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Pain in prostate area

User
Posted 11 Jun 2021 at 07:50

I haven’t posted for a long time but have kept up to date with others in the forum.

for those who are unfamiliar to Gary’s profile he was diagnosed 5 1/2 years ago ,Gleason 23 and PSA 4+5 ,spread to lymph nodes in the para aorta area .after 6 rounds of chemo and 5 years being in arm j of the stampede trial his PSA has remained undetectable. He is now getting pains in the prostate area for the first time ,his last blood test 3 weeks ago was still undetectable.

Can things progress even with undetectable readings ?  Am I worrying before I should .

thanks 

Debby 

User
Posted 11 Jun 2021 at 14:16
It can but highly unlikely especially as your hubby had a raised PSA to start with.

As he still has a prostate I think pain is more likely due to infection so best get it looked at anyway.

User
Posted 12 Jun 2021 at 20:17
Hi Paul ,yes Gary is still on both abi and Enzo .He’s doing really well ,still working just at a slower pace .

Here’s hoping it’s only a minor blip ,spoke to oncology and they advised him to go to Drs ! That’s if you can get an appointment.

I’m glad you’re still going strong .

Best wishes

Debby

User
Posted 28 Jun 2021 at 17:33
Quick update ,Gary managed to see a doctor who confirmed blood in wee .He was given 10 days of antibiotics. Urine test yesterday and all is clear .

Can’t believe in 5 1/2 years this is the first time he’s had any other problems.

Here’s hoping that it continues .

Debby

User
Posted 28 Jun 2021 at 17:36

Your posts are such a gift Debbie, thank you. Hope the anti 'Bs' do the job. 

 

Leila 

User
Posted 29 Jun 2021 at 18:03

That’s good it’s nothing too serious. 5.5 years after the diagnosis the PSA results are great. 

Ido4

User
Posted 01 Jul 2021 at 08:38
Hi Debbie

Just to say I am so glad this did turn out to be a blip and not what you feared.

I don't post much now we have settled into the news - my husbands diagnosis quite similar to yours with spread to lymph nodes including para aorta.

Yours was one of the first posts I read almost 2 years ago and it gave me hope, it still does.

Best wishes to you both.

Mrs MAS

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User
Posted 11 Jun 2021 at 14:16
It can but highly unlikely especially as your hubby had a raised PSA to start with.

As he still has a prostate I think pain is more likely due to infection so best get it looked at anyway.

User
Posted 11 Jun 2021 at 22:21
Hi Debby

I hope the prostate pain turns out to be nothing serious.

Its good to hear that Gary is still on undetectable and bloods are good.

My onco always says that if the bloods are good then nothing serious is happening.

I'm on 6.5 years now and still undetectable and still on the enzalutamide.

Is Gary still on Enza too?

Hope everything works out ok

Paul.

User
Posted 12 Jun 2021 at 20:17
Hi Paul ,yes Gary is still on both abi and Enzo .He’s doing really well ,still working just at a slower pace .

Here’s hoping it’s only a minor blip ,spoke to oncology and they advised him to go to Drs ! That’s if you can get an appointment.

I’m glad you’re still going strong .

Best wishes

Debby

User
Posted 28 Jun 2021 at 17:33
Quick update ,Gary managed to see a doctor who confirmed blood in wee .He was given 10 days of antibiotics. Urine test yesterday and all is clear .

Can’t believe in 5 1/2 years this is the first time he’s had any other problems.

Here’s hoping that it continues .

Debby

User
Posted 28 Jun 2021 at 17:36

Your posts are such a gift Debbie, thank you. Hope the anti 'Bs' do the job. 

 

Leila 

User
Posted 29 Jun 2021 at 18:03

That’s good it’s nothing too serious. 5.5 years after the diagnosis the PSA results are great. 

Ido4

User
Posted 01 Jul 2021 at 08:38
Hi Debbie

Just to say I am so glad this did turn out to be a blip and not what you feared.

I don't post much now we have settled into the news - my husbands diagnosis quite similar to yours with spread to lymph nodes including para aorta.

Yours was one of the first posts I read almost 2 years ago and it gave me hope, it still does.

Best wishes to you both.

Mrs MAS

User
Posted 05 Jul 2021 at 22:29

Hi Debby, what a relief for you both that Gary’s pain is not PCA related. Fingers crossed he continues to do well for another 5.5 years xx

Debbie xxx
 
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