Have to say I'm a tad sceptical of the official figures for urinary continence (UI) following a RP. All but one of the six men I know who've had a RP have complained of lasting UI since their RP. I seem to recall that you are not classed as suffering UI if after twelve months you are using less than two pads per day. One friend of mine who had a RP about a decade ago never stops complaining at having to use a pad whenever he goes out. He tells me his average leakage is around 5ml/day but can go up to about 50ml on occasion.
Another ia happy now but only because after suffering heavy UI for years post RP he was fitted with the sling and has now been dry for three/four years since. Yet another friend who is sadly no longer with us could never come to terms with his UI problem. There are others who I know of that continue to suffer, and like I said, just the one who was dry relatively quickly.
For myself I had a RARP and RT a dozen years ago and have neve stopped leaking since. I have changed my lifestyle in order to do everything I can to reduce it, eg eliminating all known dietary triggers (alcohol, fizzy drinks, tea, coffee, dairy products, tomatoes, etc), keeping fit, keeping my weight comfortably within recommended gudelines, doing pelvic floor exercises assiduously etc. I have tried several drugs, eg Oxybutynin, Tolteradine, Mirabegron, each of which produced improvements for a while but had to be discontinued because of serious side effects such as heart problems, sleeplessness, etc.
As for medical interventions such as the sling and sacral nerve stimulation, I was advised because of the effects of radiation these were probably too risky. On top of which a bad experience two years ago invovling a rigid cystoscopy to remove what turned out to be a phantom tumour in my bladder that immediately resulted in a tenfold worsening of my UI (up from around 20ml/day prior to the procedure to 200ml/day ever since) has left me resolved never to have any further interventions unless they are totally unavoidable.
Now, having said all that, I wouldn't want anyone to think I lead a miserable existence. Quite the contrary, I have never been happier! I enjoy my current lifestyle immensely and have learnt to live with all the inconveniences of UI. They are as nothing compared with what many have to put up with.
As we PCa sufferers all agree, life is to be enjoyed to the full, every single minute of every single day, and that is what I mean to keep doing no matter what life throws at me.
Edited by member 27 Jul 2021 at 23:24
| Reason: Not specified