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5 year update

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User
Posted 26 Jan 2022 at 06:03

Good news today.  

Diagnosed Nov 16 - T2b Gleason 7

Prostatectomy Dec 16 - pT3a Gleason 9

Post prostatectomy PSA went from 0.014 to 0.023 in the space of first year

Salvage radiotherapy ended in June 2018 

Bicalutimide ended in August 2019 (18 months)

August 2018 PSA <0.006

January 2021 PSA <0.006

Discharged from oncology.  Annual blood test with GP

Oncologist won't say I'm cured, but did say a Gleason 9 doesn't usually stay asleep this long

Yesterday, for the first time in just over 5 years, I started to think, 'I had cancer/I no longer have cancer.'

Thank you to all of you on this forum who helped me.  Thank you to the PCUK specialists nurses.  Wonderful people all of you.

Next update, January 2023.

Although I will let you all know how the penile implant surgery goes later this year

 

 

User
Posted 01 Feb 2022 at 15:58

Thank you for all your good wishes.

Just noticed, I should have written

January 2022 PSA <0.006

But I think you all worked that out

User
Posted 26 Jan 2022 at 06:03

Good news today.  

Diagnosed Nov 16 - T2b Gleason 7

Prostatectomy Dec 16 - pT3a Gleason 9

Post prostatectomy PSA went from 0.014 to 0.023 in the space of first year

Salvage radiotherapy ended in June 2018 

Bicalutimide ended in August 2019 (18 months)

August 2018 PSA <0.006

January 2021 PSA <0.006

Discharged from oncology.  Annual blood test with GP

Oncologist won't say I'm cured, but did say a Gleason 9 doesn't usually stay asleep this long

Yesterday, for the first time in just over 5 years, I started to think, 'I had cancer/I no longer have cancer.'

Thank you to all of you on this forum who helped me.  Thank you to the PCUK specialists nurses.  Wonderful people all of you.

Next update, January 2023.

Although I will let you all know how the penile implant surgery goes later this year

 

 

Show Most Thanked Posts
User
Posted 26 Jan 2022 at 20:30

That is fantastic news Ulsterman. I hope things remain as they are and that the implant is successful.

Great update.

Ido4

User
Posted 26 Jan 2022 at 20:47

Brilliant news. Best wishes.

 

Jim πŸ‘

User
Posted 26 Jan 2022 at 21:03

Fabulous news, great to see a story like this πŸ‘πŸ½

User
Posted 26 Jan 2022 at 21:10
Great news Ulsterman.

Good luck with the Implant. I'll be reading updates as it may be the route for me in the future

Cheers

Bill

User
Posted 26 Jan 2022 at 21:20

Great news πŸ‘

User
Posted 26 Jan 2022 at 21:50

Brilliant news, thanks for the update. 

User
Posted 26 Jan 2022 at 21:56

Pleased to hear this, and good to have met you too.

User
Posted 26 Jan 2022 at 22:29

Great news , good to see a positive story. Long may it continue.

Thanks Chris

User
Posted 26 Jan 2022 at 22:59
Good news mate. Long may it continue πŸ‘
User
Posted 27 Jan 2022 at 05:01

brilliant news xx

regards Barbara

User
Posted 27 Jan 2022 at 06:12

Good news indeed,
Regards Barry

User
Posted 27 Jan 2022 at 08:05
Great stuff, hope the bionic dick works for you too!
User
Posted 27 Jan 2022 at 17:18

Very encouraging news for those of us with a high Gleason score. Thanks for sharing. 

User
Posted 27 Jan 2022 at 18:46
Great news and gives us all some encouragement.

Thanks for sharing your news.

Paul

User
Posted 27 Jan 2022 at 19:44

Originally Posted by: Online Community Member
Great stuff, hope the bionic dick works for you too!

Do you get to choose it's size? 😎😈

User
Posted 27 Jan 2022 at 20:21

That's encouraging news to hear for someone who is just starting on the journey. Thankyou.

User
Posted 27 Jan 2022 at 20:34

Great news. Best wishes for continued good.

User
Posted 27 Jan 2022 at 22:24

That's great news.

I've often thought your hospital did well by you.

User
Posted 27 Jan 2022 at 22:34
Great result!
Barry
User
Posted 28 Jan 2022 at 04:18

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Great stuff, hope the bionic dick works for you too!

Do you get to choose it's size? 😎😈

Yes, I'm asking for a reduction πŸ˜† 

User
Posted 28 Jan 2022 at 13:10

Great to hear your good news.  Hope all goes well with your implant too.

Ange x

User
Posted 28 Jan 2022 at 13:12

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member

Originally Posted by: Online Community Member
Great stuff, hope the bionic dick works for you too!

Do you get to choose it's size? 😎😈

Yes, I'm asking for a reduction πŸ˜† 

🀣🀣🀣

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 29 Jan 2022 at 08:54

Hi Ulsterman,

Great news long may it last.

 

John.

User
Posted 29 Jan 2022 at 11:27

Great news! 🍾🍻

User
Posted 29 Jan 2022 at 12:10

Hi Ulsterman

I've been following your story quietly from the sidelines - I was also diagnosed in Nov 16 with  Gleason 9 T3a...   And it seems I'm in a very similar boat to you with undetectable PSA.  Well, at least I was with my last one, I keep forgetting to get the December one!

So yay for both of us!  We both seem to have lasting side effects from the treatment, different but equally unwelcome.  Chance seems to have given us a life to live with them though, and I'll take that.  Onwards...

User
Posted 31 Jan 2022 at 15:08

Brilliant news πŸ‘πŸ‘

User
Posted 01 Feb 2022 at 15:58

Thank you for all your good wishes.

Just noticed, I should have written

January 2022 PSA <0.006

But I think you all worked that out

 
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