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RT & HT

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User
Posted 11 Jan 2022 at 23:32

Hi there 


Had my first appointment with my oncologist today to discuss my rising PSA  which is now 0.14


They gave me a choice of just RT or RT plus HT. I chose the latter. So tomorrow I take my first tablet for 14 consecutive days, then go back to guys to have injection of  HT then finish remaining 14 tablets. After which I will have injection of HT every 12 weeks at my GP for 2 years. My radiotherapy of 33 sessions will start in roughly about 8 weeks time. 


Btw had my RP July 2020. Would appreciate any feedback with anyone on similar treatment path . TIA


 


 


 

User
Posted 12 Jan 2022 at 10:01
I went through a similar treatment course. Started HT in Aug 2018. 32 sessions of RT in Feb/Mar 2019. Finished HT in Feb 2020. All very tolerable.

Best wishes,

Chris
User
Posted 12 Jan 2022 at 10:04

Same as Chris really 37 lots of radiotherapy hormone therapy every 3 months for 2 years found it tolerable  gaz

User
Posted 12 Jan 2022 at 12:24
I should perhaps add that I asked my oncologist if I could finish HT after 18 months, and he was happy to agree. Research shows that 18 months HT is just as effective as 24 months.

Best wishes,

Chris
User
Posted 12 Jan 2022 at 23:10

Recently completed 20 x 3gy RT; continuing with HT (Prostrap, 3 monthly injections, done circa 13 months now) for as long as necessary. RT observations in Bio. RT side effects have been pretty manageable to date bar the odd blip (usually caused by eating something best avoided during/immediately post RT). HT side effects have really settled down now - initially a lot of hot flushes and aches/pains, though nothing too severe....started easing off after circa 3 or 4 months for me, though usually suffer a bit for a week or so after each injection!


 


Good Luck!

User
Posted 01 Nov 2022 at 09:33

Originally Posted by: Online Community Member
No actual data for 10 months HT .


Perhaps not surprising but maybe better than midway between the two, which makes it pretty good odds.


Jules

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User
Posted 12 Jan 2022 at 10:01
I went through a similar treatment course. Started HT in Aug 2018. 32 sessions of RT in Feb/Mar 2019. Finished HT in Feb 2020. All very tolerable.

Best wishes,

Chris
User
Posted 12 Jan 2022 at 10:04

Same as Chris really 37 lots of radiotherapy hormone therapy every 3 months for 2 years found it tolerable  gaz

User
Posted 12 Jan 2022 at 12:24
I should perhaps add that I asked my oncologist if I could finish HT after 18 months, and he was happy to agree. Research shows that 18 months HT is just as effective as 24 months.

Best wishes,

Chris
User
Posted 12 Jan 2022 at 23:10

Recently completed 20 x 3gy RT; continuing with HT (Prostrap, 3 monthly injections, done circa 13 months now) for as long as necessary. RT observations in Bio. RT side effects have been pretty manageable to date bar the odd blip (usually caused by eating something best avoided during/immediately post RT). HT side effects have really settled down now - initially a lot of hot flushes and aches/pains, though nothing too severe....started easing off after circa 3 or 4 months for me, though usually suffer a bit for a week or so after each injection!


 


Good Luck!

User
Posted 20 Jan 2022 at 17:08

May I ask what your PSA reading at now?

User
Posted 01 Nov 2022 at 07:16

Update.


Had my 33 sessions of RT, PSA now 0.01 have my next PSA in two weeks time. Have come off ht  after 10 months just couldn't handle the side effects! My oncologist said there is a difference of 8% on it coming back if I come off it or stay on it for the full two years . 88% it doesn't come back 80% it could. I'll take my chances.

User
Posted 01 Nov 2022 at 08:06

I don't think that's an irresponsible decision. Do you mean he said 88% it won't come back with 2 years treatment as against 80% it won't come back with 10 months treatment?


The other questions is, come back when? As an example, with 18 mth treatment as against 3 years treatment, the 5 year figures look slightly better for the 3 year version until you take into account the fact that 3 years treatment means another year for recovery of testosterone, which in turn means there's only a year left for recurrence to become significant. For both 18 mth and 3 year treatment the outcomes at 10 years are the same.


Jules

Edited by member 01 Nov 2022 at 08:13  | Reason: Not specified

User
Posted 01 Nov 2022 at 08:06
Hi, apologies for some reason i didnt see your psa question back in january!! ... Probably a bit late now but all my psa readings are in bio... All on track post RT at present. Hope things work out for you!
User
Posted 01 Nov 2022 at 08:54

Basically no HT there is an 80% of it not coming back & with 2 year course of HT 88% of it not coming back. No actual data for 10 months HT . 

User
Posted 01 Nov 2022 at 09:33

Originally Posted by: Online Community Member
No actual data for 10 months HT .


Perhaps not surprising but maybe better than midway between the two, which makes it pretty good odds.


Jules

 
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