Where do I start....
Karl was diagnosed with stage 4 Prostate cancer in 2020 it knocked us for six. He did the standard treatment and did well for the first 12 months before progression started, new drugs added to his treatment and now stable again. π
He was then diagnosed with a possible primary Lung tumour with 2 Lymph node involvement or prostate spread in May 2022 and had a lower left Lobectomy with 4 Lymph nodes removed in July.
The pathology came back after chasing the results for more than 6 weeks and on meeting the surgeon we were told he had a low grade lung tumour and no lymph nodes had cancer (T1b N0 M0). We found this confusing as we were ecpecting low grade tumour with cancer in 2 nodes from his previous biopsies., happy days....We were overjoyed with the news of a early diagnosis and a quick response with treatment and told he was clear of cancer and to get on with our lives and hope for a good run before more intervention is required.
On Thursday our World was turned upside down his lung doctor was also confused so had the tissue retested in the hospital labs....the out-sourced labs had incorrectly tested the samples....and he has been diagnosed with a rare and aggressive Neuroendocrine Large Cell carcinoma with spread to his adrenal gland, new lymph nodes and possibly his liver. Scans need to be done next week to rule out any more spread.
New stage is expected to be T3b N2 M1. He will do 4 cycles of Chemo and been told he may have 12 months if the chemo works.
How the hell do we go from cured with Lung to a terminal diagnosis......I'm just filled with sadness, grief and anger over our stolen future π πππ
Im still hopeful that Chemo will work and he is able to be offered immunotherapy but the type of cancer is so rare that not many trials available:(
Thank you everyone for you advice and support over the last 2 years but it appears that Karl will die with pc and not because of it π’ is just so sad and unjust
Edited by member 31 Jul 2022 at 18:17
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