My husbands recent diagnosis of advanced prostate cancer

User

Posted 10 Nov 2022 at 17:25

Originally Posted by: Online Community Member

Lovely post Elaine and well said. So happy for you both right now x

Thanks so much Chris, really means a lot. Hope you are well xx

User

Posted 10 Nov 2022 at 18:34

Good news for you both I am really pleased for both off you all the best. Gaz 👍

User

Posted 10 Nov 2022 at 20:06

Very good news. Nice to see the testosterone recovering, back in the normal range.

Dave

User

Posted 10 Nov 2022 at 20:35

Simply brilliant news, so pleased for you both

Jim

User

Posted 10 Nov 2022 at 20:45

That's a really uplifting post Elaine. Just what I needed. Good luck to both of you.

User

Posted 10 Nov 2022 at 20:47

Wonderful news! So pleased for you both xx

User

Posted 10 Nov 2022 at 21:07

Hey Elaine,

Of course you want to keep posting in here to provide hope,because its what you do well all too brilliantly!

Super chuffed for you both.

Jamie

User

Posted 11 Nov 2022 at 07:18

Originally Posted by: Online Community Member

Good news for you both I am really pleased for both off you all the best. Gaz 👍

Thanks so much Gaz, hope you’re doing well x

User

Posted 11 Nov 2022 at 07:21

Originally Posted by: Online Community Member

Very good news. Nice to see the testosterone recovering, back in the normal range.

Thanks Dave. Yes it’s definitely noticeable that his T has risen, just thankful the PSA hasn’t followed it yet and hope it never does 🤞🏼 Hope all good with you x

User

Posted 11 Nov 2022 at 07:24

Originally Posted by: Online Community Member

Simply brilliant news, so pleased for you both

Jim

Thanks so much Jim. Hope your recovery is continuing to go well 👍 x

User

Posted 11 Nov 2022 at 07:29

Originally Posted by: Online Community Member

That's a really uplifting post Elaine. Just what I needed. Good luck to both of you.

Thank you Chris. Hope you’re doing ok and things settling down after RT x

User

Posted 11 Nov 2022 at 07:30

Originally Posted by: Online Community Member

Wonderful news! So pleased for you both xx

Thank you Jayney, ditto xx

User

Posted 11 Nov 2022 at 07:39

Originally Posted by: Online Community Member

Hey Elaine,

Of course you want to keep posting in here to provide hope,because its what you do well all too brilliantly!

Super chuffed for you both.

Jamie

Thanks so much Jamie. So pleased that you’re recovering well from your op too with great histology report and PSA.

I do believe in never giving up hope that things can change and improve, luckily for us this has very much been the case so far 🤞🏼 X

User

Posted 11 Nov 2022 at 21:59

Great result

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User

Posted 12 Nov 2022 at 03:04

Originally Posted by: Online Community Member

Great result

Thank you Lyn. Really can’t believe where we are. And thanks so much for all your help and advice along the way….it’s been invaluable x

User

Posted 01 Dec 2022 at 16:22

Hello, we have just joined this site and saddened to read your post. Can you tell us how things are now? My husband Barrie has advanced terminal cancer and to be honest with everything concerned I/We feel totally alone. Any support would be appreciated.

Thank you

Barrie and Jeannie

User

Posted 01 Dec 2022 at 17:39

Originally Posted by: Online Community Member

Thank you

Barrie and Jeannie

Hi Barrie & Jeannie,

I have responded with some information on your other post aswell.

Just about our situation though. We were very fortunate that my husbands diagnosis changed from advanced to locally advanced so this meant he was able to have the operation and he is currently doing very well. Really wishing you and your husband all the very best.

User

Posted 08 Dec 2022 at 00:54

I’d mentioned previously about Rob getting some heart palpitations. It seems to have only started since his diagnosis, so not sure if it could have been triggered by HT or maybe just the stress of diagnosis etc. Or just completely not related of course!

Anyway he was originally prescribed a beta blocker (bisoprolol), he didn’t start to take them and in the meantime we got an appointment with a cardiologist. We mentioned about his prostate cancer and recovery and he said not to have the bisoprolol as this can cause ED, he then prescribed him a different medication….not sure of the name.

I’m just posting this in case there are others in a similar situation who have been prescribed beta blockers and struggling with ED, this could be an explanation.

Elaine

User

Posted 11 Feb 2023 at 15:15

So latest results:

PSA 0.029 Testosterone 10.1

So PSA no longer undetectable at the lab we use 😢 although I know it would still be undetectable at other labs.

Of course I don’t know what his previous PSA numbers were as they came back <0.025 so not sure how much it has risen in 3 months.

Not really sure what to feel. We’ve always known further treatment was highly possible but I guess you just keep praying you never have to deal with prostate cancer again. I’ve certainly not gone into panic mode but getting the occasional churns in my tummy.

Too early to know what is happening, but has anyone had a slight rise at this point after RP and then no more 🤷🏻‍♀️

Also Rob has in the past few months started heart medication called ADIZEM….could this have an impact on PSA? He’s having an ablation beginning of March so hopefully he would be able to stop the medication then.

Any thoughts appreciated xx

User

Posted 11 Feb 2023 at 15:27

Sorry to hear that Elaine but I wonder is there any need to be concerned? As you pointed out, many labs only test down to 0.1 (as mine does, after initial testing down to 0.04) and I was told by the specialist nurse who speaks to me shortly after my tests (now every 6 months after my surgery on 21/12/21) that it was because very small movements below 0.1 are often not cause for concern.All it does is create stress to the person receiving the figures. I was also told that the body often creates very small amounts of PSA even when there is no prostate.

Ivan

Edited by member 11 Feb 2023 at 15:38 | Reason: Not specified

Notification

Join the online community now.