Diagnosed in 2017 at 59 with T4 N0 M1b, gleason 9, psa 11 and struggled along since then kinda okay. At least some quality of life anyway.
This year it's been horrible with sciatica type pain, abdominal pains, back pain and even constipation of late. Pain sitting, pain laying down, hard to sleep, can't hardly walk. It's like some never stopping torture regime, and oftentimes I'm just praying for it to end now.
Now on Bicalutamide. Likely to move to enzalutamide or Abiraterone soon, maybe even in a couple of weeks.
A MRI showed primary increased and a new matastatic tumour to sacral spine interferring with nerve(s) causing these nasties. Given single shot high dose palliative radiotherapy to sacrum/Pelvis last week.🤞
I was warned radiotherapy would likely exacerbate pain and symptoms for some days, or up to two weeks, before it hopefully got better.
But I had three much better days immediately after, I'm not sure if all the dexamethasone helped there, life worth living again, but the the last couple of days are not good again.
I was so thrilled at this seemingly magical pain intervention, but now I'm worried it's not working for me.
I just need to be patient for another week or so I suppose, and hope?