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Trus biopsy and results

User
Posted 21 May 2021 at 22:39

Hi there.

I had a Mri scan and they found something on my prostate.

I've recently had a Trus Biopsy 10 days ago which wasn't very nice .

I've now got a Telephone appointment on Monday for the test results.

Is this normal ?

What to expect?

what happens next if its bad news. or if it isn't cancer what next because I can't carry on like this .

I've also got prostatitis symptoms.

Kind regards 

Ian

User
Posted 22 May 2021 at 00:57
Hi Ian,

Sometimes there can be a delay in communicating results because these may be referred to a Multi Disciplinary Team (MDT) and how quickly your case can be considered will depend on their case load I would not read too much into the fact that you were called in 10 days or by telephone as with Covid still in mind they may wish to avoid you unnecessarily attending hospital. They may also discuss treatment options with you if you have PCa or may defer this if a bone scan is called for as this can affect treatment options. So there is no point speculating and your appointment is very soon now. If you don't have PCa they will hopefully successfully treat what is giving cause for concern.

Do come back to us when you have more information because we are also in the dark with the scant detail we have so far.

Barry
User
Posted 22 May 2021 at 07:29

Hi Barry.

 

Yes I will let you know how it goes on Monday  sir.

Regards 

Ian.

User
Posted 22 May 2021 at 13:33
The waiting game for full diagnosis is the absolute pits. It's possibly the worst part because as soon as you know what's what, you get all proactive.

We had the results given to us and were then sent for a bone scan. If you have a fairly low psa they may not though. In our area they do it as part of the process whether they are expecting anything or not but I'm not sure that's the case everywhere.

It's going to be a tense weekend but try and keep busy. Let us know how you get on. Fingers crossed for you.

LW

User
Posted 23 May 2021 at 14:16

What to expect?  I expected to see a doctor with the biopsy result but it turned out to be a nurse and I was called 2hrs before the appointment.   

On learning at reception it was a nurse I thought it might be good news but she turned out to be a Macmillan Nurse which led me to think it could be positive. 

Although it also turned out that some hospitals have a lot of Macmillan nurses who are also given the job title 'specialist nurse urology', in that department.

After the appointment I was called in and had an MRI and bone scan within 4 days.   The Macmillan Nurse told me the results over the phone within days, I rang her, and she made a guess at likely treatment offers.   If it had been a doctor I doubt I'd have ever spoken to them before the consultant meeting 3 weeks later.

If it's positive ask for a contact number.  With a Macmillan Nurse you get a phone and email contact.

Basically there are only a few courses of action so if you get a consultant appointment it's better to be aware of what they are and have a plan of your own preferences.   Although obviously it will need flexibility depending on what they tell you.

All the best, Peter

User
Posted 23 May 2021 at 15:23
Thank-you Peter
 
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