Why can’t they treat my Lymph node PCa

Well here we are again, sitting in me lounger at the Spa - oops in mean chemo department… Just had my first cup of tea and a kitkat 😁

I’ve also got ice poles in a thermos to suck on to hopefully help with the metal mouth. Fingers crossed it helps as we’ve got some meals out booked 🥴. Fatigue and ankle swelling no worse, which is good. Getting a little bit of tingling in my left foot which is obviously not so good but so far I only really notice it at night. So I put Savlon on which seems to help a bit. Hoping it doesn’t get worse. I’ll mention it to Consultant next Tuesday when I see him F2F. Hair not really growing much but stopped falling out now. Haircut tonight - she hasn’t got much to do 😬… When I see consultant I will ask about my white and red platelets. I’d like some guidance on when I can fly again as we’d like to plan something for early next year. We’ve got 2 BA companion vouchers but one runs out 6th May…. 
One other thing is I’ve just had a few days of not dropping off to sleep very quickly. Normally the Mirtazapine kicks in perfectly. Unfortunately when I don’t go off I often start ruminating about my childhood stuff which is not so good. Was hoping my counselling would help me to stop thinking too much about it but even though she got me more sessions we run out in the end. So gonna start taking my Mirtazapine a bit earlier and see if that helps. 

Booked up a long weekend on a Norfolk Broads cruiser in October so hoping I’ll be ok for that. Let the others do the hard work and I’ll play on my fatigue a bit 🤣🤣 while I sit and eat nibbles and watch the world go by. 

Been keeping busy at home. Had downstairs ceilings flattened Monday and  yesterday while I carried on painting the walls where I could get to . Got a week or so now before ceilings can be painted. Got plenty of other little jobs to do. 

So, still presuming I will be ok for the full 10 sessions. They just asked if it was my last one. I told them I see my consultant Tuesday so I’ll know for sure then. 

Keep going guys, 

Phil

Edited by member 04 Sep 2024 at 13:50  | Reason: Spelling, grammar and additions

Hi Phil, 

Great to see you're still powering through with your treatment, and all the DIY jobs. 

Have you got a captain's hat for your cruise? Let your ship's crew who's boss eh.

We've got our fingers crossed for you 🤞🏻

Cheers, 

Kev.

Leila, I think I’m booked up for at least the next year 🤷‍♂️, especially at the speed I go at 🤣. Try to pace myself or I knock myself out .. It’s difficult as once i start I don’t like to stop… Been sanding this morning so sat watching Para Olympics now for a bit before I crack on again. 

Kev, I’ll need me captains hat won’t I so I can give the orders 😁. Against my advice we got a longer boat which will be harder to manoeuvre in tight spaces but the others wanted more room inside. We’d have still got separate en suites with the smaller boat but I was outnumbered and we went up from 35’ to 44’ and no bow thrusters to help steer… 

First day after chemo and mouth seems ok so far, fingers crossed. No tiredness as yet but we’ll see how it goes coming week. Nervous wait for my blood test result next Tuesday… 😬. Seeing my consultant face to face so got some questions for him. 

Take care guys, best of luck to all of you 👍

Phil

The chemo is doing its thing then.. and only four more to go, you're getting there.

Keep going Phil, best wishes. 

Kev.

We all have down days Phil, so don’t beat yourself up about it, but decorating?…that’s extreme🤣🤣🤣

I hope you enjoy the wedding and short break after it.

Take care,

Derek

Just a quickie: had my Degarelix injection today and bloody hell does it hurt. This is the worst I’ve ever had it.

Still feeling so ridiculously tired. I just want to curl up in a ball for 3 months and wake up when the chemo side effects are wearing off. Just want to go bed now , I’m not even hungry ( it’s 5.30)  Wonder how long I’d sleep for…?

Just needed a moan 😊

Cheers 

Phil

Cheers Mike. Only 6 more , that’s great. I’m on it for life now…. Wish they’d do a version that could last 3 months… 

I went to bed at 6 and slept through till 10 this morning.

Phil

I started with Prostap and it did the job but seriously messed with my mind. So when I had to go back on it after the radiotherapy didn’t work I asked for anything else. I tried Zoladex but that didn’t work so we did try the Prostap again but that didn’t work either. So by default I ended up on the Degarelix, which didn’t work either hence the chemo but my consultant has kept me on the Degarelix anyway. 

Been tired all day and seeing how long I can hang on before I need to got I bed. Don’t usually feel this way in my 3rd week after chemo. 🤷‍♂️

I always get a good nights sleep as I take 15mg Mirtazapine . Usually at least 8 or 9 hours. I came off it a while ago but couldn’t get to sleep so went back on the lowest dose. 

take care

Phil