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PSA 0.05 from unrecordable

User
Posted 27 Jan 2022 at 16:07

Hi, my partner had a radical prostectomy in October 2020  his PSA levels have been unrecordable at all his 3 monthly checks. He has just had the result from his first 6 monthly bloods and its now 0.05 I know that's only a tiny increase   but should we be worried ? Thanks in advance for any replies 

User
Posted 18 Jun 2024 at 17:43
Not in Labour run Wales you can't, still in the stone age here.
User
Posted 24 Jun 2025 at 18:11

I should stress that I don't know anything about the medical context, so I don't know how low the PSA would be expected to go.

However, looking at it from a purely mathematical point of view it could simply be that the PSA has been hovering at just under 0.05 and then sometimes you will get a reading which equals 0.05.  This could, for example, represent a fluctuation from 0.049 to 0.050, i.e. a change of only 0.001, which must surely be less than the margin of error in the test. On that basis you can't read anything into it and it would only be if you started seeing a succession of increases that there would be cause for alarm.

User
Posted 24 Jun 2025 at 18:38

Adrian -

let’s get the important stuff out of the way right away. It’s 36.1° where I live right now so your picture with a pint gave me an idea of how to beat this heat.

if I’m ever in London, I’m buying you a pint or maybe 12 for beating Gleason 12.

i’m not sure any human beings intervene with handwritten figures for PSA at my hospital. i’m slowly coming around to the idea that this is just a fluctuation in measurement more than the beginning of the end for me. Generally speaking, I’ve been optimistic, but I had a retinal detachment about six weeks ago. It is so harrowing for two or three weeks and unfortunately, it has darkened my mood to the point that a PSA reading that is one 100th different from priors has me up on the ledge. Figuratively speaking

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User
Posted 27 Jan 2022 at 16:59
No need to worry but if it gets to 0.1 and then continues to rise, ask for a referral to oncology. Have you seen the result or just been given it over the phone? Is it possible that whoever gave the result didn't know what a < sign meant? Or the < sign wasn't transferred from the digital report into his medical record? It does happen!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 28 Jan 2022 at 17:21

Thankyou for the reply,  the result was given over the phone so hopefully they just missed off the <, his specialist nurse is off for the next 3 weeks and I just had a moment of blind panic 

User
Posted 28 Jan 2022 at 17:45
I got the result of my blood test yesterday and the nurse said 0.03 PSA. I queried if it was <0.03 and she apologised saying yes.
User
Posted 29 Jan 2022 at 08:53

Lots of people are not very competent with numbers, including some support workers and receptionists. Quite often when I ask what someone's PSA is, I'll get answers like:
00.1
0.0.1
>0.1

I recommend always asking for the printout.

User
Posted 29 Jan 2022 at 22:40

I’ve had a similar issue with missing < signs. Best thing I found is to ask them to print out a copy of the blood report and pick it up in person. Then at least you have the lab report so hopefully less scope for important details missing. 

User
Posted 31 Jan 2022 at 09:41

Happened to me too, the receptionist at my local GP surgery didn't notice the "<" sign or didn't know how to interpret it. Had a retest at the hospital who reaffirmed PSA was still undetectable. It could also be due to a change in lab e.g. if you've just moved from hospital testing to local testing.

User
Posted 18 Jun 2024 at 15:05

I know this is in the future now but if you set up an NHS My Care account you can log in and get all of your blood test results and everything else you see the doctor/hospital about in one place. This cuts out the middle person and allows you to view the results in a graph over time for comparison as well.

User
Posted 18 Jun 2024 at 15:29

I have a Mycare account but most of the results, from the many tests I've had,  have never appeared on it.  

The account is certainly capable of showing test results but this appears to depend on somebody proactively putting each result onto it, when the information comes back from the lab.   It doesn't seem to be automatic. 

Earlier this year for example, I asked the CNS  if there was any news on PSA from the blood sample I'd given 4 weeks before, as it wasn't showing on Mycare.  I assume she then enquired on my behalf, as next time I looked on Mycare, it had appeared.   

User
Posted 18 Jun 2024 at 17:43
Not in Labour run Wales you can't, still in the stone age here.
User
Posted 13 Jul 2024 at 15:01
Another post from the AI Bot - reported!
User
Posted 14 Jul 2024 at 09:18

Originally Posted by: Online Community Member

Happened to me too, the receptionist at my local GP surgery didn't notice the "<" sign or didn't know how to interpret it. Had a retest at the hospital who reaffirmed PSA was still undetectable. It could also be due to a change in lab e.g. if you've just moved from hospital testing to local testing.

I'm hoping that's what happened to me - 2.5 years of hospital testing all <0.01 ng/mL followed by my first local test being 0.03 ng/mL.  On repeat it was <0.03 ng/mL, which has me smelling a rat.  Another repeat due in a couple of weeks.  Just as I was beginning to get complacent, too...

Cheers
Ian

User
Posted 24 Jun 2025 at 17:49

Yesterday I had the < 0.05 going to 0.05 experience. 

There’s no chance of somebody misreading or misprinting the results. I read them on my hospital’s portal. Also, my hospital Does all their lab work internally so the possible explanation of a lab switch doesn’t apply. 

here are my PSA readings after going back on Degarelix in July 2024

so with the possibility of an erroneously omitted less than (“<“) sign off the table, I’d like to hear comments on a PSA reading going to 0.05 after six consecutive months of < 0.05  

I didn’t lose any sleep over this when it happened in November 2024 but yesterday‘s result has me quite worried.

 

PSA

 

08/26/24            0.10

09/23/24            0.07

10/21/24          < 0.05

11/25/24              0.05

01/17/25          < 0.05

02/17/25          < 0.05

03/17/25          < 0.05

04/21/25          < 0.05

05/19/25          < 0.05

06/23/25             0.05

 

User
Posted 24 Jun 2025 at 18:11

I should stress that I don't know anything about the medical context, so I don't know how low the PSA would be expected to go.

However, looking at it from a purely mathematical point of view it could simply be that the PSA has been hovering at just under 0.05 and then sometimes you will get a reading which equals 0.05.  This could, for example, represent a fluctuation from 0.049 to 0.050, i.e. a change of only 0.001, which must surely be less than the margin of error in the test. On that basis you can't read anything into it and it would only be if you started seeing a succession of increases that there would be cause for alarm.

User
Posted 24 Jun 2025 at 18:29

Hi Bill,

My guess is someone missed the less than arrow off. When you think about it's too bigger coincidence for the presumed increase 0.05  to be exactly the same as the <0.05 

I've had several errors on my records. Including, T1c cancer staging when it was T2c and Gleason 6 (6+6) The first man in history to ever have Gleason 12. 😁

Edited by member 24 Jun 2025 at 19:44  | Reason: Typo

User
Posted 24 Jun 2025 at 18:38

Adrian -

let’s get the important stuff out of the way right away. It’s 36.1° where I live right now so your picture with a pint gave me an idea of how to beat this heat.

if I’m ever in London, I’m buying you a pint or maybe 12 for beating Gleason 12.

i’m not sure any human beings intervene with handwritten figures for PSA at my hospital. i’m slowly coming around to the idea that this is just a fluctuation in measurement more than the beginning of the end for me. Generally speaking, I’ve been optimistic, but I had a retinal detachment about six weeks ago. It is so harrowing for two or three weeks and unfortunately, it has darkened my mood to the point that a PSA reading that is one 100th different from priors has me up on the ledge. Figuratively speaking

User
Posted 24 Jun 2025 at 19:54

Bill, 

It's warm here, mate. I've already had a can or two, which is probably why my last post was half finished when I sent it. I've edited the missing part now.🥴

I'll have a pint with you in our virtual bar tonight. 🙂

I know how other setbacks can reignite cancer concerns. I'm quite upbeat, but when I do lapse, I really feel in the doldrums.

User
Posted 08 Jul 2025 at 09:40
Hey Galib, I am a bit late to the party, but as all above have said, try not to worry at this time. One reading does not a trend make. If it was to continue to rise at each check, then I would think that would be cause for concern. Unfortunately, we all go through the three monthly, six monthly, annual blood tests with the same dread waiting to see what the result was, and that is normal. It would be worth looking at the post op biopsy results, were there positive margins, that sort of thing, and if not, then just wait until the next test.
 
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