Hi folks, I’ve been reading so many of your experiences and like most I am struggling to make a decision on treatment. I am extremely grateful for this forum and hope it will help me reach a conclusion! My father was treated for PCa at 67 (he’s 82 this week) so I asked for a PSA test whilst at the GP for other blood tests. No symptoms other than getting up once most nights for a pee, but I enjoy a pint or two of an evening!
I’m 52 and was diagnosed 6 weeks ago with a PSA of 3.96 leading to an MRI, which showed a dark area with my prostate. I was given the choice of AS or biopsy, chose biopsy which later showed T2c, N0 Mx and 14 out of 18 samples being cancerous, Gleason 3+4. Cancer appears to be contained within the prostate and I have been given the choice of EBRT (20 fractions), BT or RP. I’ve also been offered the PACE 3 trial. Only thing is that I have a Carotid Artery Dissection, which is a tear in one of the two main arteries in my neck, following headache and very slight stroke symptoms - it wasn’t a stroke thankfully but it was this that got me to the GP in the first place. It ‘should’ heal by itself in six months. Needless to say surgeons won’t touch me for RP until it has healed (which hopefully is only six months but could be longer).
In the meantime I was straight away put on Bicalutamide 150mg daily, with twice weekly Tamoxifen 20mg to hopefully prevent beast cancer. However after meeting with my oncologist for the first time I was taken off both of these, as Tamoxifen has a slight risk of clotting (I am on a platelet drug to help my artery heal). So I had a Zoldex implant injection and have another one tomorrow, with monthly injections for a total of six months. This is to keep the cancer within the prostate whilst I make my treatment decision. Reading other HT experiences it seems most injections are every three months, but for a couple of years. I asked my PCa nurse why mine seems quite intensive and she replied - “As your disease is Gleason 3+4=7 it is not high risk. This means that you will only need to be on hormones for 6 months. It is better to have the monthly injection rather than the 3 monthly when you are on them for 6 months rather than 2-3 years as it will allow your bodies normal hormone levels to return quicker once the injections stop. We would not expect to have to continue the hormones for longer than 6 months on any of the treatments.”
So has anyone had the same HT treatment as this, and was it ok? I’ve never suffered from moobs despite not being particularly thin but I’m definitely getting a warm sensation in my breast tissue from time to time and the occasional hot flush. Just wondered what else I could look forward to after a further five injections! Also I’m seeing the oncologist again on Thursday, and I still haven’t made a decision on treatment. I really am struggling to decide, hoping the HT contains things for the time being.
Sorry for the long winded post!