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One year on and a few issues

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User
Posted 27 Feb 2022 at 06:53

Think I am making progress PSA now 0.01 from 24.9 at the start but 11 months after my 37 lot off  radiotherapy having treatment for small abcess in treatment area been proscribed antibiotic cream but doesn't seem to be clearing up back next week hopefully something else might help hormone therapy giving me all usual effects now aching bones and tired at times hoping things will improve good luck too all in your own personal battle's  gaz πŸ‘

User
Posted 27 Feb 2022 at 06:53

Think I am making progress PSA now 0.01 from 24.9 at the start but 11 months after my 37 lot off  radiotherapy having treatment for small abcess in treatment area been proscribed antibiotic cream but doesn't seem to be clearing up back next week hopefully something else might help hormone therapy giving me all usual effects now aching bones and tired at times hoping things will improve good luck too all in your own personal battle's  gaz πŸ‘

User
Posted 27 Feb 2022 at 14:58

Hi Gaz, 
Good luck,  0.01 is very low.
All the best, Peter

User
Posted 27 Feb 2022 at 19:09

Great news with your PSA Gaz πŸ‘πŸ½ hope they can get you sorted out though so you’re feeling better. And hopefully not on HT for too much longer and you will start to feel a bit back to normal x

User
Posted 27 Feb 2022 at 20:14
It's as much a mental battle as a physical one isn't it Gaz? Overall though, knowing that your psa is staying low is always great news.

You and I are running neck and neck together being Gleason 9 and about a year post HT. Let's hope a low psa will get us off ADT a little earlier.

Jules

User
Posted 18 Dec 2022 at 22:08

Originally Posted by: Online Community Member

Tried to start a new thread but Access denied for some reason anyway just finished hormone therapy for Gleason 9 prostate cancer had 37 fractions off radiotherapy and 2 years on hormone therapy psa remaining at 0.01 since end off radiotherapy how long for side effects of hormone therapy to diminish all suggestions welcome have a merry Christmas everyone and keep positive  thanks πŸ‘ gaz 

A common issue seems to be choosing a title that hasn't been used before :-/

Merry Christmas from Gambia x 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Mar 2023 at 17:58

Good news today been discharged from oncology today psa remains at 0.01 six months after finishing hormone therapy just need 6 monthly psa test after a initial psa 24.9 and Gleason 9 diagnosis and 37 fractions off radiotherapy 2 years ago off for a pint tonight gaz πŸ‘

User
Posted 16 Mar 2023 at 18:06

Brilliant news Gaz, so pleased for you. Enjoy your well deserved pint πŸΊπŸ‘ xx

Show Most Thanked Posts
User
Posted 27 Feb 2022 at 14:58

Hi Gaz, 
Good luck,  0.01 is very low.
All the best, Peter

User
Posted 27 Feb 2022 at 15:10

Yes that all looks good. Tiredness aching bones etc. Might just be getting old.πŸ™‚

Dave

User
Posted 27 Feb 2022 at 15:20

Thanks Dave feeling old mate 😁

User
Posted 27 Feb 2022 at 15:21

Thanks Pete πŸ‘

User
Posted 27 Feb 2022 at 15:23

Thanks Pete πŸ‘

User
Posted 27 Feb 2022 at 19:09

Great news with your PSA Gaz πŸ‘πŸ½ hope they can get you sorted out though so you’re feeling better. And hopefully not on HT for too much longer and you will start to feel a bit back to normal x

User
Posted 27 Feb 2022 at 20:14
It's as much a mental battle as a physical one isn't it Gaz? Overall though, knowing that your psa is staying low is always great news.

You and I are running neck and neck together being Gleason 9 and about a year post HT. Let's hope a low psa will get us off ADT a little earlier.

Jules

User
Posted 26 Apr 2022 at 18:28

One year on psa 0.01 last week but still have occasional urine tinged with blood  is this normal or do I need to contact uncology thanks gaz πŸ‘

User
Posted 26 Apr 2022 at 20:58

Gaz, based on your previous posts get that blood checked out. What may be normal for one person may be abnormal for you. 

My symptoms were alot worse but salvage RT has done severe damage to my bladder, had it been diagnosed earlier things may have turned out differently. My level of damage only occurs in around 5 percent of RT patients.

Thanks Chris

Edited by member 26 Apr 2022 at 21:16  | Reason: Not specified

User
Posted 26 Apr 2022 at 23:10
Great news re PSA Gaz. Hope you can get back to some sort of normal 🀞
User
Posted 26 Apr 2022 at 23:25

Will do thanks Chris πŸ‘

User
Posted 26 Apr 2022 at 23:26

thanksjayne πŸ‘

User
Posted 27 Apr 2022 at 22:22

Great news on your PSA Gaz πŸ‘πŸ½ 
Hope you can get to speak to someone about the blood in urine and get things sorted out x

User
Posted 28 Apr 2022 at 14:45

Spoke to onco urine ok now they think antibiotics for a abscess may of caused that. seem ok now thanks πŸ‘

User
Posted 17 Dec 2022 at 08:12

Tried to start a new thread but Access denied for some reason anyway just finished hormone therapy for Gleason 9 prostate cancer had 37 fractions off radiotherapy and 2 years on hormone therapy psa remaining at 0.01 since end off radiotherapy how long for side effects of hormone therapy to diminish all suggestions welcome have a merry Christmas everyone and keep positive  thanks πŸ‘ gaz 

User
Posted 17 Dec 2022 at 12:17

My last HT was Feb 2020. So that ran out in May 2020. Nothing much happened for many months. In fact it was Christmas Day 2020 when I first woke up with a hard on. Thank you Santa.

BTW starting a thread is hard. Main problem is failing to choose a topic area.

Dave

User
Posted 17 Dec 2022 at 13:37

Thanks Dave roll on Christmas day lol πŸ€ͺ

User
Posted 18 Dec 2022 at 22:08

Originally Posted by: Online Community Member

Tried to start a new thread but Access denied for some reason anyway just finished hormone therapy for Gleason 9 prostate cancer had 37 fractions off radiotherapy and 2 years on hormone therapy psa remaining at 0.01 since end off radiotherapy how long for side effects of hormone therapy to diminish all suggestions welcome have a merry Christmas everyone and keep positive  thanks πŸ‘ gaz 

A common issue seems to be choosing a title that hasn't been used before :-/

Merry Christmas from Gambia x 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 16 Mar 2023 at 17:58

Good news today been discharged from oncology today psa remains at 0.01 six months after finishing hormone therapy just need 6 monthly psa test after a initial psa 24.9 and Gleason 9 diagnosis and 37 fractions off radiotherapy 2 years ago off for a pint tonight gaz πŸ‘

User
Posted 16 Mar 2023 at 18:06

Brilliant news Gaz, so pleased for you. Enjoy your well deserved pint πŸΊπŸ‘ xx

 
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