Why can’t they treat my Lymph node PCa

User

Posted 02 Apr 2024 at 12:17

I know you won’t think so Phil, but you’re amazing!! Keep the positivity going and enjoy everything you do. Have a great time with your family at home and in Jersey.

Ange x

User

Posted 02 Apr 2024 at 12:41

Originally Posted by: Online Community Member

I know you won’t think so Phil, but you’re amazing!! Keep the positivity going and enjoy everything you do. Have a great time with your family at home and in Jersey.

Ange x

So true Ange, Phil you are so strong and it really helps us all get through this. Living every day to the full is the way to go and like you I find travelling gives me a reason to stay positive. Enjoy your trip to Jersey, I’ve only been home for 3 days, it’s wet and cold in Scotland and I can’t wait to get back out to Fuerteventura….out happy place😊

Need to lose some weight first though as I consumed too many mojitos last time🤣🤣🤣

User

Posted 02 Apr 2024 at 14:05

Happy birthday for tomorrow Phil. Looking forward to meeting up at the Airport.

Thanks for the tips re eating out in Jersey, much appreciated.

I agree with Decho, travelling also gives me something to focus on and look forward to.

Good luck.

Kev.

Edited by member 02 Apr 2024 at 14:12 | Reason: Added note

User

Posted 19 Apr 2024 at 16:04

Had my blood test and bone scan today and I’m feeling surprisingly emotional and very sensitive ( I’ve always been a sensitive soul 🤷‍♂️ ).
Thinking about all sorts of sh*t , old and new and can’t snap out of it. Could be because I had to go on my own today as the wife had to work all day.
So I’m gonna pop over MiLs to sort something out for her. Hopefully it’ll take my mind of all the crap that fills my head when I’m like this. 🤦‍♀️
Should be ok tomorrow, we have plenty to keep ourselves busy. Then Sunday up to the Smoke to the Sherlock Holmes Experience. You get a meal and I think the mystery resolves all around you as you eat . Should be fun.

Hope you guys are all ok and perhaps in a brighter mood than me at the moment.

Take care

Phil

User

Posted 19 Apr 2024 at 18:03

Originally Posted by: Online Community Member

Thinking about all sorts of sh*t , old and new and can’t snap out of it. Could be because I had to go on my own today as the wife had to work all day.

Phil, your'e a warrior, but even they must get a bit p*ssed off at times. 🙂

User

Posted 19 Apr 2024 at 18:07

Phil, your'e a warrior, but even they must get a bit p*ssed off at times

You guys do make me laugh 🤣🤣. Can imagine a Medieval Warrier having a hissy fit 🤣🤣…

Phil

User

Posted 19 Apr 2024 at 18:41

So! You were going to sort out the MiL Phil? Good luck with that one!🤣🤣🤣

User

Posted 19 Apr 2024 at 20:13

Originally Posted by: Online Community Member

So! You were going to sort out the MiL Phil? Good luck with that one!🤣🤣🤣

Sorted 👍….. 🤣

User

Posted 29 Apr 2024 at 10:15

Hi guys. Well seeing consultant tomorrow late afternoon and I’m probably the most nervous I’ve ever been. Had a good weep last night when we went to bed and feel a bit tearful today , but got me jobs to keep me busy, and the suns out 👍.

Im not even sure what I want him to say tomorrow. Obviously I’d like him to say PSA and T are going down but I’m not really expecting that. So I suppose I’m just waiting on when he decides it’s time for the surgery. Also wondering if there’s any point in chemo ?

Anyways, on with me jobs with a cup of coffee at my side.. 😁.

Take care all you wonderful friends.

Phil

User

Posted 29 Apr 2024 at 13:52

Good luck tomorrow mate, I've got everything crossed for you 🤞🏻

Cheers,

Kev.

User

Posted 29 Apr 2024 at 14:01

Phil, good luck for tomorrow.

Thanks Chris

User

Posted 29 Apr 2024 at 14:07

Originally Posted by: Online Community Member

Phil, good luck for tomorrow.

Thanks Chris

Ditto from me Phil.🤞

(Thanks for the reminder Chris, I'm getting a memory like a sieve!)

User

Posted 29 Apr 2024 at 14:41

Thinking of you Phil, get on with them jobs, and enjoy the coffee.

User

Posted 29 Apr 2024 at 14:57

Thank you guys and gals , really appreciate it 👍

Lunch finished , missus back to work , so on with the jobs.

Phil

User

Posted 30 Apr 2024 at 19:16

Ok so, latest update… Not so good .! PSA up to 10 and T still at 1.2. I think she said something about the PCa possibly Hormone Naive now and some more bone mets showing up. So we are moving onto the Chemo Docetaxel.
Got to stop my Abiraterone straight away but stay on the Dexamethasone and Degarelix injection. They will change the Dexa to Prednisone before the Chemo which is due to start in 3 weeks.
I am presuming then it will be a 21 day cycle. Hoping I can tolerate it as well as Phil is doing. Might have to pick his brains a bit. Also like to know about the cold cap …

So not what we wanted to hear , especially about the little bugger being T resistant now. That probably means the Orchidectomy is pointless.

Had to tell our boys and i can tell they’re both upset. So hard for them , and of course my missus. I don’t know how she keeps it together 🥰.

Anyway, onwards and upwards. Still loads to do and see… not stopping yet 😎

Take care of yourselves guys.

Phil

User

Posted 30 Apr 2024 at 20:08

I'm so sorry that the results weren't what we all wanted. Stay strong mate.

User

Posted 30 Apr 2024 at 20:40

Goalhanger,

Sorry to hear this Phil.

Take good care of yourself, and yes, get as much pleasure out of life as you can.

JedSee.

User

Posted 30 Apr 2024 at 20:45

Thinking of you and your family Phil.

Leila

User

Posted 30 Apr 2024 at 21:26

Sorry to hear that Phil.

Best wishes mate.

Kev.

User

Posted 01 May 2024 at 06:39

That’s horrible Phil , no useful time at all on the second line AAD,s which sucks tbh. Thinking of you friend 💪

Notification

Join the online community now.