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worried about my diagnosis

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User
Posted 25 Mar 2022 at 15:35

I was recently diagnosed and am ashamed to say I have gone into panic

 

User
Posted 25 Mar 2022 at 15:35

I was recently diagnosed and am ashamed to say I have gone into panic

 

User
Posted 25 Mar 2022 at 16:02

Everyone panics...get as much information as you can and read some of the wonderful stories on this forum...there is so much advice here

User
Posted 25 Mar 2022 at 17:36

you are not alone - all the best

User
Posted 25 Mar 2022 at 20:23
The most important thing to bear in mind is that YOU ARE GOING TO BE CURED. Localised prostate cancer has excellent treatment success rates. You're NOT going to die from it, so put that thought right out of your mind. You get treated and you get on with your life. Treatment isn't particularly enjoyable, but it's not too awful either. Try not to get too stressed about it - you're definitely in the right place. Most of us here have been through it.

All the best,

Chris

User
Posted 26 Mar 2022 at 08:46

Hi Steve ,whenever someone is given this type of news it is devastating and we all act differently.
Never feel ashamed,there are lots of helpful and knowledgeable people on this website .
MY OH Gary was diagnosed over 6 years ago PSA 23 Gleason 4+5 spread to lymph nodes and incurable. He is still here and working !
As others have said your stats are curable .Be kind to yourself.
Best wishes
Debby

Edited by member 26 Mar 2022 at 20:01  | Reason: Not specified

User
Posted 27 Mar 2022 at 09:16
Panicking when given the news is certainly nothing to be ashamed of. Although after the biopsy I was expecting to be told I had PC it was still a sock and if it wasn't that my wife was with me and took detailed notes I wouldn't have been able to recall anything. Very early on, before anything other than PSA, I met a urologist registrar who said "it's not a life sentence but a chronic illness " which I've held on to! Panicking is nothing to be ashamed of as long as you don't let the panic stop you informing yourself and making the best choices for your future. Good luck. As others have said it's the club no one wants to join but you'll find it's full of very kind knowledgeable and helpful members. 😎
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User
Posted 25 Mar 2022 at 16:02

Everyone panics...get as much information as you can and read some of the wonderful stories on this forum...there is so much advice here

User
Posted 25 Mar 2022 at 16:27

It's a hell of a shock to be diagnosed with prostate cancer, particularly since for many men the diagnosis comes out of the blue with no symptoms. Do you know the details of your diagnosis? Stage, Gleason score, etc?

All the best,

Chris

Edited by member 25 Mar 2022 at 16:31  | Reason: Not specified

User
Posted 25 Mar 2022 at 16:27

Hi Steve

sorry to find yourself here. Please don’t feel alone in the panic state. We have all been there and found ourselves feeling all sorts of emotions. 

What have you found out so far? 

Steve 


Originally Posted by: Online Community Member

I was recently diagnosed and am ashamed to say I have gone into panic

 

User
Posted 25 Mar 2022 at 17:32

I was told after the biopsy it was a 4/3  7   but agressive I think thats the word the nurse used. Next thursday I see tyhe specialist from the Christie Hospital in Manchester

User
Posted 25 Mar 2022 at 17:36

Hi Steve

Not a lot because after the biopsy results the hospital rang me to come in and told me. But in a state of shock I didnt really take it all in just that I had a 4/3  total 7 gleeson. Im quite ashamed of my self acting like Im the first person to ever get prostate cancer. Connecting with you all has been a wonderful thing- thankyou.

User
Posted 25 Mar 2022 at 17:36

you are not alone - all the best

User
Posted 25 Mar 2022 at 17:51

Hi Steve

its not a case of being ashamed at all thinking that because this is the first time YOU have been diagnosed with cancer. 

Give yourself a bit of time to process the results ok. If you have been given a support nurse, drop them an email or give them a call and then you can get a full picture. 

Reach out to people of here, there is a massive wealth of knowledge on here and we all support each other. 

All the best. 


Originally Posted by: Online Community Member

Hi Steve

Not a lot because after the biopsy results the hospital rang me to come in and told me. But in a state of shock I didnt really take it all in just that I had a 4/3  total 7 gleeson. Im quite ashamed of my self acting like Im the first person to ever get prostate cancer. Connecting with you all has been a wonderful thing- thankyou.

User
Posted 25 Mar 2022 at 17:54

Hi Steve not nice but curable mine was 5/4 Gleason 9 PSA 24.9 but after radiotherapy and hormone therapy one year on PSA 0.01 and not feeling too bad aches and pains from hormone therapy but back working and generally ok so there is light at the end of the tunnel 👍

User
Posted 25 Mar 2022 at 20:03

Hi Steve, 

Definitely not something to be ashamed about, we’ve all been there and to be honest still sometimes feel that way even nearly a year on. 

Its so difficult to take everything in at first. It really does get easier when you find out a bit more information and have a bit of a plan.

Lots of people on here who can also offer help and support along the way.

Take care, best of luck and will look out for your progress updates 👍🏽

User
Posted 25 Mar 2022 at 20:23
The most important thing to bear in mind is that YOU ARE GOING TO BE CURED. Localised prostate cancer has excellent treatment success rates. You're NOT going to die from it, so put that thought right out of your mind. You get treated and you get on with your life. Treatment isn't particularly enjoyable, but it's not too awful either. Try not to get too stressed about it - you're definitely in the right place. Most of us here have been through it.

All the best,

Chris

User
Posted 26 Mar 2022 at 08:22

Steve

When I received my diagnosis I thought I was fine. Until I tried to tell my family. Couldn't get a word out of my mouth! Once I had managed to share the news, joined this forum and focused on treatment options, I realised I was going to be OK and settled down to the 'business' of getting better.

I do recommend you speak with one of the PCUK nurses. They give you time, good advice and wonderful moral support.

Best of luck, Peter

User
Posted 26 Mar 2022 at 08:46

Hi Steve ,whenever someone is given this type of news it is devastating and we all act differently.
Never feel ashamed,there are lots of helpful and knowledgeable people on this website .
MY OH Gary was diagnosed over 6 years ago PSA 23 Gleason 4+5 spread to lymph nodes and incurable. He is still here and working !
As others have said your stats are curable .Be kind to yourself.
Best wishes
Debby

Edited by member 26 Mar 2022 at 20:01  | Reason: Not specified

User
Posted 26 Mar 2022 at 18:10
Hi Steve, its the club that no-one wants to join and it is a complete shock (well it was for us). My OH was dx at the end of January. Please dont feel ashamed, this forum is great for advice and support. My OH is day 4 post surgery and we are chugging along. Same Gleason score as you. Gather all the facts and dont be afraid to ask the questions - no question is a silly question. We have had great support from guys ahead of us which has been invaluable. Keep us posted and best wishes.x
User
Posted 27 Mar 2022 at 09:16
Panicking when given the news is certainly nothing to be ashamed of. Although after the biopsy I was expecting to be told I had PC it was still a sock and if it wasn't that my wife was with me and took detailed notes I wouldn't have been able to recall anything. Very early on, before anything other than PSA, I met a urologist registrar who said "it's not a life sentence but a chronic illness " which I've held on to! Panicking is nothing to be ashamed of as long as you don't let the panic stop you informing yourself and making the best choices for your future. Good luck. As others have said it's the club no one wants to join but you'll find it's full of very kind knowledgeable and helpful members. 😎
 
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