Why can’t they treat my Lymph node PCa

User

Posted 02 May 2024 at 09:36

Starting my chemo 20th May 😬..

Very helpful as they’ve already agreed to move my 2nd appointment 2 days later to accommodate a wedding we have in the UK.
For our August wedding in the US I’ve got the infusion 2 days before flying so I suppose I just need to see how I get on with it. And hope the consultant thinks I’m ok with regard to blood clots. We are flying premium Economy so have a bit more room to move around.

Phil

User

Posted 02 May 2024 at 11:18

A question : At my last appointment the consultant told me to stop the Abi but continue the Degarelix. I was a bit caught out and didn’t ask what’s the point of continuing with the Degarelix. Anyone any idea why? Is that normal?
Also after the chemo is finished do you normally come off the Hormone meds completely?
And the steroid ?

Thanks

Phil

User

Posted 02 May 2024 at 14:28

My husband has already had chemo and was still on degralix, he is now coming off Bicalutamide and going onto Enzalutamide but he’s still to keep getting the degralix injection.

best wishes

ann

User

Posted 02 May 2024 at 14:36

Originally Posted by: Online Community Member

My husband has already had chemo and was still on degralix, he is now coming off Bicalutamide and going onto Enzalutamide but he’s still to keep getting the degralix injection.

best wishes

ann

Hi Ann, I presume they are expecting your husband to respond to the Enza whereas my Abi doesn’t seem to be doing anything.
Wish I could always think of those questions when you’re in there with the consultant. I’ll just wait and see what the chemo nurse says when I speak to her on the 17th.
Best of luck to your hubby on the enza hope it keeps the horrible beastie away for many years 👍

Phil

User

Posted 02 May 2024 at 17:21

So sorry to hear your latest treatment hasn’t worked Phil, we had everything crossed for good results for you, Keith had the ‘cold cap’ when he had Docetaxel infusions and kept his full head of hair. Hope you manage to sort out your holiday insurance for the wedding in the US.

Thinking of you and your family.

Ange x

User

Posted 02 May 2024 at 22:13

Really sorry to hear about your results Phil. I can’t comment I. The treatment but I wish you well for you next treatment and will keep everything crossed for you🤞🤞🤞

Great attitude BTW, live life to the full!

Derek

User

Posted 03 May 2024 at 11:44

Hi Phil,

Thanks for sharing your journey with us, although I'm sorry to hear about the challenges you're facing. It's normal to have questions, especially when dealing with tricky medical stuff. About your question on treating all your lymph nodes, it's possible that the sheer number or location of the affected nodes may pose challenges for comprehensive treatment. But talking more with your doctor might help clear things up. Good luck !

User

Posted 03 May 2024 at 20:01

Only just seen your post Phil, as I was away all week and not on here much. Really sorry your results were bad mate. Keep being positive, and I’ll no doubt catch up with you in Adrian’s “pub” 👍

User

Posted 09 May 2024 at 12:54

Hi guys and gals. Thank you for your lovely words , all of you 👍, really does help .

Just getting the jitters a bit now as the time draws nearer for the Chemo. To be expected though.

Trying to keep busy and my mind off it all. Sun is out so gonna spend a bit of time lounging in the garden this afternoon 😁.

Off to France tomorrow on our booze run. Spot of lunch in Calais or Sangatte which is always nice. We’ve chosen most of our wine already so we’ll spend more time trying the free samples in the wine warehouse 🥴…

Got a Paloma Faith concert next week too with a nice meal beforehand. So plenty to keep me occupied.

Look after yourselves,

Phil

User

Posted 09 May 2024 at 15:51

Hey Phil,

Great to see you've got some good stuff to look forward to 👍🏻

If you're taking the ferry tomorrow, don't forget to get a seat at the captain's table 😁

Looks like you'll have a great day in the French sunshine.

Stay strong mate.

Kev.

User

Posted 09 May 2024 at 15:59

Have a great time mate, you deserve it. 👍

I love Paloma Faith. ❤️

User

Posted 09 May 2024 at 16:00

Cheers Kev. I’ll ask to see the Captain 🤪…

When you prebook over a certain amount of wine they pay for your ferry . Our friends have an EV car so it’s a very cheap day out.

The wine is so ridiculously cheap still. Jam Shed £3.99 minus tax which you get back. £7.99 in a UK supermarket. In the Amex Lounge at the O2 was £57 a bottle 😳😳.

Phil

User

Posted 09 May 2024 at 16:02

I love Paloma Faith. ❤️

First time we’ve seen her in concert. But have heard she’s really good live.

Phil

User

Posted 20 May 2024 at 10:43

HI Guys. So the day of my first Chemo has arrived. Bit nervous as to how I’ll cope with it , including the cold cap. I’ll keep a diary of the effects, feelings etc. The nurse told me they’ll give me a diary to keep track of everything.

I’m hoping I can come off the Dexamethazone and just have the Prednisone for the Chemo. But I have a feeling all they will do is add the Prednisone for the 3 days prior, during and after the infusion. The dexamethazone has really done the Steroid number on me… Fat face and bloated belly plus a ridiculous appetite…

I will keep this thread updated with the chemo journey and try to keep Adrian’s Pub thread for other chatty stuff.

Take care ,

Phil

User

Posted 20 May 2024 at 10:53

Best of luck mate.

I'll be thinking of you.

User

Posted 20 May 2024 at 11:02

Good luck with your chemo

ann

User

Posted 20 May 2024 at 14:32

Good luck Phil. Stay strong brother 😎

User

Posted 20 May 2024 at 15:53

Cheers guys, sitting in me chair right now having the infusion.

Cold cap ok, as has been said first 15 mins are the worst then it’s fine. Had to be disconnected for a minute as I needed a wee. Waiting to go back on the mains 😳…

For some reason I’m really hankering after a takeaway … maybe im just a greedy b****** 🤷‍♂️.

Phil

User

Posted 20 May 2024 at 17:03

Hope it's going okay mate. You've definitely earned that takeaway.

Good luck!

Kev.

User

Posted 20 May 2024 at 21:22

Originally Posted by: Online Community Member

Hope it's going okay mate. You've definitely earned that takeaway.

Good luck!

Kev.

Didnt finish till nearly 6 after getting there at 1. So called in for a bottle of alcohol free wine and had an hour or so in the summerhouse in the sun. No takeaway but frozen packet curry instead as it was easy. Feeling ok at the moment, hope it stays that way.
Got so many pills 😳… and yet more steroids … 🤦‍♀️

Phil

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Why can’t they treat my Lymph node PCa

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