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User
Posted 11 Apr 2022 at 10:02

Hi My name is Marlon  62 yrs ols.. 2 years ago i have a slightly high and a normal MRI.

Now I have an 8.9 PSA , MRI still to have a new appointment.

What is reasonable expectation at this time ? My grandfather my two uncles and my father passed  away

died of Ca of Prostate.. I worried and stress. Thank you for listening.

 

User
Posted 11 Apr 2022 at 17:23

Well, if you do consult Dr Google, be very very selective.  Good sites to visit are the NHS own website, Prostate UK and MacMillan. The only other site with good information I found is Prost8. 

Do something that interests you while you wait.  It helps.

 

 

 

User
Posted 11 Apr 2022 at 11:23

Well, because prostate cancer caught in the early stages is very treatable a long and happy life is a reasonable expectation.

The PSA is not very high but if it has gone from normal to 8.9 in a couple of years it needs investigation. The mere fact you are 62 makes a PCa diagnosis more likely than not, add in the family history and it becomes even more likely.

So now it is a case of going through the diagnosis process and possibly treatment, this is all quite bearable. Assuming you have access to the NHS you will be fine.

Dave

User
Posted 11 Apr 2022 at 12:46

I note that you live in Cambridge and are therefore in the catchment area of Addenbrookes.  I and several others  who contribute to this forum have been treated at Addenbrookes and if you are diagnosed with prostate cancer you will be in good hands.

 

Ivan

User
Posted 11 Apr 2022 at 12:46

Hi MLcj,  I understand your feelings completely and waiting for results is agony, but you are in the system and something will happen eventually.  Wishing you all the best

 

User
Posted 11 Apr 2022 at 13:31
No need to be scared. With a PSA of 9, if you do have prostate cancer (and most men your age do have it - it's just a part of the ageing process for a man), it's overwhelmingly likely to be localised cancer (cancer contained within the prostate) which has excellent treatment success rates. You are NOT going to die from it - put that thought right out of your mind!

You're on the diagnostic road now, so it is just a matter of waiting and going through all the processes. We've all been there! Try not to think about it, and just take it a day at a time. Above all, do NOT consult "Dr Google" - he won't give you good advice.

Very best wishes,

Chris

User
Posted 12 Apr 2022 at 21:33

The specialist nurses are very professional and experienced as well as being extremely supportive.

User
Posted 07 May 2022 at 12:46

Noting you are in Cambridge, I assume you are being treated at Addenbrookes. I and several others who post on here have been and have found the treatment and care they provide excellent.

 

I had both a local and general anaesthetic when I had my biopsies (obviously at different times!)  and though I had no problems or pain with either the general anaesthetic biopsy for me was the best:  I had less bleeding from the prostate and my urine contained blood for a shorter period of time. It also found more cancer was present, though the grading was exactly the same as the local biopsy I had had  a number of months earlier.

For me, the procedure was straightforward. You turn up, wait your turn (mine was in the afternoon about 5 hours after I had arrived), are taken into the operating room, lie down, are given painkillers and the drug to put you to sleep via an intravenous drip and then wake up to  find you have been moved to a recovery ward with a nurse by the side of your bed monitoring your vital signs. Once the nurse is happy with the results you are then moved to a general ward  for a number of hours. Once you have shown that you can pass urine and can sufficiently empty your bladder you are then allowed home.

 

Ivan

 

Edited by member 07 May 2022 at 12:47  | Reason: Not specified

User
Posted 07 May 2022 at 17:03

I had a trans perineal biopsy yesterday. Under a local.

Arrived at 13:35, called at 14:00, out and waiting for wife to pick me up at 15:00.

Very sore on the drive home, but paracetamol worked fine. Pee'ing OK, no blood in urine, minimal bleeding from the perinium.  The actual aneasthetic injections were the most painful part, I had 4, 2 into the skin, 2 into the prostate. The actual taking of the cores was basically painfree.

All OK today, slight discomfort, but still pee'ing well, rather tired.

My PSA was 5.3, then 15. MRI shows suspicious area on left peripheral zone.

They took 7 cores from the left, 5 from the right.

Done at Royal Berks, Reading.

Edited by member 07 May 2022 at 17:04  | Reason: Location added.

User
Posted 07 May 2022 at 18:15

Originally Posted by: Online Community Member

Hello ALL

I finally got mY MRI done. Next is a biopsy. The Consultant wanted different access, which is below the navel by the perineum. I think it is by the pubic area.  Did anyone have this already? Btw, I was told I would be on general anaesthesia. Any experiences with this procedure ? Thank you. 

 

Hope you soon get your appt for your biopsy and then you will know what you are dealing with. Waiting is the worst. My husband was also treated at Addenbrookes, you are in good hands. Wishing you well x

User
Posted 07 May 2022 at 18:17

Originally Posted by: Online Community Member

I had a trans perineal biopsy yesterday. Under a local.

Arrived at 13:35, called at 14:00, out and waiting for wife to pick me up at 15:00.

Very sore on the drive home, but paracetamol worked fine. Pee'ing OK, no blood in urine, minimal bleeding from the perinium.  The actual aneasthetic injections were the most painful part, I had 4, 2 into the skin, 2 into the prostate. The actual taking of the cores was basically painfree.

All OK today, slight discomfort, but still pee'ing well, rather tired.

My PSA was 5.3, then 15. MRI shows suspicious area on left peripheral zone.

They took 7 cores from the left, 5 from the right.

Done at Royal Berks, Reading.

I know these aren’t pleasant. My husband was in quite a bit of pain. Hope you won’t have too long to wait for your results and then you will know what you are dealing. It’s a stressful time, but lots of great support and advice on here. Wishing you well x

User
Posted 07 May 2022 at 19:09

Thanks!

Results on 17th May - appointment booked when they made my biopsy appt., also an appt. with a consultant on 25th May if it is needed (I hope NOT!)

 

User
Posted 07 May 2022 at 19:18

Just to clarify, the perineum is between the scrotum and anus - long way from the navel...

User
Posted 08 May 2022 at 04:06

Thank you again. It was not explained to me well. I am glad you wrote about it. I just sort of imagined where !!

Edited by member 08 May 2022 at 04:09  | Reason: Not specified

User
Posted 08 May 2022 at 08:37

You will probably have the transperineal biopsy using a grid as in this link. I have had two, one under GA and the last under deep sedation, no problem with either. I found it easier to slouch when seated for two or three days after. If you lean forward you tend to put pressure where needles were inserted. https://www.youtube.com/watch?v=kesmlFjZRBA

Where a fusion version of this biopsy is done one scan is aligned with another.  A probe inserted in the rectum aids the procedure.

Edited by member 08 May 2022 at 08:51  | Reason: To highlight link

Barry
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User
Posted 11 Apr 2022 at 11:23

Well, because prostate cancer caught in the early stages is very treatable a long and happy life is a reasonable expectation.

The PSA is not very high but if it has gone from normal to 8.9 in a couple of years it needs investigation. The mere fact you are 62 makes a PCa diagnosis more likely than not, add in the family history and it becomes even more likely.

So now it is a case of going through the diagnosis process and possibly treatment, this is all quite bearable. Assuming you have access to the NHS you will be fine.

Dave

User
Posted 11 Apr 2022 at 12:11

Thank you for your reply. I have not been diagnosed yet, am still waiting for the urologist to see me and perhaps insist for an MRI like I did the first one , two years ago. The PSA result really terrified me..

 

User
Posted 11 Apr 2022 at 12:46

I note that you live in Cambridge and are therefore in the catchment area of Addenbrookes.  I and several others  who contribute to this forum have been treated at Addenbrookes and if you are diagnosed with prostate cancer you will be in good hands.

 

Ivan

User
Posted 11 Apr 2022 at 12:46

Hi MLcj,  I understand your feelings completely and waiting for results is agony, but you are in the system and something will happen eventually.  Wishing you all the best

 

User
Posted 11 Apr 2022 at 13:31
No need to be scared. With a PSA of 9, if you do have prostate cancer (and most men your age do have it - it's just a part of the ageing process for a man), it's overwhelmingly likely to be localised cancer (cancer contained within the prostate) which has excellent treatment success rates. You are NOT going to die from it - put that thought right out of your mind!

You're on the diagnostic road now, so it is just a matter of waiting and going through all the processes. We've all been there! Try not to think about it, and just take it a day at a time. Above all, do NOT consult "Dr Google" - he won't give you good advice.

Very best wishes,

Chris

User
Posted 11 Apr 2022 at 17:23

Well, if you do consult Dr Google, be very very selective.  Good sites to visit are the NHS own website, Prostate UK and MacMillan. The only other site with good information I found is Prost8. 

Do something that interests you while you wait.  It helps.

 

 

 

User
Posted 12 Apr 2022 at 20:59

I got an appointment, but it was with a specialist nurse. Is it always routine to see a nurse first, not by the doctor?

Thank you.

User
Posted 12 Apr 2022 at 21:33

The specialist nurses are very professional and experienced as well as being extremely supportive.

User
Posted 07 May 2022 at 12:13

Hello ALL

I finally got mY MRI done. Next is a biopsy. The Consultant wanted different access, which is below the navel by the perineum. I think it is by the pubic area.  Did anyone have this already? Btw, I was told I would be on general anaesthesia. Any experiences with this procedure ? Thank you. 

 

User
Posted 07 May 2022 at 12:46

Noting you are in Cambridge, I assume you are being treated at Addenbrookes. I and several others who post on here have been and have found the treatment and care they provide excellent.

 

I had both a local and general anaesthetic when I had my biopsies (obviously at different times!)  and though I had no problems or pain with either the general anaesthetic biopsy for me was the best:  I had less bleeding from the prostate and my urine contained blood for a shorter period of time. It also found more cancer was present, though the grading was exactly the same as the local biopsy I had had  a number of months earlier.

For me, the procedure was straightforward. You turn up, wait your turn (mine was in the afternoon about 5 hours after I had arrived), are taken into the operating room, lie down, are given painkillers and the drug to put you to sleep via an intravenous drip and then wake up to  find you have been moved to a recovery ward with a nurse by the side of your bed monitoring your vital signs. Once the nurse is happy with the results you are then moved to a general ward  for a number of hours. Once you have shown that you can pass urine and can sufficiently empty your bladder you are then allowed home.

 

Ivan

 

Edited by member 07 May 2022 at 12:47  | Reason: Not specified

User
Posted 07 May 2022 at 17:03

I had a trans perineal biopsy yesterday. Under a local.

Arrived at 13:35, called at 14:00, out and waiting for wife to pick me up at 15:00.

Very sore on the drive home, but paracetamol worked fine. Pee'ing OK, no blood in urine, minimal bleeding from the perinium.  The actual aneasthetic injections were the most painful part, I had 4, 2 into the skin, 2 into the prostate. The actual taking of the cores was basically painfree.

All OK today, slight discomfort, but still pee'ing well, rather tired.

My PSA was 5.3, then 15. MRI shows suspicious area on left peripheral zone.

They took 7 cores from the left, 5 from the right.

Done at Royal Berks, Reading.

Edited by member 07 May 2022 at 17:04  | Reason: Location added.

User
Posted 07 May 2022 at 18:15

Originally Posted by: Online Community Member

Hello ALL

I finally got mY MRI done. Next is a biopsy. The Consultant wanted different access, which is below the navel by the perineum. I think it is by the pubic area.  Did anyone have this already? Btw, I was told I would be on general anaesthesia. Any experiences with this procedure ? Thank you. 

 

Hope you soon get your appt for your biopsy and then you will know what you are dealing with. Waiting is the worst. My husband was also treated at Addenbrookes, you are in good hands. Wishing you well x

User
Posted 07 May 2022 at 18:17

Originally Posted by: Online Community Member

I had a trans perineal biopsy yesterday. Under a local.

Arrived at 13:35, called at 14:00, out and waiting for wife to pick me up at 15:00.

Very sore on the drive home, but paracetamol worked fine. Pee'ing OK, no blood in urine, minimal bleeding from the perinium.  The actual aneasthetic injections were the most painful part, I had 4, 2 into the skin, 2 into the prostate. The actual taking of the cores was basically painfree.

All OK today, slight discomfort, but still pee'ing well, rather tired.

My PSA was 5.3, then 15. MRI shows suspicious area on left peripheral zone.

They took 7 cores from the left, 5 from the right.

Done at Royal Berks, Reading.

I know these aren’t pleasant. My husband was in quite a bit of pain. Hope you won’t have too long to wait for your results and then you will know what you are dealing. It’s a stressful time, but lots of great support and advice on here. Wishing you well x

User
Posted 07 May 2022 at 19:09

Thanks!

Results on 17th May - appointment booked when they made my biopsy appt., also an appt. with a consultant on 25th May if it is needed (I hope NOT!)

 

User
Posted 07 May 2022 at 19:18

Just to clarify, the perineum is between the scrotum and anus - long way from the navel...

User
Posted 08 May 2022 at 04:01

Thank you so much for your reply. Yes am being seen in Addenbrookes. My first one was very painful and a lot of bleeding both thru the penis and the anus. I hope this second one will be different as I will be on general anesthesia.

 

 

 

User
Posted 08 May 2022 at 04:06

Thank you again. It was not explained to me well. I am glad you wrote about it. I just sort of imagined where !!

Edited by member 08 May 2022 at 04:09  | Reason: Not specified

User
Posted 08 May 2022 at 08:37

You will probably have the transperineal biopsy using a grid as in this link. I have had two, one under GA and the last under deep sedation, no problem with either. I found it easier to slouch when seated for two or three days after. If you lean forward you tend to put pressure where needles were inserted. https://www.youtube.com/watch?v=kesmlFjZRBA

Where a fusion version of this biopsy is done one scan is aligned with another.  A probe inserted in the rectum aids the procedure.

Edited by member 08 May 2022 at 08:51  | Reason: To highlight link

Barry
User
Posted 15 Jun 2022 at 11:20

The Consultant saw me. The result was grade 2, likely not to spread as it is still localised.

Check up again in 3 months plus a PSA. I am glad it is not aggressive but still Cancer.

Thank you all for all your support.

 

MLCJ

 
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