Why can’t they treat my Lymph node PCa

So do I Phil. I put mine down to too much booze. 😁

I think you are Southend, as are we. It’s reassuring they are looking after you so well, and a positive that they have the radium 223 and other things to support your skeletal issues. I haven’t looked this far ahead but will read up on this.

Enjoy your well deserved wine, very best wishes to you and yours.

Hi Phil,

I wish I lived nearer and we could go out for a pint. 

That would be good 🍺 👍… 

KevT and I met up in Jersey as we were both there at the same time. Was really nice and I don’t think we mentioned PCa once… 

Cheers

Phil

Sorry to hear this mate.

Keep fighting!

I know we are all different, but if it's any consolation, I started with a very similar skeletal scenario to where you have arrived now (although mine was face rather than skull), and 3 years later am still here.

Good luck mate.

Hi Paul. Wow you’ve done amazing after your prognosis. The Enza really worked for you. I tried Abiraterone but it didn’t do anything. 

The hospital just phoned me and starting the R223 on 6th May. they’ll order the stuff in then call me to arrange a time. 

They’ve also changed me from the Degarelix injection to Orgovyx pills. Hoping it does something and is kinder to my belly… 

Also started a course of calcium pills to strengthen my bones a bit. 

Off out to lunch now with a pal. 

Take care 

Phil

Hi Phil

Sorry to hear the news,fingers crossed that this treatment is tailored for you and it knocks it in to touch for sometime,as you know some treatment works for some and not for others,this my be the one for you.

Can't believe they've only just started you on calcium tablets I was put on them a few years ago,how some NHS areas work differently to others.

Hearing your news has made me more determined to keep up my visits to London and make the effort and im grateful to you for that.

Wishing you all the best with your journey and please keep us updated.....Phil 

Hi Phil.

yep fingers crossed it does some good. 

Registrar says my calcium measurements have always been pretty good and you can overdo it apparently. So I’ve got some pills just for a week then the Zolendronic acid infusion in line with the Radium. 

Feel good to have given you a boost as well. Can’t be easy with that journey every 4 weeks. You’re an inspiration to us all too 👍. 

cheers

Phil

Hi Leila. I’ve just had a 3 hour nap and feeling a bit more refreshed. I’m sure I’m so tired partly because of the collapsed lungs. But my consultant just said I’ve been referred to heart/lung unit and they’ve definitely received it… so just gotta wait … 

Weather is so nice today - perfect for putting up an arch. Be lovely with clematis on. 

So I’m a week or so older than you ! From what you write you are much wiser than me 🤣🤣. 

Shame about Charlton …. I have similar experiences with following Tottenham. I’d love to get back up there to see them but need to be a bit fitter and healthier for that. Last time was last August… for a friendly against Bayern Munich. 

We are planning a trip up to Ronnie Scot’s this year sometime although we’ll likely do the late afternoon gig as I might fade away with a late night now. 

Take care 

Phil

Hi Phil,
Don’t think I’m wiser, just stubborn, inquisitive, wise never! The arch looks brilliant and I’ve been out in the garden all afternoon pottering about. 
David played at Ronnnie Scott’s a few times in his young er days. His main audience these days is me and the cats, though we are all very appreciative. He was lucky enough to play all over Europe and the USA as a young lad.Now happy with me the cats and the cattle in the local fields.

We do have a bit of a do in the garden during summer if the weather permits, as David’s birthday in July he’s a young 75 this year. 
 As he’s on such a complex regime of meds we can’t really fly any more, we were just reminiscing earlier about our travels in Thailand and Laos, and a hilarious border crossing into Myanmar where the guards looked like old boys from dad’s army. 
It was blistering hot and the passport workers had on leather jackets sunglasses and tried to look hard, behind them was a window with flowery curtains when diluted the whole picture into hilarity, though we dare not giggle until we were well away. 
David gets tired he doesn’t rest in the day, but he doesn’t rise early, he also goes to bed late, the life of a jobbing  musician I suppose. 
He paces himself and does a few hours in the garden each day, in winter we have a gym to keep us going. 

Football, ahhh, I am used to it, I support and make all the right noises as required, but I’m not interested at all really. 

I did get to hold the FA cur many years  ago, can’t even remember  the occasion. 

Lovey to read your post, enjoy the sunshine.

Leila 

Hi Phil.

I can't even imagine what you're going through, mate. My heart goes out to you and your family. I wish there was something I could do to help. 😟

Edited by member 05 May 2025 at 11:57  | Reason: Typo

Hi Phil 

Good to here off you,no where your coming from with the emotional issues and with close family going home,my lad was back for the weekend and it takes your mind off things and gives you a lift when there here,im off to London tomorrow for my round of cabizitaxel so that will be 14 rounds of chemo now!im getting no younger and don't know how much of this crap going into your body we can take but you gotta keep going.

Wishing you and the Mrs well and keep ya pecker up pal.....Phil 

Thinking of you today, take care.

Leila 

Well I suppose Spurs gave me a bit of a boost 🤣. Cant see us beating Man Utd though the trophy though.

Still feeling tired and had another 2 hour nap today and I did spend a bit of time in the garden in the sun, only sitting mind you. 

Taste still not back to normal and not heard from GP about my swab. 

So feeling a bit sorry for myself at the moment. Just like a day where I feel almost normal. I know that’s gonna get rarer now isn’t it..! 

Hope you guys are enjoying the weekend sun? 

Phil

Hi guys. 

Well got the results of my swab back and it’s ok. So presumably the taste thing is a side effect of the Radium. It is getting better, just very slowly. See my consultant next week. I also changed from Degarelix injections to Orgovyx tablets last Tuesday so maybe some slight changes from that. Must say I don’t miss the Degarelix injection at all… 

Went to the opticians yesterday as my eyesight had deteriorated rapidly and I’d stopped driving. Turns out I have cataracts caused by the Dexamethazone steroids. He can see it has happened very quickly. He’s referred me and says it should only be a couple of months. Private would be a couple of weeks but £3500 for each eye so I’ll wait for good old NHS. 

Cheers

Phil