Why can’t they treat my Lymph node PCa

Hi Phil

Good luck with the second cycle,I'm just getting over my 8th cycle last Wednesday,had a bad time last night and today a lot of stabbing pains from the tip of my toe to above my eye,think I've done to much the last few days,17miles on me bike 16000 steps round the zoo cutting the lawn trimming the hedge light weights in the garage!!!! I sometimes forget what I've got but when the pain kicks in it reminds me,brought us a static down Devon so moving stuff down there Friday could never have done it without the help of big C,look at the positives ah !

All the best Phil........Phil 

Just another quick update. Had a telephone appointment booked with consultant yesterday for 4.30 but as they hadn’t phoned by 6.30 I kinda forgot. Anyways they phoned at 6.45. Said my PSA had gone up slightly, which I guessed it might after only 1 chemo session. ( blood test was the day before my 2nd one). 
But they’d like another CT scan so already got that booked in for Sunday morning at 9.45 …! 
We are at a party in Suffolk Saturday afternoon but driving home afterwards (2 hours drive) so hopefully I’ll be up bright and breezy. 
She asked how I was feeling and I mentioned the tiredness. Guess she wasn’t surprised. But I forgot to ask about flying in August. So I need to call my specialist nurses and ask if they could run it past my consultant.. I still want to go even if it means having the platelet injections if I can. 

Been keeping busy, another smooth down on the speaker cabinets and another layer of oil . Couple of jobs indoors then a new fancy glass dimmer switch for the conservatory lights came so fitted that. Works first time too 😊.. 

Suns out so I’m hoping a little tipple in the summerhouse later with the missus 😁. Even though I’m suspecting my leakage is partly down to alcohol… 🥴

Out with a couple of mates for a meal tomorrow evening so low alcohol beer for me as I’ll drive there. 

Look after yourselves guys, 👍

Phil

So blood test today for my Chemo tomorrow. I have a mild cold so hoping they’ll still do it. 
I’m still getting very tired needing the odd nap. It’s been like that the whole 3 weeks. Also breathless if I exert myself. I even woke in the night feeling I couldn’t breathe properly so I got up and slept in a chair downstairs for a couple of hours as my breathing was more comfortable like that. 
Will be asking about it at the Chemo. 

Swollen ankles don’t seem so bad now. Also need to try to diet a bit as barely any of my clothes fit anymore, and my face is now round as a balloon. Even my phone doesn’t recognise me anymore and I’m having to use passwords again… 

Cheers

Phil

Hi Adrian.
Yes just having a bit of a down day today. I suppose we all get them .

Yes I don’t like being scruffy and I feel so fat 🤦‍♀️… But I should get out and walk more. I see lots of guys on the chemo are still out on bikes etc and that’s brilliant. Not sure I’d get very far at the moment 🤣

I remember Onslow , what a character and a classic TV show. 

I admire people who can be themselves and don’t care what others think. I was always trying to be the smartest kid at school. Probably because I lacked confidence in myself. 🤷‍♂️. 

Hoping you never need to use the chemo 👍

Take care 

Phil

Poor old Onslow. He was only 68. 🙁

I loved Geoffrey Hughes in his other well known roles. Eddie Yeats in Coronation Street, Twiggy in the Royle family and Vernon Scripps in Heartbeat. He always made me smile.

Edited by member 02 Jul 2024 at 22:24  | Reason: Additional text