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Metastatic prostate cancer

User
Posted 19 Apr 2022 at 22:46

Just been diagnosed with MPC,appointment with oncologist on 3rd May. CS Nurse says probably go on Enzalutamide . Is there anyone going through the same,any advice,encouragement gratefully recieved.

User
Posted 04 May 2022 at 21:46

Well i was diagnosed with MPC in Nov 2019, spread to liver, several pelvic bones, rectum, bladder. I have had HT Zoladex from the get-go, an early course of CT Docetaxel, and after a year a round of RT. By PSA is down to 0.15 or so, but it was never that elevated anyway (max 29) despite a Gleason of 9.


CT seemed to shrivel the mets on the liver. HT has slowed the rest down. RT reduced activity in the primary tumour.


All i would say is that i have so far been very lucky. Unlike others' experiences here, none of the above treatments have been at all bad or left me with too-nasty side effects. (The HT gives me the most, including loss of sex drive and weight gain, hot flushes). What i mean is, i feel lucky so far, i feel fit. I get the occasional twinge of pain but really nothing to bother me. I walk 6 miles a day and swim most days. 


All the symptoms (severe pain, constant weeing, pain in hips) i had pre-diagnosis have gone, at the moment--helped also by a TURP plus Solifenacin which means my bladder control is just dandy.


So, it might all be fine for a little while at least. . Try to be optimistic--sometimes the side effects are not too bad and the therapies help.

User
Posted 05 May 2022 at 11:22

Diagnosed in Jan 2019 with MPC and spread to Pubic bone and Lymph node..... on Tamsulosin, Xtandi and a hormone jab every three months and feel great.   Yeh I have the most amazing hot sweats which in winter are not too bad but in the recent heat have been a pain.   If the wife and I both have a hot flush at the same time we could heat the whole house.... Any of the pains in the hip have gone and I feel great..... walk a lot with the dogs... still work and shoot and fish and try and cause as much trouble as I can :-). Weight gain is an issue and eat healthy.... more than you think you do as I thought I was god but still put on 8lbs in five months so just be aware.


The PSA was down to .5 at one point and has now popped up again to 1.5 which is expected as I have been on the drugs for a year and I guess the body gets used to them.   


Key thing is to keep fit and keep positive.

 
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