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Any advice/thoughts

User
Posted 15 May 2021 at 11:14

Originally Posted by: Online Community Member
It isn't "the NHS" that doesn't bother, it is that your GP didn't request it


Whilst trying to get to the bottom of the IT problem I mentioned earlier. I asked the GP to check which one he ordered, he said there is only one box to tick on the form and it says PSA. I'm sure different CCGs may use different forms, but that is how it works where I live. 

Dave

User
Posted 15 May 2021 at 11:28
My blood tests only report total PSA. As Dave says, there's only the one "PSA" box on the blood form!

Chris
User
Posted 15 May 2021 at 15:05

I have studied this disease intensively on a daily basis since my diagnosis three and a half years ago, and the first mention I have heard of ‘free PSA’ is today. So no wonder GPs, who in my experience have limited knowledge of what they call PCa, have never heard of it either!


Free PSA tests are what you get from your GP! Don’t waste your time and money on any more postal thumb-prick tests.


You will have to wait ten days until your telephone conversation with the Consultant, and bear in mind Covid did not really impact on the urology department. My own surgeon had ops up to 80% of the pre Covid level at the height of the pandemic.


If they think there is any suspicion of PCa, look forward to loads more tests, scans and more waiting, so expect several months before you get a definite diagnosis and treatment plan. That should not be a problem as most prostate cancers are very slow growing.


Best of luck.


Cheers, John.

Edited by member 16 May 2021 at 04:16  | Reason: Not specified

User
Posted 25 May 2021 at 16:15

Small update. Spoke with urologist on phone today. Very helpful and I’ve got MRI of the prostate tomorrow. What does the MRI actually show and any idea how long results normally take? 

User
Posted 25 May 2021 at 16:28

In my case the MRI scan showed that  I have a 15 mm lesion on my 55 ml prostate. So, showed that I have a lesion (which is likely to be cancerous) and the size of my prostate- which is medium to large in size. My MRI scan at Addenbrookes was on 21/04 and I was phoned with the outcome of the MRI on 30/04. The result of the MRI  has led me to being booked in for a TP Biopsy on 04/06. 


 


Ivan

User
Posted 25 May 2021 at 16:33

Hi Ivan,


Really appreciate your reply. Did you have any injection or have to drink anything at all? 
Thanks


John

User
Posted 25 May 2021 at 16:42

They did stick an intravenous drip in my arm which put in fluids of some sort or another, but I did not have to drink anything before going into the scanner. If you have not had an MRI scan before it is a strange experience as the space inside is very enclosed ( if you are more than 25 stone I was told that Addenbrookes use the Horse MRI scanner in Newmarket) and it is noisy (they put headphones on you to reduce the decibels). You spend around 20/25 minutes in the scanner.

User
Posted 25 May 2021 at 16:51

Thanks again Ivan.


all understood. 
Good luck with your biopsy in June.


John. 

 
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