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To pee or not to pee

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User
Posted 30 Nov 2021 at 11:43

I had a flow test yesterday and TURP is being recommended but I feel l can cope without. My PSA is 13.6 and have a large  prostate, mri scan and biopsy both came back  clear. Any advice? Any alternative?

Thank you 

User
Posted 01 Dec 2021 at 08:27
Generally speaking, surgeons will do what they can to avoid surgery (particularly in the current crisis) so if they are recommending surgery, they must believe it is necessary. You may feel you are coping but we don't know how much urine you are retaining and whether you are putting your kidneys under undue stress.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 30 Nov 2021 at 23:28

Have you tried Tamsuloson or Alfuzosin? These drugs can increase your flow rate by around 20%, but you may eventually need surgery anyway. Another option might be to try shrinking the prostate with Finasteride. This takes about 6 months, and you need to remember to double up PSA test results while on Finasteride. It's a mild hormone therapy drug, and may also reverse any balding. What you don't want is for it to get so bad you go in to retention and can't pee. Also a TURP is another biopsy, as they will analyse the tissue removed.

User
Posted 01 Dec 2021 at 06:47
My 87 year-old father-in-law is on both Tamulosin and Finasteride, not that they do him any good, as he has to get up six or seven times a night to micturate. He is on a long waiting list for a urology consultation.

A friend, age 70, had a TURP via the ‘Green Laser’ procedure, involving just an overnight hospital stay, and in his own words he ‘p***** like a horse now’.

Cheers, John.

User
Posted 01 Dec 2021 at 11:00
A TURP is a bit like using an apple corer to take out the centre of the apple. If your brother had surgery, that was like removing the apple and leaving the apple peel in place - a very different situation - so try not to be put off by his experience.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Dec 2021 at 16:00

I had my TURP nearly 5 years back and it solved all my peeing problems. 

The post op analysis discovered my cancer, (recently treated) although no previous MRI was reported as suspicious. 

User
Posted 02 Dec 2021 at 10:08

I was in hospital and catheterised for two nights. The catheter was removed before I was discharged. Just had to first  prove I could pee and empty my bladder. Once home and the pain relief wore off, peeing did hurt for two or three days. Started off bright red and gradually cleared. No incontinence. Cannot remember too clearly, much has happened since, but I think I took a week off work.

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User
Posted 30 Nov 2021 at 23:28

Have you tried Tamsuloson or Alfuzosin? These drugs can increase your flow rate by around 20%, but you may eventually need surgery anyway. Another option might be to try shrinking the prostate with Finasteride. This takes about 6 months, and you need to remember to double up PSA test results while on Finasteride. It's a mild hormone therapy drug, and may also reverse any balding. What you don't want is for it to get so bad you go in to retention and can't pee. Also a TURP is another biopsy, as they will analyse the tissue removed.

User
Posted 01 Dec 2021 at 06:47
My 87 year-old father-in-law is on both Tamulosin and Finasteride, not that they do him any good, as he has to get up six or seven times a night to micturate. He is on a long waiting list for a urology consultation.

A friend, age 70, had a TURP via the ‘Green Laser’ procedure, involving just an overnight hospital stay, and in his own words he ‘p***** like a horse now’.

Cheers, John.

User
Posted 01 Dec 2021 at 08:27
Generally speaking, surgeons will do what they can to avoid surgery (particularly in the current crisis) so if they are recommending surgery, they must believe it is necessary. You may feel you are coping but we don't know how much urine you are retaining and whether you are putting your kidneys under undue stress.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Dec 2021 at 10:42
Thank you all for your speedy replies.

I am new to the site as you probably guessed so apologies if ramble on a bit!

I'm on Tamulosin (since Feb 2020) when my PSA was 5.1, it has gradually risen to the latest 13.6.

I only get up once in the night but it can take 6-8 minutes to complete the task!

I take the Tamulosin in the morning as l use the toilet more in the day, probably because that's when I drink more.

The specialist nurse has advised I go on decaff coffee which I will try to do.

I haven't had the follow up with the consultant yet, but I am obviously concerned.

Also to add to it two of my brothers have had prostate cancer, my younger brother about nine years ago but complains he is in constant pain,

sadly my eldest brother also had it but another cancer got him .

At this moment I only have the enlarged but huge prostate.

Thank you all for your replies.

All advice/ideas/comments are very useful when the time comes to decide

User
Posted 01 Dec 2021 at 11:00
A TURP is a bit like using an apple corer to take out the centre of the apple. If your brother had surgery, that was like removing the apple and leaving the apple peel in place - a very different situation - so try not to be put off by his experience.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 01 Dec 2021 at 11:48
My brother had the prostate removed but still says he suffers pain?

Forgot to mention my 42yearold son has an enlarged prostate but his GP is not referring him yet.

Thanks again

User
Posted 01 Dec 2021 at 16:00

I had my TURP nearly 5 years back and it solved all my peeing problems. 

The post op analysis discovered my cancer, (recently treated) although no previous MRI was reported as suspicious. 

User
Posted 02 Dec 2021 at 09:42

Hi Peter,

Were you laid up at all, and did you have to wear a catheter for long?

Thanks

 

User
Posted 02 Dec 2021 at 10:08

I was in hospital and catheterised for two nights. The catheter was removed before I was discharged. Just had to first  prove I could pee and empty my bladder. Once home and the pain relief wore off, peeing did hurt for two or three days. Started off bright red and gradually cleared. No incontinence. Cannot remember too clearly, much has happened since, but I think I took a week off work.

User
Posted 02 Dec 2021 at 10:23
Thank you very much, no problem with time off as I'm retired, but I look after my disabled wife

So this sounds positive.

Thank you.

User
Posted 04 Jan 2022 at 11:06

I have been in discussion with the specialist nurse who asked me to have a blood test for kidney function which came back normal. I have asked for a face to face discussion with the urology consultant to ask about any alternatives to surgery or if indeed surgery is needed at this time. I will get back when and if I get any news.

 

 

User
Posted 04 Jan 2022 at 15:10
I hope you have a forward plan soon
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 Jan 2022 at 17:16

Hi,

I've had a call back from my consultant who now wants to do another biopsy as he said "we may have missed something " and is also concerned about the size (105) of the prostate and also the steady rise in my psa readings. It sounds to me that  he is trying to make sure all  is okay 🤞.

User
Posted 18 Jan 2022 at 16:43
I now have another biopsy booked for Thursday 29th January, PCR test Monday 26th, had PSA bloods today.

Hoping for good results. 😊🤞

User
Posted 18 Feb 2022 at 16:46

Originally Posted by: Online Community Member
I now have another biopsy booked for Thursday 29th January, PCR test Monday 26th, had PSA bloods today.
Hoping for good results. 😊🤞

User
Posted 18 Feb 2022 at 16:51

Had biopsy 27th January, psa jumped to

18! No result as yet got face to face meeting with another consultant on 23rd February, bit worried  as got a letter last time to say all clear🤔

 
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