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Prostate cancer treatment guidelines

User
Posted 22 Sep 2021 at 15:47

Hi,  i was diagnosed with prostate cancer today. It seems I have 3 options? ;


1. Prostate removal


2. Radiotherapy


3. Do nothing


Wondering what the differences/, side effects/ success rates for numbers 1 and 2 are?


Any information  from those that have been through this would be appreciated.Thanks

User
Posted 22 Sep 2021 at 23:19

Hi,


It's nice to have a do nothing option.   It makes it sound like it doesn't need urgent action.   Although there are different sorts of do nothing where it's putting off the inevitable and perhaps it would be better to get it treated.  They sometimes like to avoid accusations of over treatment as that has been an accusation, although it's easy saying things after the event.


In general options 1 and 2 have similar outcomes although being ever sceptical I believe a good operation must give a better result.   If it's gone it's gone.  Whereas with radiotherapy the prostate is still there, somewhat fried.


I would add that nothing is certain with prostate cancer and no-one can be sure.  You should soon get used to it though and won't think much about it, unless there are problems.


It would seem that if they're willing to do nothing it hasn't spread or is in imminent danger of spreading.  Radiotherapy has an advantage when it comes to treating spread near the prostate.


Side effects vary and you might get one or all of them depending on luck and perhaps the skill of the surgeon.  There are plenty of other threads listing the side effects and a search will bring up several discussions.  I know the operation side effects but am hazy on radiotherapy.   


If you list side effects it can be off putting when, in my opinion, you need to make a decision on your feelings for best outcome and longer life.   Although some people are willing to sacrifice to have a better quality of life.


After the op a surgeon will normally say most men regain continence within six months.  You may need to take tablets to get an erection.  You won't eject anything during sex.  There are minor effects too.  I think most men have some disfunction but regain continence.   If you're lucky you'll be continent and having an erection fairly quickly.   If you're unlucky the side effects will mean you'll not regain continence and not be able to get an erection, but there is treatment for those.   There are advantages with the op such as you know better where you are quicker and treatment is over faster.   Long term side effects from radiotherapy won't happen and you can have radiotherapy after the op.


Anyway with that as a primer I'd look around this forum.  Some say download the toolkit on this site and it's probably good advice.


If I could put it off due to very low grading I think I would as some people have prostate cancer for years without it becoming critical.   I sometimes think I must have had it a few years but I was lucky I went to the GP for a different reason when I did as it was about to become almost untreatable.  It's not easy to judge so I'd be careful and err to caution.


Regards
Peter


 

Edited by member 22 Sep 2021 at 23:32  | Reason: Not specified

User
Posted 23 Sep 2021 at 04:30

You might also be a suitable candidate for Focal Therapy but would need to see a specialist to check this out. Some people are having it on the NHS now even outside a trial. Usually, most men have HIFU but cryotherapy is another treatment possibility. Much depends on how much cancer there is, its grade and position. HIFU can treat to the edge of the Prostate whereas with Cryotherapy, the ice ball formed can be made to extend just beyond it. The 'Tool Kit' provides a lot of useful information and details of more usual treatments. https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100 


 

Edited by member 23 Sep 2021 at 04:31  | Reason: Not specified

Barry
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User
Posted 22 Sep 2021 at 17:41

Hi Swirl,


Can you let us know your PSA., Gleason and TNM they help give us an overview of where you are. Has anyone mentioned Brachytherapy ?


The outcomes between options 1,2 and 3 vary depending on PSA., Gleason and TNM . In some cases option 3 is the best option.

Dave

User
Posted 22 Sep 2021 at 18:15

HI DAVE,


Only saw the specialist this morning, waiting for the letter with all details to go via my GP, then I should have some figures available, Thanks

User
Posted 22 Sep 2021 at 23:19

Hi,


It's nice to have a do nothing option.   It makes it sound like it doesn't need urgent action.   Although there are different sorts of do nothing where it's putting off the inevitable and perhaps it would be better to get it treated.  They sometimes like to avoid accusations of over treatment as that has been an accusation, although it's easy saying things after the event.


In general options 1 and 2 have similar outcomes although being ever sceptical I believe a good operation must give a better result.   If it's gone it's gone.  Whereas with radiotherapy the prostate is still there, somewhat fried.


I would add that nothing is certain with prostate cancer and no-one can be sure.  You should soon get used to it though and won't think much about it, unless there are problems.


It would seem that if they're willing to do nothing it hasn't spread or is in imminent danger of spreading.  Radiotherapy has an advantage when it comes to treating spread near the prostate.


Side effects vary and you might get one or all of them depending on luck and perhaps the skill of the surgeon.  There are plenty of other threads listing the side effects and a search will bring up several discussions.  I know the operation side effects but am hazy on radiotherapy.   


If you list side effects it can be off putting when, in my opinion, you need to make a decision on your feelings for best outcome and longer life.   Although some people are willing to sacrifice to have a better quality of life.


After the op a surgeon will normally say most men regain continence within six months.  You may need to take tablets to get an erection.  You won't eject anything during sex.  There are minor effects too.  I think most men have some disfunction but regain continence.   If you're lucky you'll be continent and having an erection fairly quickly.   If you're unlucky the side effects will mean you'll not regain continence and not be able to get an erection, but there is treatment for those.   There are advantages with the op such as you know better where you are quicker and treatment is over faster.   Long term side effects from radiotherapy won't happen and you can have radiotherapy after the op.


Anyway with that as a primer I'd look around this forum.  Some say download the toolkit on this site and it's probably good advice.


If I could put it off due to very low grading I think I would as some people have prostate cancer for years without it becoming critical.   I sometimes think I must have had it a few years but I was lucky I went to the GP for a different reason when I did as it was about to become almost untreatable.  It's not easy to judge so I'd be careful and err to caution.


Regards
Peter


 

Edited by member 22 Sep 2021 at 23:32  | Reason: Not specified

User
Posted 23 Sep 2021 at 04:30

You might also be a suitable candidate for Focal Therapy but would need to see a specialist to check this out. Some people are having it on the NHS now even outside a trial. Usually, most men have HIFU but cryotherapy is another treatment possibility. Much depends on how much cancer there is, its grade and position. HIFU can treat to the edge of the Prostate whereas with Cryotherapy, the ice ball formed can be made to extend just beyond it. The 'Tool Kit' provides a lot of useful information and details of more usual treatments. https://shop.prostatecanceruk.org//our-publications/all-publications/tool-kit?limit=100 


 

Edited by member 23 Sep 2021 at 04:31  | Reason: Not specified

Barry
 
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