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Second HIFU agreed

User
Posted 30 Jun 2021 at 01:22

Hi folks,

Doctor from UCLH contacted me yesterday following my recent Template Biopsy.  He did not have the size of my tumour but it was evident that it had grown slightly.  It was now graded as 4+3, rather than 3+4  which it had always been graded since I was originally diagnosed in 2007 and at every subsequent biopsy until this recent one.

I was offered HT which they expected me to decline from my record, or a second application of HIFU. I confirmed I wished to go with the latter and asked when this could be done.  It will depend on the surgeon's waiting list but will be in a matter of weeks rather than months.  This is a volte-face as I was previously told by the top man that as I had previously had RT to my Prostate and HIFU, they would not subject it to another assault. So I was surprised to learn that the lady Professor who administered the HIFU previously was prepared to administer it for a second time.  Maybe, this was conceded as I have been obdurate and persistent in declining HT. This is most probably the last chance of treating the cancer specifically within the Prostate as a Prostatectomy would be much more difficult after RT and two HIFU treatments and would almost certainly result in permanent incontinence as I was told before having the first HIFU procedure.  I hope this second application does the job, so HT will not be necessary, at least not for quite a time.   

Barry
User
Posted 30 Jun 2021 at 01:22

Hi folks,

Doctor from UCLH contacted me yesterday following my recent Template Biopsy.  He did not have the size of my tumour but it was evident that it had grown slightly.  It was now graded as 4+3, rather than 3+4  which it had always been graded since I was originally diagnosed in 2007 and at every subsequent biopsy until this recent one.

I was offered HT which they expected me to decline from my record, or a second application of HIFU. I confirmed I wished to go with the latter and asked when this could be done.  It will depend on the surgeon's waiting list but will be in a matter of weeks rather than months.  This is a volte-face as I was previously told by the top man that as I had previously had RT to my Prostate and HIFU, they would not subject it to another assault. So I was surprised to learn that the lady Professor who administered the HIFU previously was prepared to administer it for a second time.  Maybe, this was conceded as I have been obdurate and persistent in declining HT. This is most probably the last chance of treating the cancer specifically within the Prostate as a Prostatectomy would be much more difficult after RT and two HIFU treatments and would almost certainly result in permanent incontinence as I was told before having the first HIFU procedure.  I hope this second application does the job, so HT will not be necessary, at least not for quite a time.   

Barry
User
Posted 30 Jun 2021 at 09:56
Hi Barry that’s great news. I’ve come to realise that many Oncos these days are more prepared and even enjoy to be challenged. Mine said that at my age he was pleased I didn’t just have everything he threw at me , and that I took educated choices on my own cancer.

I too desperately didn’t want HT but it boiled down to my only choice. I’m jealous you still have a treatment in the bag that doesn’t involve total emasculation yet. So good luck to you , and I assure you from my personal experience that HT isn’t the end of the road after all. All is still good and working, just at a reduced level.

If life gives you lemons , then make lemonade

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User
Posted 30 Jun 2021 at 09:13

Hi Barry,

I think the specialists are getting a wider view on possible treatments as they gain more information with time.

Good luck with the treatment John.

User
Posted 30 Jun 2021 at 09:56
Hi Barry that’s great news. I’ve come to realise that many Oncos these days are more prepared and even enjoy to be challenged. Mine said that at my age he was pleased I didn’t just have everything he threw at me , and that I took educated choices on my own cancer.

I too desperately didn’t want HT but it boiled down to my only choice. I’m jealous you still have a treatment in the bag that doesn’t involve total emasculation yet. So good luck to you , and I assure you from my personal experience that HT isn’t the end of the road after all. All is still good and working, just at a reduced level.

If life gives you lemons , then make lemonade

User
Posted 30 Jun 2021 at 12:45

Great news, Barry.

Hope it works well for you!

Steve 

User
Posted 30 Jun 2021 at 12:52

That’s a great turnaround Barry. Best wishes.

Ido4

User
Posted 01 Jul 2021 at 00:33
Thank you for your good wishes. I will post on this after the procedure DV. It's quite rare to have HIFU twice, so perhaps of potential or academic interest to some people.
Barry
User
Posted 01 Jul 2021 at 00:36
Wow - you really have a diamond of a consultant there Barry! Very best of luck to you :-)
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Jul 2021 at 01:37

Thank you Lyn. I know you are well aware I am not permitted to name her under forum rules but if you page down to the 'Professional Biography' on this site, that lady seems well qualified. She is also the Chief Investigator for the SpectraCure P18 trial using Photodynamic therapy to treat failed RT. I did ask about this but did not meet the trial critera because I had had HIFU. https://www.kingedwardvii.co.uk/consultants/professor-caroline-moore

 

Barry
User
Posted 01 Jul 2021 at 07:24

That will get deleted!

 

User
Posted 01 Jul 2021 at 17:30
😂
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Jul 2021 at 19:45

That's good.  Going onto hormones while it's still in the prostate would be an insult to someone who has weaved such a path.  All the best Peter

User
Posted 04 Jul 2021 at 14:33

Best of luck, Barry. Hope the procedure goes well and you are back to full strength ASAP.

User
Posted 05 Jul 2021 at 11:42

Hi Barry

great news on the treatment option, it just goes to show persistence pays off.

all the best

Roy

User
Posted 06 Jul 2021 at 10:14
Barry, you don't give up do you. Well done and hope all goes well.

Ray

 
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