or if it's just some random firing of the nerves? 

I had some nocturnal stirrings a few nights after surgery. It was actually very uncomfortable (woke me up, painfully) in the short-term and at the same time very comforting for the longer term.

If you're having "daytime thoughts", get thee to a cold shower. And while you're there, make sure your catheter is really clean. πŸ˜‚

_____

Two cannibals named Ectomy and Prost, all alone on a Desert island.

Prost was the strongest, so Prost ate Ectomy.

User
Posted 26 Apr 2021 at 20:49
I think that is great news and a great start. It can be a long haul but time passes more quickly than you think. As soon as you can start to use a pump to make up for non-full erections. This keeps everything elastic. And maybe cut the tablets up and go for 5mg daily. In most cases the more you put into erectile recovery the better the outcome. I’m near perfect now 6 years on but have lost quite a bit of length 2” but probably more girth. But it took around 2 1/2 yrs to get to that stage. You can do it !!

If life gives you lemons , then make lemonade

User
Posted 29 Apr 2021 at 11:41

Thanks guys. I've woke up this morning to a full erection, it was blooming painful though. Yesterday was a tadalafil day, so I'm guessing this has brought this on. I was told in the hospital that this very early treatment would not cause this. Catheter is coming out tomorrow, im going to be proactive from the off. I've asked my GP for a prescription pump, he's getting back to me, but if not I'll just put my hand in my pocket. I have been advised that early use of the pump will minimise the shrinkage effects of the surgery, I've seen reasearch that backs this up. 

User
Posted 29 Apr 2021 at 13:43

Gareth.

I was supposedly non nerve sparing and although I get some movement I never got full unaided tumescence. I had uretheral catheters on around 12 separate occasions. When fitted with larger sizes catheters it did cause some semi erections.As long as the erecting penis can slide over the catheter you should not be an issue. A bit of lube or instilagel would have helped.

Thanks Chris

User
Posted 01 May 2021 at 13:50

Gareth, 

I was in a similar state to you in early days after surgery. Same stage 3a as you too. Also started getting some swelling even before catheter was out, and within about a month managed to have penetrative sex and at least one orgasm during the sex. 

Sad to say, about 6 weeks after surgery, those erections faded to zero. Not saying this will happen to you! I know others who went literally from strength to strength right after surgery. But in my case it has taken to month 14 to get back to where I was in Month 1, and I am not alone in this experience of erections fading a month or two post surgery. 

Not complaining because I can definitely see signs of improvement, can sometimes get fully hard with no mechanical aids, and confident it will still get better than this. I have also been using mix of Cialis (5 mg daily) and Vacurect pump (at least 5 times a week) plus targeted pelvic floor physiotherapy.

Warm regards and best wishes

Mish

User
Posted 08 May 2021 at 07:02

Originally Posted by: Online Community Member

Hi Pierre. Thanks for that. It happend again last night, I'm surprised to say the least. 

Can I ask, why did you not progress to orgasm? Is there a reason for this?

I just saw your answer... For orgasms it was my surgeon's recommendation until everything was healed.  I couldn't wait after the wait to get back to orgasms and it was quite painful at first, especially during muscle spasms

 

User
Posted 08 May 2021 at 09:55

Pierre I also felt that aching kind of pain during my first few orgasms after surgery

User
Posted 08 May 2021 at 18:20

I think it's normal after major surgery and after all there are strong muscle contractions.  At the beginning it also comes with the fact that the semen no longer squirts and it's bizarre.  After a while all this pain passed and it was nice again

User
Posted 08 May 2021 at 18:38

Yes! Isn't it wonderful to have one's old friend returning! I am now 15 months post RP and celebrating first times to be back to full hardness and penetrative sex - sometimes without any chemical or mechanical aids, for the first time in over a year. And orgasms are just as good as they were pre-surgery

User
Posted 09 May 2021 at 06:57

Ah yes indeed it's so wonderful that everything works even after such a big surgery on our genitals.  Me it's been over 2 years and I have my total hardness without assistance too, I can't believe it.  For my orgasms it's very good and weird at the beginning as I wrote previously.  I still miss the semen, for the visual and the sensations when it comes out.  My orgasm is a lot less explosive but still very pleasant and clean

User
Posted 09 May 2021 at 08:23

So glad to hear your positive report from 2 years out! I want to be there by the time I get to two years. 

And about orgasms - I found during the darkest period of total erectile dysfunction from month 4 to 8, that some of my orgasms were particularly intense. Maybe this is because they were so rare. Maybe it is because it took exquisite attention to coax them forth. I wonder what other men's experiences are? 

User
Posted 10 May 2021 at 06:03

Indeed I hope that it will go as well as me at 2 years of your surgery. Thank you for telling me about your experiences and indeed it would be very interesting to know how it goes for others. In my case, the loss of ejaculation is still something big, a function of our male body that will not return and the modification of sensations...

User
Posted 10 May 2021 at 14:19

Pierre and Gareth, so glad to be hearing the voices of younger men in this group. If I have understood correctly you both had RP in your 40s and I love the way you stand up for the importance of healthy sex lives! How are you getting on Gareth? I find most doctors treat our sexual function as an on/off thing when actually the experience is generally a gradual, stop-start, bumpy path towards the new normal.

In response to Pierre's latest post about missing ejaculate - yes, and I am still grateful to have gotten rid of cancer and this seems a relatively small price to pay. You are right about it being weird not ejaculating and I miss that visible and tactile expression of my climax. Another aspect is that my genitals have smelt different since there were no more sexual fluids - wondering if others noticed this? 

The good news for me is that at 15 months after RARP, I am sometimes able to get fully hard without any chemical or mechanical aids, although I am still pumping regularly to build up resilience. 

And on the fluids - I am beginning to produce small amounts of sexual fluid again. I am pretty sure it is pre-cum, in other words produced by Cowper's glands which connect with the urethra below the part that was cut out. It definitely helps with the "dry" missing feeling @Pierre71 mentions. And it shifts the smell into more of a familiar sexual smell rather than the urine smell that dominated for the last year.

How about other men - any sign of precum fluids after surgery?

User
Posted 11 May 2021 at 05:54

Originally Posted by: Online Community Member

Pierre and Gareth, so glad to be hearing the voices of younger men in this group. If I have understood correctly you both had RP in your 40s and I love the way you stand up for the importance of healthy sex lives! How are you getting on Gareth? I find most doctors treat our sexual function as an on/off thing when actually the experience is generally a gradual, stop-start, bumpy path towards the new normal.

In response to Pierre's latest post about missing ejaculate - yes, and I am still grateful to have gotten rid of cancer and this seems a relatively small price to pay. You are right about it being weird not ejaculating and I miss that visible and tactile expression of my climax. Another aspect is that my genitals have smelt different since there were no more sexual fluids - wondering if others noticed this? 

The good news for me is that at 15 months after RARP, I am sometimes able to get fully hard without any chemical or mechanical aids, although I am still pumping regularly to build up resilience. 

And on the fluids - I am beginning to produce small amounts of sexual fluid again. I am pretty sure it is pre-cum, in other words produced by Cowper's glands which connect with the urethra below the part that was cut out. It definitely helps with the "dry" missing feeling @Pierre71 mentions. And it shifts the smell into more of a familiar sexual smell rather than the urine smell that dominated for the last year.

How about other men - any sign of precum fluids after surgery?

Indeed I also noticed that the smell of my penis has changed since my prostatectomy. Even though I was cleaning myself really well, I noticed that my penis smelled like semen, especially if I was without ejaculating for a long time and it all disappeared... I noticed the same as you lol. I believe it is due to the fact that the prostate always lets out a little fluid without realizing it and there everything is removed.

To answer your question about the precum, I produce it and especially when my erection is at its maximum before orgasm (like before surgery). At least there is what we keep but at the time of orgasm I don't have any coming out at all, it's completely dry... just a little that still drains when my erection subsides at the end .

By the way I am able to read your message in private but not able to answer it because I do not have enough experience here I believe, they do not allow me. At worst, write me your email in private

 
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