I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

<12

No bladder control

User
Posted 28 Jul 2021 at 01:25

Just to post something a little more hopeful...

I had my partial nerve sparing RARP 16 months ago at the age of 68.

I've had some issues since that point with incontinence - the most general problem is having an urge to pee, even though my bladder isn't full. I have some control over that urge, but sometimes it gets too much and I have to dash to the loo. I've had two small accidents at night, which I can only explain by dreaming I was having a pee. I've had about half a dozen dashing to the loo after a walk and getting a severe urge as my key went in the door. I also had a small dribble roughly every other day.

Nurse put me on some Toltorodine but they didn't do much and the surgeon suggested I try some diet changes instead, I now have one decaf tea for breakfast and the rest of the time I drink herbal tea with no citrus (I used to drink Lemon teas a lot, but no more). This has actually seemed to help, but also it has got better over time. I find that drinking wine is no problem, but beer guarantees numerous visits unless it's a very hot day. No more dribbles and no more accidents for the last couple of months, so definite progress.

As I used to get urges due to increased prostrate size, I have been used to coping with the need to pee, and I've continued my coping patterns - don't drink too much liquid before going out, have a pee before I go and be aware of public loo locations. There are also a few well-watered bushes on my country walks.

You're obviously worse than I ever was, but there is hope things will improve and I would try whatever suggestions your medical team offer.

User
Posted 28 Jul 2021 at 08:06
With hindsight I have been very lucky - no incontinence anymore, a usable willy and very happy with my "lot".

At the time of my diagnosis I just went into "get it out mode" you listen to the informed consent speech but it doesn't sink in what the potential impact might be.

Vital that all PCA patients do their own research and come to their own decision in parallel with their medical team.

Would I have done the same things? Probably but that would have been an informed decision where I understood the likely outcome not a panic response where every set back was a suprise: Peritonitis, sepsis, incontinence, marriage breakdown, impotence, PSA anxiety, possibility of more treatment...

 
Forum Jump  
<12
©2025 Prostate Cancer UK