Hi all,
Realise it’s some time since I last posted an update so wanted to check in with all on progress.
Dad had his surgery in May and it went well, he recovered quickly from it (albeit struggled with the catheter!) and has been doing well since. He had his first PSA test in July and it came back undetectable. Still trying to get our heads round this given 6 months ago he was diagnosed as stage 4, and was told by the oncologist he had 5 or so ‘good’ years. I appreciate my dad’s case is quite unusual, but it goes to show (as I know others on this forum have), that getting a second opinion can really make all the difference. We never approached it expecting a change of outcome but more just to validate what the first oncologist had said
The Marsden said that they had seen about 5 cases like my dads before (a false positive on PET CT as a result of benign hemangioma), but expects as these scans become more common that rates of false positives will be more prevalent.
By no means feel like we are out of the woods yet but things are certainly looking more positive than where they were 6 months ago (for both mum and dad!)
thanks again for all your support, and if anyone wants more info on my dad’s case and who we saw for second opinions etc, then always happy to have a chat.
as an aside, I’ve felt a bit powerless over the last 6 months so signed up to the London Marathon in October… I couldn’t do it for PC UK as they had no spots left so running for Macmillan instead… wish me luck!!!!