New diagnosis - rabbit in headlights - - Page 4Localised cancer

User

Posted 19 Sep 2024 at 15:22

Hi Jayney

Sorry its been a while. I am doing well thanks. Latest PSA < 0.03.

I hope both you and your other half are both keeping well. Wish I could say the testing gets better but I still get the jitters,

Take care.

User

Posted 04 Jan 2026 at 15:57

So unfortunately here we are again. Whilst I haven’t posted for a while, I often pop on and just have a read.

August 25 - 3 years 5 months since surgery. First non detectable PSA result - 0.13

retested 6 weeks later - no change

referred back to Oncology swiftly. Fast forward, PET scan 20th October showed 0.5cm mass in prostate bed - left side which was the side showing more disease - biochemical relapse. No other evidence of disease anywhere else (thank goodness).

1st Nov - first zolodex. No real symptoms and life carried on. radio to start in 6 weeks.
2nd Dec - 2nd zolodex which lasts 3 months - side effects started to build - mainly ferocious hot sweats and sleepless nights.

radiotherapy commenced 15th Dec to whole pelvic area - knocked him for 6 sadly. Thought we would perhaps get 2 good weeks under our belt before he flagged. Not to be.

However the end is in sight and we have 6 treatments to go. Let’s hope he gets a bit of energy back as the combination has floored him. I’m aware it’s different for everyone.

So not what we were expecting or wanted and knocked us sideways. Just when you think all is good. Shows how important it is to keep up the regular PSA checks and insist on swift action with any rises. Lets hope the combination of HT and rads has hopefully stopped it in its tracks. Time and PSA tests will tell. We are keeping all crossed.

User

Posted 04 Jan 2026 at 16:53

Hi Jayney.

I'm very sorry about Mike's BCR, especially as he had been 'all clear' for almost 3 and a half years. It's cruel for it to raise it's ugly head again, after all that time.

I have a good friend who has almost finished his salvage radiation. He was 3 years BCR free before needing further treatment. I'm just about to reach 3 years of undetectable PSA but still anxious about BCR.

I wish you both good luck, and that the additional treatment completely kills the beast.

Edited by member 04 Jan 2026 at 19:01 | Reason: Typo

User

Posted 04 Jan 2026 at 20:15

Janey P ,sorry to see you back under these circumstances. Hopefully once the SRT has finished things may improve, although the SRT on its own didn't effect me. I did get some late effects with mucus trumps and loose motions. Hang in there I am sure you get get through this.

Were you just told you PSA was undetectable or did you get the actual result, or a <0.1.

Thanks Chris

User

Posted 04 Jan 2026 at 20:41

Hi Jayney P. so sorry to read of the BCR but great job getting on this so swiftly. The radiation was really rough on my OH. He soldiered through and walked and worked everyday, but by the last few weeks his bowels were really feeling it and he was going 10 times just in the night. I know how much you want to help and feel helpless but my OH said it helped knowing he was supported. It took some time to recover and normalize on HT, but we were traveling and really enjoying life already 2 months later. But we overdid it on one trip. I hadn't found this site yet so I didn't know how raw HT makes the emotions. But by five or six months we really could travel and go out and enjoy. By then he was fully adapted, although of course there are still the hot flushes and other obvious effects of HT.

I hope that this treatment does the trick! Good luck to you both.

User

Posted 09 Jan 2026 at 17:26

Thanks Chris, lovely to hear from you. He gets his results via my chart the same day as his test so he can view on line. So we see them in black and white as it were. A re test was done a few weeks later to confirm it wasn’t a spurious result. Sadly there was activity.

Mucus is not pleasant and they advised a “beige diet” to keep the bowel as calm as possible. His treatment has been fabulous and we have one to go. He opted for full pelvic area rather than just the specific area. Weighed up proa and cons and he just wanted to blast it and hopes he doesn’t get any long term side effects. Next week we start to rebuild….. thanks for replying x

User

Posted 09 Jan 2026 at 17:32

Thank you for replying, means a lot. Yes it’s been a challenge for sure. Finish line is now in sight and we hope we have kicked it into next week. So important to keep up the testing. Best wishes to you both. X

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New diagnosis - rabbit in headlights

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